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Prostate Cancer Support Group

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Discussions (250)
PSA low: What should I expect with upcoming CT & bone scans?
I just got my psa test result back for today and I’m still undetectable < .02 since late Nov 2025 after prostatectomy, radiation and ADT...
Support Group: Prostate Cancer
Last active: Feb 20 6:48pm
RARP vs RT plus ADT for Gleason 8 with cribiform and high Decipher
I’m new to prostate cancer, having been diagnosed in December 2025 with Gleason 8 (4+4) with cribiform architecture, stage T1c, PSA 4.7, and Decipher score...
Support Group: Prostate Cancer
Last active: 1 day ago
How to decide what next for ADT?
My husband had a prostatectomy in 2016 when PSA was 22. Gleason score 7 (4+3). Cancer was autopsied as mildly aggressive. Residual afterwards was PSA...
Support Group: Prostate Cancer
Last active: Aug 4, 2024
Learned Something New Last Week
While meeting with my NP 3 months post IMRT and HDR treatment for Gleeson 4 +3, PSA 7.1 I learned something new. When I asked...
Support Group: Prostate Cancer
Last active: Jan 26 10:42am
Testosterone levels are rising after cessation of ADT
I am being treated for high risk prostate cancer . Completed radiation ,ADT AND Casadex for 2 years. I have NOT taken ADT or Casadex...
Support Group: Prostate Cancer
Last active: Sep 20, 2025
Treatment options: radiation without ADT?
Researching treatment options.79 yr old, sexually active, good healthGleason 4+3, PSA 12.91 (tripled within last yr), Testosterone 435, PSMA PetScan No metastases, Decipher .95Radiation oncologist...
Support Group: Prostate Cancer
Last active: Sep 11, 2025
Stopping Nubeqa and Orgovyx after 6 months
Diagnosed with stage 4 PC. Single 4+4 lesion on prostate, two others at 4+3. PET showed small spot on my pelvis and even smaller one...
Support Group: Prostate Cancer
Last active: Sep 5, 2025
ADT or SRT first after BCR
I had my RALP a year ago. So far using standard PSA tests my results were all less than 0.1, however if this changes for...
Support Group: Prostate Cancer
Last active: Oct 4, 2023
Salvage surgery or salvage radiation?
Hi, I am new to this group. I really need your inputs please. After 5 years of remission, my husband's prostate cancer is back. He...
Support Group: Prostate Cancer
Last active: Mar 16 7:55am
Pain and stiffness in hands after ADT?
I was on Eligard, Aberaterone, and Prednisone for two years and had two radiation treatments for oligometistatic prostate cancer. Stopped ADT in January of this...
Support Group: Prostate Cancer
Last active: Oct 4, 2025
Did anybody have adjuvant RT after RP ?
I am wondering if anybody had adjuvant RT after RP (radiation soon after RP with undetectable PSA ) ? If yes, how soon after RP...
Support Group: Prostate Cancer
Last active: Sep 28, 2025
Quick ADT Question
From your experience and understanding from your doctors, does the likelihood of castrate resistance increase the longer you're on ADT? If CR develops, what are...
Support Group: Prostate Cancer
Last active: Jun 18, 2025
Was Gleason 7 (3+4): How soon can one get off ADT (Orgovyx or Lupron)?
I have just completed my 5th and last SBRT treatment today. 40 Gy (5 times 800 cGy). My PSA test will be in mid-July. My...
Support Group: Prostate Cancer
Last active: Apr 22, 2025
Stopping ADT Scared and Anxiety Update
I met with my urologist/surgeon this morning. We discussed both him and my oncologist recommending that I stop ADT (Orgovyx). Prostectomy+ Seminal vesticals+7 lymph nodes...
Support Group: Prostate Cancer
Last active: Oct 27, 2025
ADT, maybe not? Anyone opted out of ADT?
Has anyone opted out of ADT? I think its effects are possibly too much to sacrifice (at my age, or any age, maybe), but no...
Support Group: Prostate Cancer
Last active: Dec 20, 2025
3C, PPC 8/12, highest GG5; T1c N0 M0 - 5 SBRT sessions to Prostate?
Hi everyone, Thank you for all the valuable information. My husband has been staged as 3c because of the aggressive, cribriform patterned cells found in...
Support Group: Prostate Cancer
Last active: 1 day ago
Dr said Good news Bad news
Very quick history, 2009 October PSA 9 two biopsy's no cancer. 2009 December PSA 20. Biopsy Gleason 6 2010 January robotic surgery, upgrade to Gleason...
Support Group: Prostate Cancer
Last active: Feb 5 5:19pm
Going off ADT after 3 years: How did you do after ADT?
Been on Eligard for 3 years. History: Gleason 8, stage 3tb. Radiation and Zytiga, but had to stop Zytiga after 11 months due to heart...
Support Group: Prostate Cancer
Last active: Oct 21, 2025
Gleason 9: ADT before radiation
I have been on active surveillance since 2016. PSA jumped from 6 to 10 and biopsy Gleason 9. Doc ordered Luperon and radiation. Does it...
Support Group: Prostate Cancer
Last active: Jun 15, 2025
Questions about Prostate Screening EpiSwitch (PSE) testing
Pse testing appears to be a tool to validate or debunk psa numbers. I had psa 18 Gleason 9 grade 5. Had surgery and psa...
Support Group: Prostate Cancer
Last active: Mar 20, 2025