Prostate Cancer Support Group

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Comments (1,095)

I have been on first and second generation ADT for three months. The first month was...

https://connect.mayoclinic.org/comment/1112958/

Discussion: How to decide what next for ADT?

Support Group: Prostate Cancer

Posted: Jul 27 8:53pm

Ava, That Decipher score speaks volumes for the aggressiveness of your cancer. I am not an...

https://connect.mayoclinic.org/comment/1190130/

Discussion: Withdrawal from orgovyx: How long will fatigue and hot flashes last?

Support Group: Prostate Cancer

Posted: 4 days ago

Do you have any symptoms you can share re orgovyx?Why did you choose this instead of...

https://connect.mayoclinic.org/comment/886552/

Discussion: Need Radiotherapy guidance

Support Group: Prostate Cancer

Posted: Jun 28, 2023

I just met my Medical oncologist at UCI just 2 hours ago. My PSA was 0.06...

https://connect.mayoclinic.org/comment/1158189/

Discussion: In praise of Orgovyx

Support Group: Prostate Cancer

Posted: Oct 16 7:43pm

Had radiation treatment in 2009. Cancer back, considering Hormone Therapy called Orgovyx. Any info/feedback on this...

https://connect.mayoclinic.org/comment/817079/

Discussion: What's your experience with Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: Feb 25, 2023

I started mine 2 weeks before SBRT. Gleason 4+3, 6 months Orgovyx for my ADT

https://connect.mayoclinic.org/comment/1094672/

Discussion: When to start ADT treatment of 4+3 score?

Support Group: Prostate Cancer

Posted: Jun 26 2:03pm

In case there's any confusion, I have a single prescription for a year of Orgovyx, but...

https://connect.mayoclinic.org/comment/1146179/

Discussion: Testosterone: Is everyone's level in the low numbers?

Support Group: Prostate Cancer

Posted: Sep 23 1:38pm

Feel absolutely great!! The SBRT and Orgovyx was a piece of cake. I had it so...

https://connect.mayoclinic.org/comment/1097801/

Discussion: T and PSA levels 6 month post SBRT and 1 month post Orgovyx

Support Group: Prostate Cancer

Posted: Jul 2 7:57am

I am on week 11 of Orgovyx. You are correct in that the recovery once therapy...

https://connect.mayoclinic.org/comment/1014867/

Discussion: Radiation + ADT

Support Group: Prostate Cancer

Posted: Feb 13 7:45am

I am on orgovyx 15 months now. Psa fell to undetectable in 3wks or less. Also...

https://connect.mayoclinic.org/comment/1065882/

Discussion: Will Orgovyx (relugolix) Reduce Prostate Cancer without Radiation?

Support Group: Prostate Cancer

Posted: May 11 8:43am

First day of fall is officially tomorrow, the 22nd this year. The problem with getting a...

https://connect.mayoclinic.org/comment/1145169/

Discussion: Testosterone: Is everyone's level in the low numbers?

Support Group: Prostate Cancer

Posted: Sep 21 4:29pm

That is encouraging! I'm assuming that your ADT was/is ORGOVYX? How is it to have no...

https://connect.mayoclinic.org/comment/1097594/

Discussion: Can I Manage Testosterone w/ ORGOVYX and Skip Radiation?

Support Group: Prostate Cancer

Posted: Jul 1 4:39pm

I am also unfavorable intermediate with no metastases and my radiation oncologist recommended 4 months of...

https://connect.mayoclinic.org/comment/778509/

Discussion: Eligard - 1 mo. , 3 mo., 6 months: any difference in side effects?

Support Group: Prostate Cancer

Posted: Nov 28, 2022

I will be on Orgovyx 1 year the end of this August. I also had 45...

https://connect.mayoclinic.org/comment/901578/

Discussion: Orgovyx and Zytiga combined

Support Group: Prostate Cancer

Posted: Jul 24, 2023

I'm 76 and have been on Orgovyx for 9 months. I get the hot flashes and...

https://connect.mayoclinic.org/comment/1138850/

Discussion: Orgovyx extreme fatigue side effects

Support Group: Prostate Cancer

Posted: Sep 9 10:18am

So everyone on Medicare or Advantage plan is paying $8000 a yr to take Orgovyx? That's...

https://connect.mayoclinic.org/comment/1027407/

Discussion: What's your experience with Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: Mar 4 11:46am

Sorry I didn’t notice in your full explanation that you were on Orgovyx now. While you...

https://connect.mayoclinic.org/comment/1145561/

Discussion: RT + 3 years ADT + 2 years Zytiga initial treatment?

Support Group: Prostate Cancer

Posted: Sep 22 11:56am

Almost two months post-Orgovyx and my T is only back to 267 (started at 620). Is...

https://connect.mayoclinic.org/comment/1192557/

Discussion: Orgovyx and the timeline for return of normal testosterone level

Support Group: Prostate Cancer

Posted: 1 day ago

Was he on orgovyx or zytiga prior to surgery? I am on both and one if...

https://connect.mayoclinic.org/comment/930048/

Discussion: Ventricular tachycardia post surgery, anyone else have this happen?

Support Group: Prostate Cancer

Posted: Sep 14, 2023

I was turned down for Orgovyx and within 2 days got approval on an appeal. Nurse...

https://connect.mayoclinic.org/comment/1073791/

Discussion: Hot flashes, fatigue 4 months after radiation and Orgovyx

Support Group: Prostate Cancer

Posted: May 24 10:36am

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