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Prostate Cancer Support Group

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PC Journey Info
PC in family history, monitoring PSAs since 2005. Results jumping around 2014-2024 based on medications, injuries, etc... March 2025 off ALL meds prior to testing....
Support Group: Prostate Cancer
Last active: Aug 13, 2025
ADT: RO says I need ADT, Urologist says I don't.
Of course I would like to avoid the side effects of ADT, but I'm willing to do the six months suggested by my RO if...
Support Group: Prostate Cancer
Last active: Nov 9, 2025
Uncommon metastic finding?Anyone have a similar biopsy & PET scan?
Healthy 60 yr old. PSMA Pet Scan just came back with "Pylarify activity in the prostate gland, mostly in the right base peripheral zone. Mildly...
Support Group: Prostate Cancer
Last active: Jan 29, 2024
Recent Diagnosis; Looking into Treatment Options and Experiences
My husband was just diagnosed with prostate cancer. He had an MRI that was clear. PSA was still high so they recommended biopsy. The biopsy...
Support Group: Prostate Cancer
Last active: Nov 17, 2025
How to release flatulence without releasing urine?
First of all, I want to say thank you to Mayo Clinic for this forum and all the members of this forum that provide valuable...
Support Group: Prostate Cancer
Last active: May 6, 2024
What's your experience with Orgovyx (relugolix)?
Mods, if you think this redundant, please move or remove. I thought it might be helpful to have an orgovyx thread similar to the lupron...
Support Group: Prostate Cancer
Last active: Mar 17 5:59pm
MA-RARP (Modified Anterior Robot-Assisted Radical Prostatectomy)
Hello Everyone. I was diagnosed with prostate cancer on 3/12/2026. I have intermediate grade prostate cancer, PSA= 12.9, stage T3a, Gleason Score 3+4=7, Extracapsular Extension...
Support Group: Prostate Cancer
Last active: May 20 7:01am
Resolution of Side Effects after Stopping ADT/Lupron
Hello everyone. I am 70 years old and was diagnosed with PC about 2 and a half years ago, G9 with extra capsular extension but...
Support Group: Prostate Cancer
Last active: Apr 1, 2025
Gleason 3+4 A.S. or treatment?
First off, thanks to everyone who participates in this forum. PC is a journey that is different for all of us. Information exchange is really...
Support Group: Prostate Cancer
Last active: Jan 13 12:14pm
Post Prostatectomy Two Week Progress
PART 1First of all, I'd like to convey my sincere and heartfelt thanks to all of you on this forum for helping me come to...
Support Group: Prostate Cancer
Last active: Feb 27 3:30pm
Biopsy results benign. PSA is elevated. What is the next step?
I posted earlier though I can't find my thread. Here is my data: "I was tested with PSA 5.3 on November 2023, and 3T MRI...
Support Group: Prostate Cancer
Last active: Mar 1, 2024
first PSA result post salvage RT — 0.086
Late last year I underwent 38 sessions of salvage IMRT for a local recurrence. At the start of radiation treatments, my PSA was 0.094 (ultra...
Support Group: Prostate Cancer
Last active: Feb 15 6:22pm
How do I request a VA referral to Mayo Clinic, Jacksonville?
I'm a 59-year-old Army veteran recently diagnosed with prostate cancer at the VA hospital in Augusta, GA. My PSA levels rose rapidly from 3.72 to...
Support Group: Prostate Cancer
Last active: Feb 11, 2025
What to do? Post RP, Gleason 9, Prostate ductal adenocarcinoma
Hi, I am posting on behalf of my partner who is the one that is experiencing all of this. I will preface this post by...
Support Group: Prostate Cancer
Last active: Nov 8, 2025
41-days of salvage RT - your experience with side effects?
Hello, First time post, but second go ‘round with prostate cancer. Let me start with my request to the group, then I’ll summarize my history.I...
Support Group: Prostate Cancer
Last active: Aug 4, 2025
So hard to study focal therapy
Right now it is super hard to find a doctor willing to do focal therapy, or information about it, or almost anything really. There seems...
Support Group: Prostate Cancer
Last active: Oct 21, 2024
Edema/Pleural Effusion, rare but known Side Effect from Docetaxel
Apparently, edema is a less common, but known, side effect from Docetaxel, especially cumulatively - this was our experience. After round #4., during the heat,...
Support Group: Prostate Cancer
Last active: Sep 15, 2025
Gleason 3+3 to Gleason 4+5 in 7 months.
Hello The lesion sample from the 3/2024 mpMRI fused biopsy was read as Gleason 3+3. After detailed option discussions, both the urology surgeon and radiation...
Support Group: Prostate Cancer
Last active: Jan 7, 2025
How long after EBRT does the PSA bounce around?
Hello from Vancouver Island. I had a prostatectomy about three years ago and the PSA went down from 4.0 to about 0.03 after surgery. Within...
Support Group: Prostate Cancer
Last active: Dec 16, 2023
Treatment options for locally advanced prostate cancer?
I have recently been diagnosed with locally advanced prostate cancer in December 2023. I had an MRI that diagnosed my PC with a Gleason 9...
Support Group: Prostate Cancer
Last active: Mar 13 4:43pm