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Public Support Group 1,095 total results
Discussions (75)
Has anyone lowered their Abiraterone Dosage? To what effect?
Has anyone had personal experience (or know of others' experiences or know of related studies) taking half the usual dosage of abiraterone (i.e., taking 500mg...
Gleason 8. High risk. Prostate swelling-cancer is contained for now.
Age: 56. Physically/mentally: Strong. Gleason 8 - High Risk. Stage: IIIa Cancer tumor: Contained within prostate for now. Tumor protruding outward. Recommendation: Per radiologists, surgeons,...
Lupron and Nubeqa (darolutamide): Anyone on this protocol?
I have advanced PC with metastasis in the lymph nodes and pelvis. Gleason 6-9 and PSA>20. Began with 3-month Lupron injection. Began Darolutamide (Nubeqa) at...
Why isn't hormone therapy used in all prostate cancers?
An observation and insightful comment by one group member here: "Lupron/Eligard both shrink the prostate and stops the production of testosterone which feeds the growth...
Fatigue after Eligard and proton Beam
In November 2020 I had a six month Eligard shot, then completed 44 proton beam treatments on April 9, 2021. Today August 2, I have...
Hot Flashes and Symptoms
This question is just because of my curiosity. I have been on Testosterone blockers (Orgovyx) for 17 months and I get hot flashes somewhat frequently....
Leg Issues Long After Radiation and ADT
Treatment for Prostate Cancer started 2 years with 45 radiation treatments and 28 months of Orgovyx. I was 77 at diagnosis. Orgovyx treatment ended 6...
Orgovyx
Hello All: I am 78 years old and had my prostate removed over 3 years ago. Post surgery my PSA was < 0.01. After two...
Back again ...
I just hit mid month 5 of 6 on Orgovyx today but got very depressing news from my sexual health doctor. My testes have atrophied...
Question about rising PSA.
My husband was diagnosed two years ago with advanced regional prostate cancer. After radiation and a year or orgovyx there was no meaningful change in...
MRI guided SBRT. Where is it offered and best radiation oncologist?
Has anyone had MRI guided SBRT outside of the clinical trials. I don't mind participating in a trial, but I can't find an open one....
ED meds and side effects
My husband is getting brachytherapy in September and then IG IMRT in October. He is currently on Orgovyx for month two and will be adding...
Three Years Post SBRT
Hello just wanted to introduce myself I am in Manhattan and had SBRT for mostly G6 with one core of 8 upgraded at second opinion...
Jansen clinical trial ADT & Erleada and surgery
I am 75 years old and a year ago my biopsy indicated that I had NM advanced aggressive Gleason score 9 prostate cancer and my...
Defeating Prostate Cancer
Diagnosed @age 76 PSA 20 Gleeson Score 9 all the urologists wanted to take it out.After interviewing 12 men who had the cut done It...
Will Orgovyx (relugolix) Reduce Prostate Cancer without Radiation?
I am 77 years old. I had my prostate removed over 3 years ago. After 2 years my PSA began to rise from < .01...
Question regarding resistance training.
Greetings: Background: I was diagnosed in February 2023 with Gleason 9 PC, PSA 25 and 9/12 cores positive. The PSMA-Pet showed no spread, however the...
6 months or 18-24 months ADT with salvage Radiotherapy
After RARP in 2019 my psa is back up to 0.26 from 0.02 post op. After PET/PSMA scan right common illiac node showed possible tumor...
Share your test results (if you'd like)
I thought it might be helpful to have a thread dedicated to sharing routine test results, good or not-so-good. My intention is just to provide...
PSA post radiation: how to interpret?
PSA post radiation? The correct use of PSA is as a tracking / monitoring tool. Now, my docs put me on Lupron two months before...
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