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Prostate Cancer Support Group

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Discussions (145)
Side effects adding XTANDI to ORGOVYX
Who is taking both Xtandi and Orgovyx and what are the side effects of adding Xtandi to Orgovyx. I am asking this question on behalf...
Support Group: Prostate Cancer
Last active: Jan 13 3:21pm
What to ask the radiation oncologist about prostate cancer?
Tomorrow we have zoom call with radiation oncologist that was recommended to us by prostate surgeon. Our meeting with surgeon was somewhat confusing since we...
Support Group: Prostate Cancer
Last active: Mar 28 10:41am
Recent diagnosis with some questions and looking for feedback
Hi, I have enjoyed reading everyone's comments and found them so helpful while my husband has been undergoing testing and diagnosis. He is A 73...
Support Group: Prostate Cancer
Last active: May 19 8:09am
How do you answer the "Do you have cancer now" question?
I am interested in how others answer when asked by dentists, physicians, and others, if you currently have cancer, after having a radical P. I...
Support Group: Prostate Cancer
Last active: Feb 21 11:12am
Can't bring my baby home
Minutes before surgery, I was asked if I wanted my prostate back. Apparently that's a thing. It was such a bizarre question, I said yes....
Support Group: Prostate Cancer
Last active: Nov 22, 2024
Can prostate cancer be spread through sex?
A bunch of us were discussing prostate cancer and the question was asked, if a man has prostate cancer can he spread the cancer through...
Support Group: Prostate Cancer
Last active: Oct 22, 2023
Shot day after infusion
My white blood cell bottomed out; had to be hospitalized to get my WBC count up to "normal" range the dr ask if I had...
Support Group: Prostate Cancer
Last active: Sep 9, 2025
Biopsy follow up meeting questions?
I had my biopsy done last week at Mayo Rochester and the results came back Gleason 7 (4+3) with cancer in 5 of 17 cores....
Support Group: Prostate Cancer
Last active: May 13, 2025
Prostate problem but not cancer "yet"
After 3 biopsies and one being a MIR computer directed one...No Cancer. PSA....rose up to 16 and back down 10 and now 11 but no...
Support Group: Prostate Cancer
Last active: Jun 19, 2025
Update from ucla2025
We had our doctor’s visit yesterday. With the PSA now at .04 he wants to continue with the Orgovyx and Nubeqa and recheck PSA in...
Support Group: Prostate Cancer
Last active: Feb 24 2:16pm
Stage 4 prostate Cancer: Firmagon + Abiraterone?
I have a question - my brother has stage 4 prostate cancer metastasis to bones. He has had 10 sessions of radiation followed now with...
Support Group: Prostate Cancer
Last active: Jan 15, 2025
My PSA climbed 02, .04, .07 .15 .21 had a RP 2 yrs ago PSMA negative ?
I am Lou, After 2 years after prostectomy PSA was undetectable .02, .04, .07, ..15 to .21 oncology asked to do another PMSA Results were...
Support Group: Prostate Cancer
Last active: Feb 24 9:59am
Suggested Tip (Just the tip… sorry, I couldn’t resist)
When I was in the hospital I had my iPad with me and I literally wrote down every single post-operative question I could think of...
Support Group: Prostate Cancer
Last active: Jan 31, 2025
Biopsy confirms prostate cancer in 12 out of 12 cores
Hi, all. It appears my initial post ("Journey begins - age 51, PSA 72" https://connect.mayoclinic.org/discussion/journey-begins-age-51-psa-72/) was not premature after all. Based on my biopsy results,...
Support Group: Prostate Cancer
Last active: Jun 22 9:51pm
Suggestions for questions of surgeon following RARP
Hi, I'm meeting tomorrow morning with the surgeon who performed my RARP two weeks ago this past Monday. Unfortunately I haven't yet received any pathology...
Support Group: Prostate Cancer
Last active: Oct 29, 2025
ADT with EBRT and Brachytherapy
Apologies for perhaps asking a redundant question. There are some recent studies that claim that a dose of ADT, when selecting EBRT and a Brachytherapy...
Support Group: Prostate Cancer
Last active: Dec 2, 2025
Question: what if I stop prenisone but stay on abiraterone and lupron?
Have been on lupron and low dose abiraterone (250 mg) and prednisone for four+ months. PSA went from near 1100 (you read that right) to...
Support Group: Prostate Cancer
Last active: May 31, 2025
Nubeqa (Darolutamide) versus Zytiga versus Estradiol Patches
Does anyone have experience with these two drugs? My partner was recently prescribed Zytiga along with Orgovyx plus a 7 week radiation treatment. I have...
Support Group: Prostate Cancer
Last active: Jan 16 9:57pm
First Session of Radiation Called Off While on Radiation Table
Hello, My husband has Gleason 9, cribriform prostate cancer, with PTEN-loss, which appears contained in the prostate based on scans. The cancer is diffused with...
Support Group: Prostate Cancer
Last active: Jun 6 6:36pm
A Word About ChatGPT / Grok / Etc
I use AI quite a bit and for a wide variety of reasons. In nearly every instance, the more complex the question, the more I...
Support Group: Prostate Cancer
Last active: Dec 15, 2025