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Prostate Cancer Support Group

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Discussions (470)
Experiences with Mayo Proton, the Hitachi IMPT system, side effects?
For 2.5 years I was fine on AS with a 3+3 lesion, this year issues have surfaced. Just some of my basic info, I have...
Support Group: Prostate Cancer
Last active: Jul 30, 2023
Frequent and urine burning
I had been diagnosed with prostate cancer on 4th Jan. 2022with Gleason score 8 ( locally prostate cancer, stage cT2cN0M0). Treatment was ADT Triptorelin 11.25...
Support Group: Prostate Cancer
Last active: Jul 10, 2023
Additional prostate cancer-related tests/scans
Another anniversary —> After spending almost 9 years on active surveillance, 4 years ago today (4/19/2021), I started 28 sessions of proton beam radiation (+...
Support Group: Prostate Cancer
Last active: Apr 20, 2025
How does the treatment team come together?
I have submitted my reports scan etc to Mayo clinical team in Jax. I’m waiting to hear back from them. Will they review everything and...
Support Group: Prostate Cancer
Last active: Feb 24, 2025
Dr said Good news Bad news
Very quick history, 2009 October PSA 9 two biopsy's no cancer. 2009 December PSA 20. Biopsy Gleason 6 2010 January robotic surgery, upgrade to Gleason...
Support Group: Prostate Cancer
Last active: Feb 5 5:19pm
Anyone received salvage lymph node removal for BCR after prostatectomy
After experiencing biochemical recurrence after robotic prostatectomy (4 years ago) current PSA 0.25 my social health care was scheduling me for 25 sessions RT with...
Support Group: Prostate Cancer
Last active: Apr 17, 2023
MRI-linac question about BCR
I am aware of the mirage trial and the decreased side effect profile with sbrt mri-linac. I am wondering what are the numbers for biochemical...
Support Group: Prostate Cancer
Last active: May 25, 2025
BCR after 5 years Prostatectomy now questions about SRT
This forum has been very helpful. I just discovered I have BCR after 5 years no levels of PSA tests. Had the Prostatectomy with little...
Support Group: Prostate Cancer
Last active: May 27, 2025
How accurate are the PSA Tests?
I posted earlier that after 2+ years post surgery, my PSA had been undetectable < .006 on all my tests. Then my test 2 weeks...
Support Group: Prostate Cancer
Last active: Sep 27, 2023
Orgovyx & Gynecomastia
Hey, I'm 56, in really good health and will start a 6-month treatment of ADT with Orgovyx. Brachytherapy and Targeted radiation is scheduled for mid...
Support Group: Prostate Cancer
Last active: Aug 14, 2025
In praise of Orgovyx
I'm hardly an old vet here (my stage-4 prostate cancer was diagnosed just 3 years ago), but I've seen big changes in treatment even over...
Support Group: Prostate Cancer
Last active: Dec 20, 2025
ED after prostatectomy? Any first hand experiences overcoming it?
I originally had brachytherapy in 2020. I chose that so I could continue my active sex life with my wife. The cancer responded favorably and...
Support Group: Prostate Cancer
Last active: Dec 7, 2024
Are extreme PSA bounces after radiation due to cancer or inflammation?
I have posted once previously about post radiation ( Proton ) bounces. I started treatment about 1 year ago. PSA went in 3 month increments...
Support Group: Prostate Cancer
Last active: Jan 29 3:33pm
Prednisone tapering
I finished ADT on 12/21 and I’m having a difficult time tapering off of the prednisone I was given along side the Zytiga along with...
Support Group: Prostate Cancer
Last active: Feb 17, 2025
Typical Treatment Option Question
My recent biopsy revealed Gleason 9. No lymph node involvement or bone. CT scan was clear for chest, abdomen, and pelvis. No PSMA done. There...
Support Group: Prostate Cancer
Last active: Feb 17, 2025
Surf is UP !!!! @@
So- here we go ! 😣 The time has FINALLY come, but at the same time "suddenly” ... This Tuesday (tomorrow) my husband is having...
Support Group: Prostate Cancer
Last active: Mar 17 4:02pm
Why is volume of the cancer not used?
Compare two situations: * One has a 3+4 lesion at 2.1 cc of total volume, the 4 at 49% and the 3 at 51%. So...
Support Group: Prostate Cancer
Last active: Sep 22, 2023
Lupron and Medicare Part D
Hello Hopefully someone can steer me to an archived thread, or to some other resources. I'm 64 and 4 months old, so I'm starting to...
Support Group: Prostate Cancer
Last active: Jul 18, 2024
Early mortality risk disclosures
This is from the Ancan.org weekly advanced prostate cancer newsletter, written by Rick Davis. It discusses how having your PSA rise, early after treatment, can...
Support Group: Prostate Cancer
Last active: Jun 29, 2025
Side effects and PSA after photon radiation.
I would like to hear from people that have had photon radiation similar to me, total 7000 Cgy dosed at 28 sessions of 250 Cgy....
Support Group: Prostate Cancer
Last active: Oct 6, 2025