Support Groups

Prostate Cancer Support Group

Public Support Group
655 total results
Discussions (46)
Frequent and urine burning
I had been diagnosed with prostate cancer on 4th Jan. 2022with Gleason score 8 ( locally prostate cancer, stage cT2cN0M0). Treatment was ADT Triptorelin 11.25...
Support Group: Prostate Cancer
Last active: Jul 10, 2023
Side effects of radiation with hormone therapy & heart conditions
Am about to start radiation (Conebeam) therapy along with ADT therapy. ..Zytiga and Lupron (Eligard). Drs prescribed 40 sessions of radiation and at least 2...
Support Group: Prostate Cancer
Last active: Sep 23 1:01pm
High Luteinizing Hormone, Normal Testosterone after ADT
A year ago was my last Lupron/Eligard shot after 24 months. Three months ago I had my testosterone level checked, which had come back to...
Support Group: Prostate Cancer
Last active: Feb 23, 2022
Clinical stuldy ADT Relugolix plus Apalutamide
Is anyone here familiar with this study? Title of Research Study: NU MSK18U09: Metacure: Multi-arm Multi-modality Therapy for Very High Risk Localized and Low Volume...
Support Group: Prostate Cancer
Last active: Feb 25, 2023
ADT. Afraid of it
I’m 4+ 3 Gleason in one core. But recent mri shows tumor growth. New biopsy coming. They want to add ADY and I’m scared to...
Support Group: Prostate Cancer
Last active: Aug 15 4:46pm
Is ED after radiation without ADT permanent?
I was watching Dr Scholz (PCRI) speak about RT and he briefly mentioned that men who experienced ED up to 2 years after treatment, would...
Support Group: Prostate Cancer
Last active: Jul 22, 2023
RALP in Colorado Springs
Anyone have experience with UC health Urologists. Gleason 8 PSA 4.5 PET PSMA and bone scan shows no spread. 6 of 13 cores had cancer,...
Support Group: Prostate Cancer
Last active: May 18 7:17am
Ablation Therapy - Does It Lead To Metastases?
In trying to research ablation therapies such as TULSA-PRO, at least one source suggests that ablation leads to circulating tumor cells, which tend to establish...
Support Group: Prostate Cancer
Last active: Oct 15, 2022
I need advice to help make a decision.......
Just to set the background: RARP on September 16. Cancer was intraductal and they found at least 1 lymph node with PC in it. My...
Support Group: Prostate Cancer
Last active: Dec 3 10:37am
One month of Orgovyx completed
Just a quick update for those Brothers on, or considering ADT with, Orgovyx. Today I started the second month of my 6 month sentence. As...
Support Group: Prostate Cancer
Last active: Sep 13 7:10am
Total inability to have an orgasm post radiation
Since finishing radiation treatment two months ago, I've been completely unable to have an orgasm. I'm on Orgovyx for 2 more months, but still have...
Support Group: Prostate Cancer
Last active: Aug 28 10:26am
Onward with durable remission
I add bits of pieces of my story to various posts, but I'm organizing my story and figured this would be a good opportunity to...
Support Group: Prostate Cancer
Last active: Oct 13 2:43pm
In the home stretch
I am down to my final 56 days of ADT (hopefully forever but we'll see) after finishing SBRT in June. I REALLY want to thank...
Support Group: Prostate Cancer
Last active: Sep 1 11:06am
ED meds and side effects
My husband is getting brachytherapy in September and then IG IMRT in October. He is currently on Orgovyx for month two and will be adding...
Support Group: Prostate Cancer
Last active: Jul 16 8:52am
Experiences with Mayo Proton, the Hitachi IMPT system, side effects?
For 2.5 years I was fine on AS with a 3+3 lesion, this year issues have surfaced. Just some of my basic info, I have...
Support Group: Prostate Cancer
Last active: Jul 30, 2023
Reversal of penile shortening after stopping Lupron
I am a 71 yo diagnosed with Gleason 9 PC in August2021. Had RP 10/21. Six months post op PSA rose to 0.37 and a...
Support Group: Prostate Cancer
Last active: Jul 23 10:23am
Acceptance of Prostate Cancer and its side effects
These discussions are mostly devoted to the nuts and bolts of prostate cancer diagnosis and treatment, and rightly so. Those discussions are immensely helpful to...
Support Group: Prostate Cancer
Last active: Dec 3 9:23pm
RT + 3 years ADT + 2 years Zytiga initial treatment?
Is anyone here being treated for non-metastatic disease with 3 years ADT + 2 years abiraterone (e.g. Zytiga) as a first Hormone treatment? I'd be...
Support Group: Prostate Cancer
Last active: Sep 23 1:35pm
CT scan before radiation
Dr ordered a CT scan prior to Brachytherapy and IGMRT radiation. My partner has been on ADT meds for 3 months. Wanted to know how...
Support Group: Prostate Cancer
Last active: Aug 31 8:03am
Have you stopped then restarted taking Orgovyx? If so how was it.
I have an aggressive type of Prostate cancer. Over the past 36 months I have had RRP (post surgery PSA 0.37) then followed 6 months...
Support Group: Prostate Cancer
Last active: Jan 16 12:06pm