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Prostate Cancer Support Group

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Discussions (171)
My ADT Story, Feedback Appreciated
New here. First post. I was diagnosed in Nov 2021. Gleason 9 and Decipher score also very high. Had surgery/prostate removed in Jan 2022. Had...
Support Group: Prostate Cancer
Last active: Jun 19 9:41am
How long does your oncologist have you on ADT?
I had surgery in March 2020. I was undetectable for 3 years, then started to see some PSA. .05.....06 ... Eventually climbed to .25 in...
Support Group: Prostate Cancer
Last active: Jul 27 1:43pm
Quick ADT Question
From your experience and understanding from your doctors, does the likelihood of castrate resistance increase the longer you're on ADT? If CR develops, what are...
Support Group: Prostate Cancer
Last active: Jun 18 10:21am
SBRT Monotherapy (No ADT)
I am specifically interested in replies from those who were (a) younger than 70 when they had their SBRT 5-fraction/high dose before 2018, and (b)...
Support Group: Prostate Cancer
Last active: Jun 2 12:30pm
Does ADT actually kill cancer cells?
It seems like a simple question, but finding a definitive answer is not so easy. My MO says yes - the combination of Orgovyx and...
Support Group: Prostate Cancer
Last active: Aug 9, 2024
Testosterone levels are rising after cessation of ADT
I am being treated for high risk prostate cancer . Completed radiation ,ADT AND Casadex for 2 years. I have NOT taken ADT or Casadex...
Support Group: Prostate Cancer
Last active: Aug 1, 2024
When to start ADT treatment of 4+3 score?
Hi, due to scheduling delays I won't be able to start SBRT (cyberknife) for my Gleason 4+3 multi-focal PC until September. My PSA jumped in...
Support Group: Prostate Cancer
Last active: Jul 1, 2024
ADT and weight loss?
My husband's been on ADT, elegard injections for over a year and has not gained any weight. He's 5'11" and weighs 153. (His treatment was...
Support Group: Prostate Cancer
Last active: Jul 31, 2024
Does sex drive return after 3 years of ADT? I'm 73.
Does sex drive return after 3 years of Eligard? 73 years old, Gleason 8, treated with 26 radiation sessions.
Support Group: Prostate Cancer
Last active: Jul 10 11:23am
SBRT left common iliac node
OK, ready to make a decision on the next step of this battle. Prostatectomy 10 years ago. Biochemical recurrence with 30ish Radiation Treatments and that...
Support Group: Prostate Cancer
Last active: Feb 10 11:37am
PARP inhibitors or radiation: Any thoughts?
I have stage 4 PC, spread to lymph node and pelvis. Being treated with ADT and Nubeqa, started last September, having an MRI tomorrow to...
Support Group: Prostate Cancer
Last active: Jan 19 5:47pm
Learned Something New Last Week
While meeting with my NP 3 months post IMRT and HDR treatment for Gleeson 4 +3, PSA 7.1 I learned something new. When I asked...
Support Group: Prostate Cancer
Last active: Jul 30 9:03am
Husband not responding to ADT
My husband was diagnosed with aggressive and advanced prostate cancer in spring 2022. Started Orgovyx in July 2022, and did 25 radiation treatments. At appointment...
Support Group: Prostate Cancer
Last active: Jul 3, 2023
PC journey
: In July 2024, I was diagnosed with aggressive prostate cancer after experiencing leg pain, weight loss, nocturia, and a PSA of 62. A biopsy...
Support Group: Prostate Cancer
Last active: May 28 6:18am
PSA question
So, I began ADT (Eligard injection) 9 weeks ago. At the 6 week mark my PSA dropped from 12 to 0.6. I liked that. Yesterday...
Support Group: Prostate Cancer
Last active: May 22 5:56pm
Anyone here after ADT undergone TRT
I had SBRT radiation treatment and stopped Orgovyx after 12 months. After 2 1/2 months my T went up to 65 from a low of...
Support Group: Prostate Cancer
Last active: 6 days ago
Gleason 7 (4+3), ECE, PSA 3 – Considering IMRT + ADT vs. Surgery –
Hi everyone, I’ve recently been diagnosed with Gleason 4+3=7 prostate cancer, with extracapsular extension (ECE) and a PSA of 3 I'm 63 year of age....
Support Group: Prostate Cancer
Last active: Jul 31 1:03pm
How long after radiation treatment did you repeat the PSMA/PET?
How long after radiation treatment did you repeat the PSMA/PET? Does anyone know how long to wait for the PET after ADT?Thanks
Support Group: Prostate Cancer
Last active: Aug 9, 2024
Chemo, Lupron & Nubeqa (Triple treatment) Outcomes
I would appreciate hearing about anyone's experience on this triple therapy, in particular about: 1) How long have you/did you remain castrate resistant after the...
Support Group: Prostate Cancer
Last active: May 4 6:30pm
Estrogen patches: Anyone used an estrogen patch post-ADT? Helpful?
I just had my second post-ADT PSA test and it dropped from .08 to .04 so I am very happy about that as my primary...
Support Group: Prostate Cancer
Last active: Mar 19 11:12am