Prostate Cancer Support Group

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Comments (2,054)

I am not a doctor so I cannot advise you on what to do with your...

https://connect.mayoclinic.org/comment/1186422/

Discussion: Dr Mark Scholz/PCRI

Support Group: Prostate Cancer

Posted: Dec 7, 2024

I recently started Orgovyx. I was encouraged to take Calcium and Vitamin D. (I have read...

https://connect.mayoclinic.org/comment/1272605/

Discussion: Orgovyx as lifelong treatment

Support Group: Prostate Cancer

Posted: Apr 2 12:04pm

I recently completed Salvage treatment: 4 mos of ADT Orgovyx, together with 37 IMRT radiation treatments...

https://connect.mayoclinic.org/comment/919034/

Discussion: Gynecomastia while taking hormone therapy for prostate cancer

Support Group: Prostate Cancer

Posted: Aug 26, 2023

Yup, that fear and anxiety NEVER goes away even if it’s ZERO. I was on pins...

https://connect.mayoclinic.org/comment/1132070/

Discussion: Gleason7(3+4) - treatment options recommendation

Support Group: Prostate Cancer

Posted: Aug 28, 2024

I had an RP at ucla in 2014 Psa was 10 Gleason 3+4 Non muscle invasive...

https://connect.mayoclinic.org/comment/1119434/

Discussion: Surgery or Radiation for Intermediate Prostate Cancer?

Support Group: Prostate Cancer

Posted: Aug 7, 2024

I’ve had 4 scans The first 2 were $3000 Now most insurance companies including Medicare cover...

https://connect.mayoclinic.org/comment/1092334/

Discussion: Does a PMSA scan detect prostate cancer at the prostate bed?

Support Group: Prostate Cancer

Posted: Jun 23, 2024

Equally inquisitive about how this stage 4 goes foreword.Currently on xytiga/orgovyx only side effect is fatigue....

https://connect.mayoclinic.org/comment/918058/

Discussion: Metastic prostate Cancer Survivors - longevity and quality of life

Support Group: Prostate Cancer

Posted: Aug 24, 2023

My story is familiar to some on this forum. It is my experience, given the heterogeneity...

https://connect.mayoclinic.org/comment/1200932/

Discussion: Orgovyx Holiday

Support Group: Prostate Cancer

Posted: Dec 31, 2024

38 radiation treatments, 6 months on orgovyx ended Nov 30 and I am still having all...

https://connect.mayoclinic.org/comment/1201060/

Discussion: Orgovyx Holiday

Support Group: Prostate Cancer

Posted: Dec 31, 2024

I'm so sorry to hear that. Are you on an ARSI (like Erleada or Xtandi) in...

https://connect.mayoclinic.org/comment/1078611/

Discussion: 11 anniversaries since diagnosis of stage 4 prostate cancer

Support Group: Prostate Cancer

Posted: May 31, 2024

Was on orgovyx for 1 year and now have been off for about 2 months. My...

https://connect.mayoclinic.org/comment/1051993/

Discussion: Orgovyx done. What to expect?

Support Group: Prostate Cancer

Posted: Apr 16, 2024

I too like the idea of Proton treatment and wondering if you could tell me where...

https://connect.mayoclinic.org/comment/1030491/

Discussion: Choose between robotic surgery and proton therapy.

Support Group: Prostate Cancer

Posted: Mar 9, 2024

New video by Dr. Scholz discusses INTERMITTENT hormone therapy (ADT): https://www.youtube.com/watch?v=k92ETEqVYJ4 Until I watched this video,...

https://connect.mayoclinic.org/comment/1024364/

Discussion: What's your experience with Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: Feb 28, 2024

I know at least 5 people that come to weekly Ancan.org advanced prostate cancer online meetings...

https://connect.mayoclinic.org/comment/1169471/

Discussion: Anyone have Prostate Cancer Stage 4 with good results?

Support Group: Prostate Cancer

Posted: Nov 7, 2024

Who would be interesting to hear what happened in those intermittent Trials. I was in chat...

https://connect.mayoclinic.org/comment/1188188/

Discussion: Withdrawal from orgovyx: How long will fatigue and hot flashes last?

Support Group: Prostate Cancer

Posted: Dec 10, 2024

i was diagnosed with APC , high PSA, high gleason score, few spots in bones lit...

https://connect.mayoclinic.org/comment/1066740/

Discussion: What's your experience with Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: May 12, 2024

10+ yrs post rp Psa rise at 7 yrs Psma showed 3 pelvic nodes psa 3.6...

https://connect.mayoclinic.org/comment/1065289/

Discussion: What's your experience with Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: May 10, 2024

I’d be reluctant to take Orgovyx at night being concerned that any SEs could be pronounced...

https://connect.mayoclinic.org/comment/1056557/

Discussion: Orgovyx extreme fatigue side effects

Support Group: Prostate Cancer

Posted: Apr 24, 2024

Thanks! What has me scared based on what I read on the Orgovyx web site was...

https://connect.mayoclinic.org/comment/1192761/

Discussion: Orgovyx and the timeline for return of normal testosterone level

Support Group: Prostate Cancer

Posted: Dec 18, 2024

I was on Zytiga for several months when I noticed a shortness of breath. It started...

https://connect.mayoclinic.org/comment/1185287/

Discussion: Has anyone had to discontinue Zytiga due to side effects?

Support Group: Prostate Cancer

Posted: Dec 6, 2024

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