Prostate Cancer Support Group

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Thanks for the video link. My medical oncologist thinks 24-30 months will be the limit of...

https://connect.mayoclinic.org/comment/959317/

Discussion: Anyone take a Treatment Holiday? Intermittent use of ADT (hormone Tx)

Support Group: Prostate Cancer

Posted: Nov 5, 2023

I also have Gleason 9, and I go to the Moffit Cancer Center. The radiation oncologist...

https://connect.mayoclinic.org/comment/1305345/

Discussion: Orgovyx side effects and handling them

Support Group: Prostate Cancer

Posted: May 16 10:09am

A couple of thoughts. First, if you're walking 3-4 miles/day, you are not "mostly sedentary." Please...

https://connect.mayoclinic.org/comment/1322945/

Discussion: Don’t know what I don’t know…diagnosed 5/13/25

Support Group: Prostate Cancer

Posted: Jun 8 11:35am

Prostate removal surgery in January 2022. Began Orgovyx ADT in Jan 2023 and radiation in May...

https://connect.mayoclinic.org/comment/1329204/

Discussion: My ADT Story, Feedback Appreciated

Support Group: Prostate Cancer

Posted: Jun 17 1:00pm

Lymph node cancer is not the same as prostate cancer and doesn’t live on testosterone. Yes,...

https://connect.mayoclinic.org/comment/1307617/

Discussion: Taking Orgovyx long term

Support Group: Prostate Cancer

Posted: May 19 10:13am

I'm 1-1/2 months in Orgovyx. I woke up 4 times after midnight feeling a little bit...

https://connect.mayoclinic.org/comment/1300054/

Discussion: What's your experience with Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: May 8 6:58pm

Xtandi (Enzalutamide) causes severe fatigue problems for some people. Switching to Nubeqa (Darolutamide) Eliminates that problem...

https://connect.mayoclinic.org/comment/1343959/

Discussion: Exercise Oncology...what say you?

Support Group: Prostate Cancer

Posted: Jul 8 5:42pm

Wrapped up a 28-session course of EBRT on December 31. RO says that PSA numbers can...

https://connect.mayoclinic.org/comment/1220311/

Discussion: Beginning ADT and PSA tests

Support Group: Prostate Cancer

Posted: Jan 24 8:00am

I had salvage RP January 18th, 2024 Started Orgovyx on 4/22/24. Started Generic Zytiga (Abiraterone acetate)...

https://connect.mayoclinic.org/comment/1120578/

Discussion: Stage 3a, Group 9, just discovered. Dr. gave options but have question

Support Group: Prostate Cancer

Posted: Aug 9, 2024

Radiation 7 weeks? SBRT was not an option I had 3 pelvic lymph nodes and one...

https://connect.mayoclinic.org/comment/1055811/

Discussion: Starting Orgovyx - any advice based on experience?

Support Group: Prostate Cancer

Posted: Apr 23, 2024

This is terrific news. Congrats. I’m told that the orgovyx is to stop ( via testosterone...

https://connect.mayoclinic.org/comment/980519/

Discussion: Orgovyx and Zytiga combined

Support Group: Prostate Cancer

Posted: Dec 14, 2023

Help me understand pls I am on Zolodex 3 month injections to stop testosterones Since Jan...

https://connect.mayoclinic.org/comment/867004/

Discussion: Husband, 71, given one year at best...

Support Group: Prostate Cancer

Posted: May 26, 2023

I guess everyone is different, but, I've been on orgovyx for 7 mos now. No libido......

https://connect.mayoclinic.org/comment/795614/

Discussion: What's your experience with Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: Jan 12, 2023

That’s wonderful that you are holding your own for so long! You are very fortunate! My...

https://connect.mayoclinic.org/comment/739878/

Discussion: Anyone on Pluvicto (Lu 177), a new drug for prostate cancer?

Support Group: Prostate Cancer

Posted: Aug 21, 2022

Thanks Phil. I agree with you regarding surgery. Radiation and ADT seems like the way to...

https://connect.mayoclinic.org/comment/1247135/

Discussion: The treatment begins. I hope it makes sense.

Support Group: Prostate Cancer

Posted: Feb 28 8:18am

I had no real incontinence issue after surgery, I did all the exercises and luckily everything...

https://connect.mayoclinic.org/comment/1226893/

Discussion: What is a Prostatectomy Like?

Support Group: Prostate Cancer

Posted: Feb 1 10:52am

I begin my regimen of orgovyx tablets tomorrow morning (3/11). The radiation oncologist reviewed much of...

https://connect.mayoclinic.org/comment/1139549/

Discussion: One month of Orgovyx completed

Support Group: Prostate Cancer

Posted: Sep 10, 2024

At the suggestion of my urologist, no removal of the prostate was suggested. I started taking...

https://connect.mayoclinic.org/comment/1160609/

Discussion: What's your experience with Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: Oct 21, 2024

I (G7, 4+3 (some risk factors), Decipher Intermediate, PET negative) was scheduled for a nearly identical...

https://connect.mayoclinic.org/comment/1152240/

Discussion: Brachytherapy: Regrets & Why ?

Support Group: Prostate Cancer

Posted: Oct 5, 2024

I'm not sure if your onco is saying there are no studies on Orgovyx+abiraterone, or Lupron+abiraterone,...

https://connect.mayoclinic.org/comment/1110914/

Discussion: Orgovyx and Zytiga combined

Support Group: Prostate Cancer

Posted: Jul 24, 2024

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