Connect
Public Support Group 2,243 total results
Discussions (181)
PC Journey Info
PC in family history, monitoring PSAs since 2005. Results jumping around 2014-2024 based on medications, injuries, etc... March 2025 off ALL meds prior to testing....
Is a PSMA-PET scan of value if you have already started ADT treatment?
An acquaintance had a RP in mid July and while the pathology report had some positives his Gleason score increased from a 7 to an...
urologist and radiation oncologist aren't on the same page
https://connect.mayoclinic.org/discussion/urologist-and-radiation-oncologist-arent-on-the-same-page/
Urologist: There's a bit of cancer still there in the prostate, but all I need to do is to stay on ADT for the rest...
Quick ADT Question
From your experience and understanding from your doctors, does the likelihood of castrate resistance increase the longer you're on ADT? If CR develops, what are...
Stopping ADT Scared and Anxiety Update
I met with my urologist/surgeon this morning. We discussed both him and my oncologist recommending that I stop ADT (Orgovyx). Prostectomy+ Seminal vesticals+7 lymph nodes...
Zytiga being prescribed following EBRT with PSA at 0.08
My fact set: Family history of prostate cancer. In 2024 my PSA drifted up to 10.92. January '25 biopsy: cores with Gleason scores of 4+3=7;...
How to decide what next for ADT?
My husband had a prostatectomy in 2016 when PSA was 22. Gleason score 7 (4+3). Cancer was autopsied as mildly aggressive. Residual afterwards was PSA...
With regional lymph node metastasis what is the progression?
From the following summary what should I expect going forward other than Androgen Deprivation Therapy (ADT)? SUMMARY 2020-06 Prostatectomy Pathology: Gleason 4+3 T3 Positive surgical...
Gay Men with Prostate Cancer
So I am just beginning my management of the reality of PC. After 3.5 years on AS my PSA jumped to 15.1 and my Gleason...
Testosterone levels are rising after cessation of ADT
I am being treated for high risk prostate cancer . Completed radiation ,ADT AND Casadex for 2 years. I have NOT taken ADT or Casadex...
ADT and Castrate Resistance
Diagnosed Nov 2021. Gleason 9, Decipher .99, stage 4a (spread to seminal vesticles and 1 of 12 lymph nodes tested). I had prostatectomy in January...
ADT or SRT first after BCR
I had my RALP a year ago. So far using standard PSA tests my results were all less than 0.1, however if this changes for...
Can Prostate Cancer "Take a New Trajectory"?
Hello, forum friends. I know y'all are not doctors but I've been on this forum long enough to appreciate your knowledge gained from your experiences....
A PSA question
I started Eligard in March this year (2025). PSA dropped from 10 to 0.6 a month later. Then in May it crept up to 0.7....
Was Gleason 7 (3+4): How soon can one get off ADT (Orgovyx or Lupron)?
I have just completed my 5th and last SBRT treatment today. 40 Gy (5 times 800 cGy). My PSA test will be in mid-July. My...
Husband’s low psa, aggressive Gleason 8
I’ve been reading along here for a while. Many knowledgeable people! My husband (just turned 60) was diagnosed Jan Gleason 8, pni, large tumor volume,...
My ADT Story, Feedback Appreciated
New here. First post. I was diagnosed in Nov 2021. Gleason 9 and Decipher score also very high. Had surgery/prostate removed in Jan 2022. Had...
Gleason 9: ADT before radiation
I have been on active surveillance since 2016. PSA jumped from 6 to 10 and biopsy Gleason 9. Doc ordered Luperon and radiation. Does it...
ADT/ARI treatment - 1 month in
mCSPC - Gleason 9 (5+4) - lymph and bone metastasis. Treatment plan is ADT/ARI (Orgovyx/Nubequa) for 3-4 months then IMRT x 20. First blood work...
Questions about Prostate Screening EpiSwitch (PSE) testing
Pse testing appears to be a tool to validate or debunk psa numbers. I had psa 18 Gleason 9 grade 5. Had surgery and psa...
Connect