Prostate Cancer Support Group

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I had a gleason score 10, 8 out of 12 cores positive. Was put on Orgovyx...

https://connect.mayoclinic.org/comment/959406/

Discussion: IMRT sessions finished now waiting

Support Group: Prostate Cancer

Posted: Nov 5, 2023

My experience with ADT hormone therapy Orgovyx was not that bad. BCR after RP led to...

https://connect.mayoclinic.org/comment/894746/

Discussion: Has anyone done Proton without Hormonal Therapy (ADT)?

Support Group: Prostate Cancer

Posted: Jul 13, 2023

I was on Orgovyx for 6 months. Following my last RT session, testosterone was 11.37. A...

https://connect.mayoclinic.org/comment/1451615/

Discussion: Recovery of testosterone and side effects after stopping ORGOVYX

Support Group: Prostate Cancer

Posted: Dec 2, 2025

I have Medicare with an Advantage Plan. Orgovyx is not a covered drug for me. For...

https://connect.mayoclinic.org/comment/1271831/

Discussion: Orgovyx as lifelong treatment

Support Group: Prostate Cancer

Posted: Apr 1, 2025

The cancer center pharmacy dispensed my first month's supply of ADT Orgovyx this past Wednesday. My...

https://connect.mayoclinic.org/comment/1269723/

Discussion: What's a safe Wait-Time from date of biopsy to start of RT or RP?

Support Group: Prostate Cancer

Posted: Mar 29, 2025

I did exactly this because the side effects of Lupron were too much for me. The...

https://connect.mayoclinic.org/comment/1249252/

Discussion: Switching from Lupron to Orgovyx.

Support Group: Prostate Cancer

Posted: Mar 3, 2025

I am Gleason 9. Dr. SCHOLZ of PCRI, My Oncologist and Radiation Oncologist at UCLA said...

https://connect.mayoclinic.org/comment/1284994/

Discussion: Gleason 9 SO wants me to stop ADT @6 Mos for look see

Support Group: Prostate Cancer

Posted: Apr 18, 2025

@deccakid I think the main work clearing a GnRH antagonist is happening in your liver and...

https://connect.mayoclinic.org/comment/1538190/

Discussion: ADT injection: Benefits worth the toll it will take on my body?

Support Group: Prostate Cancer

Posted: Mar 29 4:55pm

I can't offer an opinion because there are too many factors to consider, e.g., age, overall...

https://connect.mayoclinic.org/comment/1071081/

Discussion: My PSA is 5.3, Gleason (3+4) 7 and Decipher .61. Do I need ADT?

Support Group: Prostate Cancer

Posted: May 19, 2024

@brianjarvis I was on Orgovyx starting March 26 and had my SBRT treatment in mid-April 2025....

https://connect.mayoclinic.org/comment/1482595/

Discussion: What are the chances that this is just a PSA bounce?

Support Group: Prostate Cancer

Posted: Jan 14 9:07pm

As we've discussed before, though, Lupron triggers an initial testosterone surge, which is bad news if...

https://connect.mayoclinic.org/comment/1354785/

Discussion: 1st PSA test seven weeks after surgery

Support Group: Prostate Cancer

Posted: Jul 23, 2025

Hello, I have been on Orgovyx for several years. The side effects, which are predictable, include...

https://connect.mayoclinic.org/comment/1300985/

Discussion: Orgovyx side effects and handling them

Support Group: Prostate Cancer

Posted: May 10, 2025

Jeb: On Orgovyx, I primarily had diminished energy; 10 - 20% "power outage". My 45 min...

https://connect.mayoclinic.org/comment/1271093/

Discussion: Salvage radiation therapy after radical prostatectomy

Support Group: Prostate Cancer

Posted: Mar 31, 2025

Sorry I didn’t notice in your full explanation that you were on Orgovyx now. While you...

https://connect.mayoclinic.org/comment/1145561/

Discussion: RT + 3 years ADT + 2 years Zytiga initial treatment?

Support Group: Prostate Cancer

Posted: Sep 22, 2024

@tommcpheeters I'm now at about 6 weeks with Orgovyx, and 2 with abiraterone / prednisone. A...

https://connect.mayoclinic.org/comment/1542562/

Discussion: Serious complications and side effects from prostate cancer treatments

Support Group: Prostate Cancer

Posted: Apr 4 9:53am

I speak with little real scientific basis,but my oncologist has paused my injections for several months...

https://connect.mayoclinic.org/comment/1552412/

Discussion: Would like to pause Lupron injections. Taking Nubeqa and Lupron.

Support Group: Prostate Cancer

Posted: Apr 17 2:01am

In general: Radiation is a covered treatment, subject to any applicable deductible, copay or coinsurance. ADT...

https://connect.mayoclinic.org/comment/951817/

Discussion: Recently diagnosed: Treatment options for early stage prostate cancer?

Support Group: Prostate Cancer

Posted: Oct 22, 2023

Have you had blood work to see if you are anemic? That will cause shortness of...

https://connect.mayoclinic.org/comment/1481174/

Discussion: ADT Side Effects: Anyone had increased shortness of breath at rest?

Support Group: Prostate Cancer

Posted: Jan 13 8:47am

I developed severe bilaeral arthritis in my wrists about 3 months into Orgovyx. It has limited...

https://connect.mayoclinic.org/comment/1474135/

Discussion: Relationship between ADT and De Quervain tendonitis, stiff fingers?

Support Group: Prostate Cancer

Posted: Jan 4 9:20am

https://connect.mayoclinic.org/comment/1471000/

Discussion: Having a colonoscopy next week, can I still take Orgovyx?

Support Group: Prostate Cancer

Posted: Dec 30, 2025

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