Prostate Cancer Support Group

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Comments (1,588)

I have never regretted choosing Orgovyx over Lupron!

https://connect.mayoclinic.org/comment/1114189/

Discussion: Should you start ADT after radiation treatment or not?

Support Group: Prostate Cancer

Posted: Jul 29, 2024

Most days, walking is an effort from ORGOVYX related joint pain after only 45 days! Having...

https://connect.mayoclinic.org/comment/1124944/

Discussion: ADT/ ORGOVYX Day 45; Told Radiation Is Next

Support Group: Prostate Cancer

Posted: Aug 16, 2024

I was 52 when diagnosed with prostate cancer (Gleason Score 7, 3/4). I went with a...

https://connect.mayoclinic.org/comment/1247742/

Discussion: What is the average age of the gentlemen on here?

Support Group: Prostate Cancer

Posted: Mar 1 3:09am

Salvage treatment (tx) began in Feb 2023 with ADT Orgovyx thru June. 37 IMRT radiation txs...

https://connect.mayoclinic.org/comment/995469/

Discussion: 1 node positive with RP followed by BCR after 3years

Support Group: Prostate Cancer

Posted: Jan 11, 2024

Been on Orgovyx for 5 weeks. Mild afternoon fatigue and some Minor blood sugar issues No...

https://connect.mayoclinic.org/comment/1055196/

Discussion: Starting Orgovyx - any advice based on experience?

Support Group: Prostate Cancer

Posted: Apr 22, 2024

I am "only" on 6 months of Orgovyx. I am a small guy, 135 normally. Lost...

https://connect.mayoclinic.org/comment/1010562/

Discussion: ADT and weight loss?

Support Group: Prostate Cancer

Posted: Feb 6, 2024

With your testosterone that low fatigue is a major issue. The tiredness in your legs is...

https://connect.mayoclinic.org/comment/1152895/

Discussion: Leg Issues Long After Radiation and ADT

Support Group: Prostate Cancer

Posted: Oct 6, 2024

My experience stopping Orgovyx also involved getting snappy and impatient. I didn't get anxiety but, unfortunately,...

https://connect.mayoclinic.org/comment/1280091/

Discussion: Post-Orgovyx experience?

Support Group: Prostate Cancer

Posted: 4 days ago

Larry, I was on Orgovyx for 6 months only - no prednisone. I’ve been off of...

https://connect.mayoclinic.org/comment/1237993/

Discussion: Prednisone tapering

Support Group: Prostate Cancer

Posted: Feb 16 7:50am

Layperson reponse: Both injectable Eligard or oral Orgovyx are recommended therapies. Insurance coverage may be more...

https://connect.mayoclinic.org/comment/792388/

Discussion: What's your experience with Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: Jan 4, 2023

Increase in A1C is a common problem with ADT drugs like Orgovyx. Fasting blood sugar is...

https://connect.mayoclinic.org/comment/1223417/

Discussion: High fasting glucose of 115 after 7 mos on Orgovyx

Support Group: Prostate Cancer

Posted: Jan 27 8:45pm

Check those liver enzymes - mine went ballistic on Orgovyx. RO said absolutely no alcohol😫

https://connect.mayoclinic.org/comment/1255255/

Discussion: Is dizziness normal with Lupron?

Support Group: Prostate Cancer

Posted: Mar 11 7:17am

I've been off Orgovyx for 4 months now. Hoping mine will come back. Thanks for the...

https://connect.mayoclinic.org/comment/1221600/

Discussion: Have erection but can't have an orgasm

Support Group: Prostate Cancer

Posted: Jan 25 4:22pm

betterhealth2, you might start the Orgovyx and then you'll have two months to look carefully at...

https://connect.mayoclinic.org/comment/1257761/

Discussion: Diagnosis and treatment (proton beam therapy plus hormonal therapy)

Support Group: Prostate Cancer

Posted: Mar 14 10:41am

I had 5 photon SBRT treatments and 6 months Orgovyx. I was unfavorable intermediate with one...

https://connect.mayoclinic.org/comment/1037600/

Discussion: How Much Time Between Your Diagnosis to Your Start of Treatment?

Support Group: Prostate Cancer

Posted: Mar 21, 2024

Firmagon 2 years ago, Orgovyx currently, no kidney side effects.

https://connect.mayoclinic.org/comment/824371/

Discussion: ADT and effect on kidneys ?

Support Group: Prostate Cancer

Posted: Mar 11, 2023

@seasuite Re: Your post on Aug 15, 2024 about taking Orgovyx. I am encouraged by your...

https://connect.mayoclinic.org/comment/1268288/

Discussion: ADT. Afraid of it

Support Group: Prostate Cancer

Posted: Mar 27 9:09pm

Hello. I am wondering if you began the 2nd time on Orgovyx? I did the same...

https://connect.mayoclinic.org/comment/1153951/

Discussion: Anyone take a Treatment Holiday? Intermittent use of ADT (hormone Tx)

Support Group: Prostate Cancer

Posted: Oct 8, 2024

Jeb: On Orgovyx, I primarily had diminished energy; 10 - 20% "power outage". My 45 min...

https://connect.mayoclinic.org/comment/1271093/

Discussion: Salvage radiation therapy after radical prostatectomy

Support Group: Prostate Cancer

Posted: Mar 31 2:49pm

I went to see Dr. Mulhall in New York about this exact issue. I lost the...

https://connect.mayoclinic.org/comment/1221384/

Discussion: Have erection but can't have an orgasm

Support Group: Prostate Cancer

Posted: Jan 25 12:13pm

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