Support Groups

Prostate Cancer Support Group

Public Support Group
1,412 total results
Discussions (93)
Hernia surgery post prostatectomy
Anyone have experience with hernia surgery post prostatectomy? Evidently, the normally "routine" abdominal hernia surgery is much more complicated for those who have had prostate...
Support Group: Prostate Cancer
Last active: Apr 2 4:21pm
RP yesterday at NYU Langone
Fellas: Just wanted to update you. 62 yrs ( my birthday today) G9. Don’t have pathology back yet. Surgeon said everything went well. Spent the...
Support Group: Prostate Cancer
Last active: Mar 28 10:10am
Jan 31st will be 2 years since my non nerve sparing RARP
Incontinence has been very minimal (maybe 3 or 4 ml per 24 hours) but my bigger issue is that of urge. I have been occasionally...
Support Group: Prostate Cancer
Last active: Jan 16 1:50pm
Cialis (tadalafil): Is it doing any good & how long to take it?
My physio recommended 5mg of Cialis per day.Apparently it assists with repairing/preventing scar tissue from forming (and helps with incontinence?)How do I know it's doing...
Support Group: Prostate Cancer
Last active: Oct 20, 2024
Looking for exercise suggestions prior to robotic prostatectomy.
I hope I'm not re-asking a common question... I recently got my prostate biopsy results back and had a Gleason score of 6 (3/3). I...
Support Group: Prostate Cancer
Last active: Jun 6, 2023
Sling (or other treatment/prodedure) for climaturia following RP
I had a RP just over 3 years ago for G9 and subsequently had triple therapy plus whole pelvic radiation for oligo metastatic disease. My...
Support Group: Prostate Cancer
Last active: Feb 5 7:20am
Can anyone share their experience with ProACT (an AUS)?
My 71 year old husband had prostatectomy surgery in August 2023 followed by 6 weeks of radiation therapy which finished the end of January this...
Support Group: Prostate Cancer
Last active: May 9 7:26pm
Question you wished you had asked before your Prostatectomy
I've made a list of questions to review with my Dr. regarding my upcoming Prostatectomy. I don't know what treatment they will want to do...
Support Group: Prostate Cancer
Last active: Mar 12 7:55am
Hill-walking/hiking after prostatectomy
Hi, had a radical prostectomy seven weeks ago, recovering really well, no incontinence, walking on the flat for a couple of hours causes no problems,...
Support Group: Prostate Cancer
Last active: Mar 17, 2024
Prostate cancer recurrence: RT advised concerned about quality of life
After 10 years my prostate cancer has come back. PSA went from 0 to 0.4(from 0.2 to 0.4 in last 6 months). PET/CT TEST was...
Support Group: Prostate Cancer
Last active: Feb 25 7:57pm
Any experiences with Artificial Urinary Sphincter (AUS) or Sling?
Hello. Just wondering if anyone has a long-ish term experience with either the sling or AUS. I had a partial nerve sparing prostatectomy in 2018....
Support Group: Prostate Cancer
Last active: Jan 13 9:59am
Catheter Removal Day is World Cancer Day And So Far So Good!
Might be too soon to tell, but the catheter came out finally, and of course I felt like I needed to pee the whole way...
Support Group: Prostate Cancer
Last active: Feb 5 1:00pm
Supplies recommendations post prostatectomy
I was recently diagnosed with mid grade prostate cancer (Gleason 4+3). I was given option of either Proton Beam+Hormone treatment or nerve sparing prostatectomy. I’m...
Support Group: Prostate Cancer
Last active: Mar 13 11:38pm
How do you deal with your friends' ignorance about your condition?
I have been open and frank with my golf and pickleball buddies about my incontinence after my RALP of several months ago. They have come...
Support Group: Prostate Cancer
Last active: Mar 30, 2024
Questions about MRI report
I had an abnormal PSA for my age and so I was referred to an urolgist who did a digital rectal exam and didn't feel...
Support Group: Prostate Cancer
Last active: May 24, 2023
Pelvic Floor muscle training post-prostatectomy
I hate incontinence and have been spending some time researching treatmentone issue that has come up has to do with how many Kegels a day...
Support Group: Prostate Cancer
Last active: Apr 5 8:35am
It’s go time! RP tomorrow
First I want to thank all of you for your comments and support! @jeffmarc @northoftheborder @heavyphil @retireddoc @kenhorse @rider51 @jc76 @ecurb @survivor5280 @fwintracy @michaelcharles special...
Support Group: Prostate Cancer
Last active: Mar 29 1:18pm
Total Gland Ablation Experiences w' TULSA-PRO?
Greetings All, I'm seeking feedback on others' experiences w' PC who had total gland ablation via TULSA-PRO. Cured? ED? Incontinence? Complications? Other? My PC is...
Support Group: Prostate Cancer
Last active: Feb 7 11:41am
Finding the right dosage of Trimix
Since my RARP was non-nerve sparing, I'm permanently impotent. I've tried everything with no usable results, so now it's Trimix. I started at 0.1 ml...
Support Group: Prostate Cancer
Last active: Mar 5 5:52pm
Post treatment update #3
Exactly 1 year since 45mg Lupron hormone therapy injection that was followed by 20 radiation sessions. 90 day post treatment PSA test showed no cancer...
Support Group: Prostate Cancer
Last active: Apr 4 2:07pm