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Prostate Cancer Support Group

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Just finished the Metacure Trial
One week ago today I finish up with the 6 month Metacure trial. It was for men with aggressive Prostate cancer that had metastasis to...
Support Group: Prostate Cancer
Last active: Sep 4, 2023
3 negative PSMA PET scans with PSA doubling every 4 weeks
Prostatectomy 10 years ago, Gleason 4-3 with 1/3 bladder positive. PSA going up after 1 year then 39 radiation followed by Lupron then Eligard. Took...
Support Group: Prostate Cancer
Last active: Aug 25 11:58am
What was your highest PSA and still have a clear PET/CT scan?
I just got the results from my most recent PET/CT scan; "There is no abnormal PSMA uptake to indicate recurrence or metastatic disease anywhere despite...
Support Group: Prostate Cancer
Last active: Jul 26, 2024
Newly diagnosed stage 4, how long on ADT before adding ARSI?
My dad (83 and otherwise relatively healthy) was recently diagnosed with stage 4 prostate cancer that's spread to his bladder, urethrae, possibly rectum, pelvic lymph...
Support Group: Prostate Cancer
Last active: May 4 11:19am
Any Tips For Radiation Patients Who Suffer Constipation?
I am 73 and have had chronic constipation for a few years now. The Orgovyx I have been on for three months has made my...
Support Group: Prostate Cancer
Last active: Jan 17 6:39am
Recurrent Cancer - conflict with numbers and scans
Quick Background: I had a RP completed in September 2016. Undetectable PSA 2 years after, but started creeping up. Made a 2x jump in mid...
Support Group: Prostate Cancer
Last active: Jan 9 7:00pm
Post SBRT and ADT PSA Results
Quick update here, had labs today, see RO Wednesday. At diagnosis about a year ago, 68 year old, PSA 7.4, one 4+3, one 3+3, Decipher...
Support Group: Prostate Cancer
Last active: Oct 15, 2024
What should I do next?
Currently, I have been diagnosed with mastasic prostate cancer. I have been going for check ups every three months so I'm just confused on how...
Support Group: Prostate Cancer
Last active: Jan 1 7:37am
Post therapy Testosterone
I would be interested to hear about anyone’s experience concerning Testosterone therapy after Proton radiation and hormone pills. Earlier this year (2023) I had 29...
Support Group: Prostate Cancer
Last active: Aug 13, 2024
Any other methods Better than PSA to monitor prostate cancer?
I've attached my PSA scores since they started saving in EPIC in 2000. While you can seen a marked increase around 2017, my Family Medicine...
Support Group: Prostate Cancer
Last active: Feb 8 1:13pm
How to release flatulence without releasing urine?
First of all, I want to say thank you to Mayo Clinic for this forum and all the members of this forum that provide valuable...
Support Group: Prostate Cancer
Last active: May 6, 2024
My TRIMIX experience
I've been using Trimix for about six months with outstanding results. It did take some experimentation to figure out the best way to make it...
Support Group: Prostate Cancer
Last active: 5 days ago
Should I try using TRIMIX while on ADT?
ATTN MODERATOR: I’m aware that there is another post here related to TRIMIX. I’ve gone through it and could not find an answer that applies...
Support Group: Prostate Cancer
Last active: Sep 12 7:35am
Treatment options for locally advanced prostate cancer?
I have recently been diagnosed with locally advanced prostate cancer in December 2023. I had an MRI that diagnosed my PC with a Gleason 9...
Support Group: Prostate Cancer
Last active: Apr 6, 2024
Is treatment working?
orgovix 120 & zytiga 1000 but PSA went from 12 to 19 in 9 mo. now what?
Support Group: Prostate Cancer
Last active: Sep 13 11:38am
RT + 3 years ADT + 2 years Zytiga initial treatment?
Is anyone here being treated for non-metastatic disease with 3 years ADT + 2 years abiraterone (e.g. Zytiga) as a first Hormone treatment? I'd be...
Support Group: Prostate Cancer
Last active: Sep 23, 2024
Relief for hot flashes during the night
I found something that helps reduce the number of disruptive hot flashes that wake me up during the night and want to share it with...
Support Group: Prostate Cancer
Last active: May 27, 2024
Don’t know what I don’t know…diagnosed 5/13/25
First post here but, not after spending countless hours reading countless pages of this forum. First, let me say thank you to all who take...
Support Group: Prostate Cancer
Last active: Jun 9 6:52am
Zytiga and Lupron Shot
My 89-year-old father was on Orgovx but his PSA went up so they started him on 4 250mg per day along with a prednisone pill...
Support Group: Prostate Cancer
Last active: Jul 15 2:31pm
Further Treatment: Wondering about stopping hormone therapy?
I had a radical prostatectomy in 2015. PSA started to double every 4 weeks 4 months later. Then had 40 radiation sessions. PSA started doubling...
Support Group: Prostate Cancer
Last active: Jul 10, 2023