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Prostate Cancer Support Group

Public Support Group
1,965 total results
Discussions (155)
My ADT Story, Feedback Appreciated
New here. First post. I was diagnosed in Nov 2021. Gleason 9 and Decipher score also very high. Had surgery/prostate removed in Jan 2022. Had...
Support Group: Prostate Cancer
Last active: Jun 19 9:41am
Was Gleason 7 (3+4): How soon can one get off ADT (Orgovyx or Lupron)?
I have just completed my 5th and last SBRT treatment today. 40 Gy (5 times 800 cGy). My PSA test will be in mid-July. My...
Support Group: Prostate Cancer
Last active: Apr 22 9:50am
How to decide what next for ADT?
My husband had a prostatectomy in 2016 when PSA was 22. Gleason score 7 (4+3). Cancer was autopsied as mildly aggressive. Residual afterwards was PSA...
Support Group: Prostate Cancer
Last active: Aug 4, 2024
Bad news again (still)
Perhaps you read my story, perhaps not. Gleason 8, spread to bladder neck 55 years old. Prostatectomy with bladder lesion cut out. Recurrence after a...
Support Group: Prostate Cancer
Last active: Jun 4 9:32am
Treatment options: radiation without ADT?
Researching treatment options.79 yr old, sexually active, good healthGleason 4+3, PSA 12.91 (tripled within last yr), Testosterone 435, PSMA PetScan No metastases, Decipher .95Radiation oncologist...
Support Group: Prostate Cancer
Last active: Jul 28, 2024
Testosterone levels are rising after cessation of ADT
I am being treated for high risk prostate cancer . Completed radiation ,ADT AND Casadex for 2 years. I have NOT taken ADT or Casadex...
Support Group: Prostate Cancer
Last active: Aug 1, 2024
ADT or SRT first after BCR
I had my RALP a year ago. So far using standard PSA tests my results were all less than 0.1, however if this changes for...
Support Group: Prostate Cancer
Last active: Oct 4, 2023
1st PSA test seven weeks after surgery
Hi All, this morning I did my first PSA test after prostatectomy. I had positive margins and will be doing ADT and radiation soon, but...
Support Group: Prostate Cancer
Last active: 13 hours ago
SBRT Monotherapy (No ADT)
I am specifically interested in replies from those who were (a) younger than 70 when they had their SBRT 5-fraction/high dose before 2018, and (b)...
Support Group: Prostate Cancer
Last active: Jun 2 12:30pm
Gleason 9 SO wants me to stop ADT @6 Mos for look see
My SO wants to stop ADT after 6 months and wait 2 months then test to see if PSA rises? Does this make sense? Just...
Support Group: Prostate Cancer
Last active: Jun 11 11:11am
ADT/ARI treatment - 1 month in
mCSPC - Gleason 9 (5+4) - lymph and bone metastasis. Treatment plan is ADT/ARI (Orgovyx/Nubequa) for 3-4 months then IMRT x 20. First blood work...
Support Group: Prostate Cancer
Last active: 2 days ago
Gleason 9: ADT before radiation
I have been on active surveillance since 2016. PSA jumped from 6 to 10 and biopsy Gleason 9. Doc ordered Luperon and radiation. Does it...
Support Group: Prostate Cancer
Last active: Jun 15 9:15pm
Is anyone else oligometastatic with low PSA, post surgery?
I have a decision to make. Last PSA was 0.145, had a second PSMA PET that shows 2 small bone lesions, scapula and hip. 56...
Support Group: Prostate Cancer
Last active: May 7 12:25pm
Recent PSA testing
My PSA has recently gone from 4 or 5 months at .04 A new test showed an uptick of .07 Still feel good Probably bc...
Support Group: Prostate Cancer
Last active: Apr 28 3:19pm
Questions about Prostate Screening EpiSwitch (PSE) testing
Pse testing appears to be a tool to validate or debunk psa numbers. I had psa 18 Gleason 9 grade 5. Had surgery and psa...
Support Group: Prostate Cancer
Last active: Mar 20 7:16am
PSA up at the 3 month point. Looking for guidance
Ok. So trying to get my brain wrapped around expectations for my Dr appt on Tuesday 12/17.I’d like to hear from people who had radiation...
Support Group: Prostate Cancer
Last active: Dec 17, 2024
Considering stopping Eligard after first injection and radiation.
My special friend is considering stopping ADT after the first injection (6 months) and radiation treatment. Has anyone made this decision, and what are the...
Support Group: Prostate Cancer
Last active: Apr 14, 2024
SBRT on T8 Only vs Lower Dose Pluvicto and ADT
I am a Care Partner for husband whom has Aphasia from 2 stroke 14 years ago. He is past the Medicare full retirement age. Diagnosed...
Support Group: Prostate Cancer
Last active: Apr 25 6:20am
ADT first then Radiation? Or Surgery?
I've been going through all the test's, MRI, Bone Scan (Neg), biopsy, Gleason grade group, 1,2, and 3. even just had PSMA / PET scan....
Support Group: Prostate Cancer
Last active: Jun 13 4:05pm
Early mortality risk disclosures
This is from the Ancan.org weekly advanced prostate cancer newsletter, written by Rick Davis. It discusses how having your PSA rise, early after treatment, can...
Support Group: Prostate Cancer
Last active: Jun 29 4:46pm