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Prostate Cancer Support Group

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Discussions (376)
Effects of Proton Therapy Without SpaceOAR
I have a gleason of 7 (4+3) with an adjusted PSA of 15 (doubled 7.5 due to longtime finasteride use) and an MRI showing extraprostatic...
Support Group: Prostate Cancer
Last active: May 21, 2022
Stop zytiga/prednisone at 24 months required?
I am 77 yrs old. Diagnosed with 3+4 Gleason, PSA = 12, which metastised to 3 pelvic nodes. Following 25 radiation treatments I have been...
Support Group: Prostate Cancer
Last active: Sep 18 10:20am
T3b L1 Gleason 9 Question
So newly diagnosed as a Gleason 9, and one of the lymph nodes they took out during my RALP tested positive as well. ADT and...
Support Group: Prostate Cancer
Last active: Feb 11 2:59pm
Cognitive Impairment Amongst Prostate Cancer patients.
Over the past year since my salvation radiation treatment, I have had a feeling that I was suffering from brain fog; a feeling that my...
Support Group: Prostate Cancer
Last active: Dec 28, 2023
Treating de-novo metastatic prostate cancer
This 2023 paper reviews recent studies on the treatment of de-novo metastatic prostate cancer — cancer that had already metastasised when first discovered — and...
Support Group: Prostate Cancer
Last active: Mar 21 6:23am
Urinary Retention after Biopsy and continuing
Was diagnosed with Geason Score 8 Regional spread to 1 lymph node and 1 seminal vessel, coupled with Enlarged Prostate. Needed a Foley catheter ever...
Support Group: Prostate Cancer
Last active: Jul 15, 2023
Can Prostate Cancer "Take a New Trajectory"?
Hello, forum friends. I know y'all are not doctors but I've been on this forum long enough to appreciate your knowledge gained from your experiences....
Support Group: Prostate Cancer
Last active: Aug 29 6:50am
Intermediate-Risk: Do You Need Hormone Therapy With Radiation + 80yrs.
Just been watching an interview on You Tube with Dr Mark Scholz of the Prostate Cancer Research Group ( LA ) where he questions the...
Support Group: Prostate Cancer
Last active: Jan 6 6:01pm
Is anyone else oligometastatic with low PSA, post surgery?
I have a decision to make. Last PSA was 0.145, had a second PSMA PET that shows 2 small bone lesions, scapula and hip. 56...
Support Group: Prostate Cancer
Last active: May 7 12:25pm
Questions about Prostate Screening EpiSwitch (PSE) testing
Pse testing appears to be a tool to validate or debunk psa numbers. I had psa 18 Gleason 9 grade 5. Had surgery and psa...
Support Group: Prostate Cancer
Last active: Mar 20 7:16am
Recurrence after brachytherapy - looking for the best option
Looks like prostate cancer recurrence is now suspected but not yet confirmed. My original diagnosis - G7 4+3 PSA7.6 in May 2019. Treated with low...
Support Group: Prostate Cancer
Last active: May 6 3:09pm
Hormone Treatment Experience
Had my first visit today at MD Anderson Proton Center and the Dr ordered AlteraAI to see if Hormone Therapy would help If so he...
Support Group: Prostate Cancer
Last active: Jul 22 4:03pm
Anyone else on Megace (Megestrol)?
I guess I'm just cranky and hard to please. I'm on ADT, so the Megace is to stop the hot flashes. It's working. But the...
Support Group: Prostate Cancer
Last active: Feb 22 10:39am
Zytiga being prescribed following EBRT with PSA at 0.08
My fact set: Family history of prostate cancer. In 2024 my PSA drifted up to 10.92. January '25 biopsy: cores with Gleason scores of 4+3=7;...
Support Group: Prostate Cancer
Last active: Aug 23 12:02pm
Got some answers for stage 4 prostate cancer
We had our first Urology Oncologist appointment today at UNC. Finally have a "plan" after the PSA test started it all 5 weeks ago! PSA...
Support Group: Prostate Cancer
Last active: May 8 6:21am
IMRT (Intensity-Modulated Radiation Therapy)
I haven’t read much about IMRT (Intensity-Modulated Radiation Therapy). In 1-2020, I was diagnosed with pc. Gleason score 7 (3+4) and psa of 8.7. Had...
Support Group: Prostate Cancer
Last active: Oct 15, 2020
How could they get my diagnosis so wrong.
August 8, 2022 diagnosed with Stage 4 metastatic PC. GS 8, Cancer spread to lymph nodes, seminal veseciles, and bone. After 8 months of ADT...
Support Group: Prostate Cancer
Last active: Sep 20, 2023
After Lupron Depot, which med?
I've been given Lupron depot at a 12-week dosage (22.5mg, into the butt), but still have significant side effects of over a dozen hot flashes...
Support Group: Prostate Cancer
Last active: Feb 11 7:50pm
41-days of salvage RT - your experience with side effects?
Hello, First time post, but second go ‘round with prostate cancer. Let me start with my request to the group, then I’ll summarize my history.I...
Support Group: Prostate Cancer
Last active: Aug 4 11:50am
Hot flushes and the vagus nerve
Has anyone had any luck using vagal maneuvers to manage hot flushes while on ADT? https://en.wikipedia.org/wiki/Vagal_maneuver The huge vagus nerve is involved when people go...
Support Group: Prostate Cancer
Last active: Sep 24, 2024