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Discussions (470)
Learned Something New Last Week
While meeting with my NP 3 months post IMRT and HDR treatment for Gleeson 4 +3, PSA 7.1 I learned something new. When I asked...
Rut Roh Rorge - PSA wrong direction
ADT / ARSI since June 2025 IMRT Oct 2025 PSA: 4/21/25 - 30.11 7/9/25 - 0.55 8/26/25 - 0.19 12/3/25 - 0.23 3/17/26 - 8.80...
PSA wrong direction after IMRT - What do you guys think?
ADT/ARSI (Orgovyx/Nubeqa) since 6/7/25. IMRT X 20 9/30/25- 10/27/25. Appointment coming up 12/10 for review w/ GUO doc. More history in profile if needed. PSA......
Information about applying for Social Security Disability Income
I was recently able to qualify for social security disability payments. I had a PET scan show metastasis on my hip. Metastatic PC falls under...
After insurance approval, how long did it take to receive Orgovyx?
After insurance approval, about how long did it take to receive Orgovyx? MO told us will come from a specialty pharmacy. Think it will be...
Prostate removed in 2008: What are treatments options for rising PSA?
Hello all, I had my Prostate removed 2008. Gleason 4+3 Age 60. Follow up PSA readings always low. I assumed they never got it all....
PET Scan Lighting-up 4 Months after Treatment
Hi, I had a Mayo PET scan in January 2023 that showed a lymph node lighting up. I then started 18 months of ADT and...
RALP in Colorado Springs
Anyone have experience with UC health Urologists. Gleason 8 PSA 4.5 PET PSMA and bone scan shows no spread. 6 of 13 cores had cancer,...
Energy Improvements After Resuming Testosterone Replacement Therapy?
For men who began receiving Testosterone Replacement Therapy (TRT) after successfully completing PCa treatment, how long did it take for post-ADT energy improvements to become...
PC journey
: In July 2024, I was diagnosed with aggressive prostate cancer after experiencing leg pain, weight loss, nocturia, and a PSA of 62. A biopsy...
Salvage radiation therapy with 6 months Eligard
I'm starting salvage radiation therapy with 6 month Eligard injection, My care provider is a bit vague about how long before starting radiotherapy I should...
How long after radiation treatment did you repeat the PSMA/PET?
How long after radiation treatment did you repeat the PSMA/PET? Does anyone know how long to wait for the PET after ADT?Thanks
After radiation: Any advice on next steps, what to expect next 12 mos?
I finished radiation treatment (45 low dose treatments over 9 weeks). ADT shot was in mid-June. Any advice on next steps, what to expect over...
Switching from Lupron to Orgovyx.
Doing 6 months ADT and considering switching from Lupron to Orgovyx for my second 3-month period. Have any of you done this? If so, I...
The Prostate Cancer Patient Empowerment Program (PC-PEP)
Hello everyone, I am 45yr old PCa, been on ADT since August 2025, and on 26Mar2026 i am scheduled for daVinci RARP. Few days ago...
Prostate cancer that has spread to several lymph nodes and bones
I am wondering about the treatment for prostate cancer that has spread to several lymph nodes and bones. Just curious if they will start me...
Urine leakage during sexual activity
I had RP in March 2022, BCR in Sept 2022 and 28 SBRT treatments in Jan-Feb 2023 with ADT. Now that the ADT has left...
Recent PSA testing
My PSA has recently gone from 4 or 5 months at .04 A new test showed an uptick of .07 Still feel good Probably bc...
Stage 4: What are my options?
The VA used the terms metastasized, incurable and palliative at my latest appointment with these notes after a "PET PSMA demonstrated a tiny 4 mm...
Nano Knife
Hello All, After fighting with the VA for three years ( 100% Disabled Desert Storm 20yrs 🇺🇸 ) I finally made it to Mayo Phoenix...
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