Prostate Cancer Support Group

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Comments (3,374)

I decided to start on Orgovyx two days ago, & my oncologist put the order in...

https://connect.mayoclinic.org/comment/1531756/

Discussion: After insurance approval, how long did it take to receive Orgovyx?

Support Group: Prostate Cancer

Posted: Mar 20 9:54pm

@xahnegrey40 It's funny that you should mention this. It's exactly what has happened to me. Been...

https://connect.mayoclinic.org/comment/1530422/

Discussion: Problems with Sleeping on Orgovyx

Support Group: Prostate Cancer

Posted: Mar 19 7:20am

Hi, my name is Harry. If I may, could I ask you a few questions? Do...

https://connect.mayoclinic.org/comment/1410881/

Discussion: Looking for feedback - Lupron vs Orgovyx

Support Group: Prostate Cancer

Posted: Oct 7, 2025

@csimadera1 I was on Lupron for six years and Orgovyx For three years. The drugs do...

https://connect.mayoclinic.org/comment/1472510/

Discussion: Living with Prostate Cancer: Meet others & introduce yourself

Support Group: Prostate Cancer

Posted: Jan 1 9:27pm

@glenninjb Congratulations, that is amazing and I appreciate your sharing. I will strongly consider hCG in...

https://connect.mayoclinic.org/comment/1494769/

Discussion: Human Chorionic Gonadotropin (hCG) alternative to T supplement

Support Group: Prostate Cancer

Posted: Jan 31 9:12am

First day of fall is officially tomorrow, the 22nd this year. The problem with getting a...

https://connect.mayoclinic.org/comment/1145169/

Discussion: Testosterone: Is everyone's level in the low numbers?

Support Group: Prostate Cancer

Posted: Sep 21, 2024

I had a gleason score 10, 8 out of 12 cores positive. Was put on Orgovyx...

https://connect.mayoclinic.org/comment/959406/

Discussion: IMRT sessions finished now waiting

Support Group: Prostate Cancer

Posted: Nov 5, 2023

My experience with ADT hormone therapy Orgovyx was not that bad. BCR after RP led to...

https://connect.mayoclinic.org/comment/894746/

Discussion: Has anyone done Proton without Hormonal Therapy (ADT)?

Support Group: Prostate Cancer

Posted: Jul 13, 2023

I was on Orgovyx for 6 months. Following my last RT session, testosterone was 11.37. A...

https://connect.mayoclinic.org/comment/1451615/

Discussion: Recovery of testosterone and side effects after stopping ORGOVYX

Support Group: Prostate Cancer

Posted: Dec 2, 2025

I have Medicare with an Advantage Plan. Orgovyx is not a covered drug for me. For...

https://connect.mayoclinic.org/comment/1271831/

Discussion: Orgovyx as lifelong treatment

Support Group: Prostate Cancer

Posted: Apr 1, 2025

The cancer center pharmacy dispensed my first month's supply of ADT Orgovyx this past Wednesday. My...

https://connect.mayoclinic.org/comment/1269723/

Discussion: What's a safe Wait-Time from date of biopsy to start of RT or RP?

Support Group: Prostate Cancer

Posted: Mar 29, 2025

I did exactly this because the side effects of Lupron were too much for me. The...

https://connect.mayoclinic.org/comment/1249252/

Discussion: Switching from Lupron to Orgovyx.

Support Group: Prostate Cancer

Posted: Mar 3, 2025

@mjp0512 I’ve been on a catheter since mid November. No surgery at age 77 with other...

https://connect.mayoclinic.org/comment/1509330/

Discussion: Difficulty urinating: What helps with urination reluctance?

Support Group: Prostate Cancer

Posted: Feb 18 10:34pm

@psmick Did you have your blood draw yet (5 months since Nov 2024)? I was wondering...

https://connect.mayoclinic.org/comment/1286879/

Discussion: Who is a good candidate for Intermittent ADT?

Support Group: Prostate Cancer

Posted: Apr 21, 2025

I think there is a lot of variability from one person to the next. By one...

https://connect.mayoclinic.org/comment/1222858/

Discussion: What's your experience with Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: Jan 27, 2025

I had a gleason score 10, following a psa doubling from 2.5 to 4.8 in one...

https://connect.mayoclinic.org/comment/928366/

Discussion: Prostate Cancer: Which Treatment to Choose?

Support Group: Prostate Cancer

Posted: Sep 11, 2023

I believe that ADT will reduce PSA and impact PSMA PET scan if started prior to...

https://connect.mayoclinic.org/comment/889829/

Discussion: Lupron Treatment Duration: How long were you on it?

Support Group: Prostate Cancer

Posted: Jul 4, 2023

As we've discussed before, though, Lupron triggers an initial testosterone surge, which is bad news if...

https://connect.mayoclinic.org/comment/1354785/

Discussion: 1st PSA test seven weeks after surgery

Support Group: Prostate Cancer

Posted: Jul 23, 2025

Hello, I have been on Orgovyx for several years. The side effects, which are predictable, include...

https://connect.mayoclinic.org/comment/1300985/

Discussion: Orgovyx side effects and handling them

Support Group: Prostate Cancer

Posted: May 10, 2025

Jeb: On Orgovyx, I primarily had diminished energy; 10 - 20% "power outage". My 45 min...

https://connect.mayoclinic.org/comment/1271093/

Discussion: Salvage radiation therapy after radical prostatectomy

Support Group: Prostate Cancer

Posted: Mar 31, 2025

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