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Prostate Cancer Support Group

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Discussions (323)
Anyone have issues with vacuum devises post prostatectomy?
Hello all, Hope all are having good day. I have been using a medical grade electric vacuum device and having some challenges. My surgery was...
Support Group: Prostate Cancer
Last active: Jun 16, 2024
Prostate Cancer Working Group 4 - New Terminology and Definitions
Those who know me, know I talk about learning the language, terms, definitions, so that you can speak the language and have graduate level discussions...
Support Group: Prostate Cancer
Last active: May 8 7:24am
A Quandry between two medical recommendations for mPCa to lung only
History is in profile and I have asked a few questions here already. The gist is we went to a large research center and got...
Support Group: Prostate Cancer
Last active: Aug 9, 2025
Conflicting options - should I get a third?
Hi Everyone, I was recently diagnosed with prostate cancer. I’ve received conflicting advice from my urologist and a medical oncologist I saw for a second...
Support Group: Prostate Cancer
Last active: Jun 28, 2025
Day Two of radiation treatment. Questions about diet, gas, exercise.
Hello again all. Multiple posts here from diagnosis to now. 53, Gleason 7, 3+4, PSA 8.7, Intermediate risk w/ 9 of 17 cores cancerous. Ended...
Support Group: Prostate Cancer
Last active: Oct 9, 2024
How low vitamin D causes a high PSA
I tell everyone to sign up with ancan.org for their advanced prostate cancer meetings. You don’t even need to go to a meeting, but you...
Support Group: Prostate Cancer
Last active: Apr 16 9:24am
Gleason 7 (4+3), ECE, PSA 3 – Considering IMRT + ADT vs. Surgery –
Hi everyone, I’ve recently been diagnosed with Gleason 4+3=7 prostate cancer, with extracapsular extension (ECE) and a PSA of 3 I'm 63 year of age....
Support Group: Prostate Cancer
Last active: Jul 31, 2025
Night/Early-morning "anxiety" caused by need to urinate
I am a post-RP patient (April 2025). I've never had difficulty sleeping, and no issues sleeping through the night. However, in these post-op days, I...
Support Group: Prostate Cancer
Last active: Oct 4, 2025
PSMA scan report is in : (((
Ok .... First I want to say that PSMA obviously works at very low PSA, at lest worked for us at 0.14. Tracer used was...
Support Group: Prostate Cancer
Last active: Jun 10 1:51pm
Living with metastic prostate cancer: Any positive stories to share?
Diagnosed with metastic prostrate cancer Nov17,2022, the cancer had already spread to my pelvic bone, lymph nodes , thoracic spine and throughout my bones fracturing...
Support Group: Prostate Cancer
Last active: Feb 22, 2025
Post-treatment testosterone
I was G7 (4+3) and treated two years ago with five sessions of SBRT, two months of doublet therapy and then four months of Orgovyx...
Support Group: Prostate Cancer
Last active: May 11 11:37am
I now will need to decide on SBRT or Brachytherapy
My original post is here: https://connect.mayoclinic.org/discussion/received-the-news-on-halloween-i-have-prostate-cancer-need-advice/?pg=3 To do a quick summary: I was diagnosed with 2 cores of Gleason 6, 1 core of Gleason 3+4=7...
Support Group: Prostate Cancer
Last active: Jan 18 4:06pm
Alternate ADT drug shaking things up: Estrogen?
At my latest appointment with the oncologist who is managing my care during my 2 year ADT sentence, he said the prostate cancer specialists at...
Support Group: Prostate Cancer
Last active: Jan 4 3:38pm
Beware the siren song of the greedy urologist.
For me, it took a while to get up to speed on everything prostate cancer. Just before the pandemic my PSA was rising and once...
Support Group: Prostate Cancer
Last active: Mar 5, 2024
TULSA PRO Results at 3 plus years - Treated for High Grade Gleason 8
In February of 2023, I was diagnosed with prostate cancer. Of my 12 core biopsy, 5 came back with cancer. I had 1 Gleason 6,...
Support Group: Prostate Cancer
Last active: Apr 14 8:55pm
Type 2 Diabetes, Jardiance, Boxer briefs, and Shields = Infection
As a post-prostatectomy, Type II Diabetic, I have had an unexpected negative outcome to improving my urinary continence, that I wonder if anyone else who...
Support Group: Prostate Cancer
Last active: Jan 3 9:25pm
Yes - It Is Okay To Whine
In some of the recent comments that have been posted, I have detected a certain amount of snark. I like it. There is much that...
Support Group: Prostate Cancer
Last active: Jun 2, 2025
Why I am glad I chose Proton Therapy (for now). Good, bad and ugly.
My Treatment Decision Journey – Surgery vs Radiation (Proton Therapy Experience) Making the decision about which prostate cancer treatment to pursue was agonizing. When I...
Support Group: Prostate Cancer
Last active: Jan 21 11:47am
Ready to throw in the towel
I'm 60 and was diagnosed as Gleason 7, T2B. Was given Lupron, 5 sessions of SBRT and they want me to continue Lupron for a...
Support Group: Prostate Cancer
Last active: Dec 5, 2024
I Am Not a Medical Professional, Which Puts Me in Excellent Company
Observations from the trenches of prostate cancer, marriage, and the occasional bewildered goldfish Let me be perfectly clear: I am not a medical professional. I...
Support Group: Prostate Cancer
Last active: Apr 30, 2025