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Discussions (112)
Am I being paranoid?
Yesterday I had my nine month post radiation PSA, testosterone, blood tests and bone density tests. I was set to meet next Friday with my...
Difficulty with androgen deprivation (ADT): what helps?
I am taking Eligard for a year now and gained 25 lbs and have depression and fatigue. I have a friend taking degarilix and he...
Husband not responding to ADT
My husband was diagnosed with aggressive and advanced prostate cancer in spring 2022. Started Orgovyx in July 2022, and did 25 radiation treatments. At appointment...
Estrogen patches: Anyone used an estrogen patch post-ADT? Helpful?
I just had my second post-ADT PSA test and it dropped from .08 to .04 so I am very happy about that as my primary...
18 month update. How am I doing?
18 months now. How am I doing? Background: age 81, hgt 6', 200 #, moderately active. No diet. Just common sense practicing moderation. Non smoker,...
The Rx Coupon Game
While it's not quite The Squid Game, sometimes it seems equally corrupt. Prior to PCa, I don't recall ever paying for prescription drugs. Any drugs...
Resolution of Side Effects after Stopping ADT/Lupron
Hello everyone. I am 70 years old and was diagnosed with PC about 2 and a half years ago, G9 with extra capsular extension but...
Treatment options: radiation without ADT?
Researching treatment options.79 yr old, sexually active, good healthGleason 4+3, PSA 12.91 (tripled within last yr), Testosterone 435, PSMA PetScan No metastases, Decipher .95Radiation oncologist...
PSA up at the 3 month point. Looking for guidance
Ok. So trying to get my brain wrapped around expectations for my Dr appt on Tuesday 12/17.I’d like to hear from people who had radiation...
After Lupron Depot, which med?
I've been given Lupron depot at a 12-week dosage (22.5mg, into the butt), but still have significant side effects of over a dozen hot flashes...
Is this true?
I was starting to do a lot better but then I read that it can take 18 months to get my testosterone back to my...
What does "This abuts the prostate margin over 6mm" mean?
Hello everyone – 61 years of age. PSA 9.7, 15%fPSA, Velocity 1.05 (1.5 jump from June to December 2023), PSA density .12, two lesions PIRADS...
Lupron: Anyone have muscle weakness and severe leg pain?
I have PC and have been on Lupron injections every 3 months for 15 months. I am experiencing severe leg pain in hamstrings and glutes....
Has anyone lowered their Abiraterone Dosage? To what effect?
Has anyone had personal experience (or know of others' experiences or know of related studies) taking half the usual dosage of abiraterone (i.e., taking 500mg...
Starting TRT now.
I'm 75 now. My prostate was removed in 2021. The cancer spread to my T3 vertebrae. That was treated with radiation. I was put on...
Hormone Levels after 90+ days Lupron
Background: @ age 62 Radical Prostatectomy May 2020. Post RP pathology report stated high risk, confirmed 4+3 Gleason, positive margins, Perineural invasion, as well as...
Stage 4 Radiation challenge: How to avoid risk to bladder?
Hello, I’m stage 4 post Radical, post comprehensive radiation, coming off ADT, waiting for Testosterone to return, looking at next steps. When they did the...
Gleason 8. High risk. Prostate swelling-cancer is contained for now.
Age: 56. Physically/mentally: Strong. Gleason 8 - High Risk. Stage: IIIa Cancer tumor: Contained within prostate for now. Tumor protruding outward. Recommendation: Per radiologists, surgeons,...
Have erection but can't have an orgasm
71, SBRT completed last July, 4 months of Orgovyx. Fortunately, PSA remains undetectable. Testosterone back to my normal limits. Using Trimix now and I can...
Further Treatment: Wondering about stopping hormone therapy?
I had a radical prostatectomy in 2015. PSA started to double every 4 weeks 4 months later. Then had 40 radiation sessions. PSA started doubling...
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