Prostate Cancer Support Group

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Comments (3,457)

Short answer, any member of your medical team. My urologist prescribed Lupron, my radiation oncologist prescribed...

https://connect.mayoclinic.org/comment/1244797/

Discussion: Who prescribes ADT?

Support Group: Prostate Cancer

Posted: Feb 24, 2025

I had Orgovyx and my two months after stopping my testosterone was 260 and my PSA...

https://connect.mayoclinic.org/comment/1208776/

Discussion: Have to share this: Dealing with the emotional side of ADT

Support Group: Prostate Cancer

Posted: Jan 11, 2025

In case there's any confusion, I have a single prescription for a year of Orgovyx, but...

https://connect.mayoclinic.org/comment/1146179/

Discussion: Testosterone: Is everyone's level in the low numbers?

Support Group: Prostate Cancer

Posted: Sep 23, 2024

I bounced from a T of 5 to 208 in 2 months after Orgovyx. Had the...

https://connect.mayoclinic.org/comment/1485291/

Discussion: How long after stopping Orgovyx did you notice a difference?

Support Group: Prostate Cancer

Posted: Jan 18 8:05am

Gleason was 4+3=20 (Grade Group 3). The decipher was terrible being one. After 3 months if...

https://connect.mayoclinic.org/comment/1513783/

Discussion: Cranberry RCT study

Support Group: Prostate Cancer

Posted: Feb 24 3:54pm

I decided to start on Orgovyx two days ago, & my oncologist put the order in...

https://connect.mayoclinic.org/comment/1531756/

Discussion: After insurance approval, how long did it take to receive Orgovyx?

Support Group: Prostate Cancer

Posted: Mar 20 9:54pm

@xahnegrey40 It's funny that you should mention this. It's exactly what has happened to me. Been...

https://connect.mayoclinic.org/comment/1530422/

Discussion: Problems with Sleeping on Orgovyx

Support Group: Prostate Cancer

Posted: Mar 19 7:20am

I got Orgovyx approved by my pharmacy plan. Discount was $70 pill and insurance paid $50;...

https://connect.mayoclinic.org/comment/1543939/

Discussion: Orgovyx prices world wide

Support Group: Prostate Cancer

Posted: Apr 6 9:51am

I had prostatectomy in 2014 and I since then, I had 2 radiation therapy done, one...

https://connect.mayoclinic.org/comment/1272587/

Discussion: Orgovyx as lifelong treatment

Support Group: Prostate Cancer

Posted: Apr 2, 2025

@colleenyoung I developed anemia while on Lupron. I really noticed it whenever I lifted and carried...

https://connect.mayoclinic.org/comment/1527309/

Discussion: Is anemia associated with prostate cancer or treatment?

Support Group: Prostate Cancer

Posted: Mar 15 9:30am

@mjp0512 I’ve been on a catheter since mid November. No surgery at age 77 with other...

https://connect.mayoclinic.org/comment/1509330/

Discussion: Difficulty urinating: What helps with urination reluctance?

Support Group: Prostate Cancer

Posted: Feb 18 10:34pm

Hi, my name is Harry. If I may, could I ask you a few questions? Do...

https://connect.mayoclinic.org/comment/1410881/

Discussion: Looking for feedback - Lupron vs Orgovyx

Support Group: Prostate Cancer

Posted: Oct 7, 2025

@glenninjb Congratulations, that is amazing and I appreciate your sharing. I will strongly consider hCG in...

https://connect.mayoclinic.org/comment/1494769/

Discussion: Human Chorionic Gonadotropin (hCG) alternative to T supplement

Support Group: Prostate Cancer

Posted: Jan 31 9:12am

@mcnite yes it is a bit over whelming. Lots of new medical terminology...but essentially this: you...

https://connect.mayoclinic.org/comment/1526360/

Discussion: How fast does Orgovyx work to reduce PSA?

Support Group: Prostate Cancer

Posted: Mar 13 8:55pm

I had a gleason score 10, 8 out of 12 cores positive. Was put on Orgovyx...

https://connect.mayoclinic.org/comment/959406/

Discussion: IMRT sessions finished now waiting

Support Group: Prostate Cancer

Posted: Nov 5, 2023

My experience with ADT hormone therapy Orgovyx was not that bad. BCR after RP led to...

https://connect.mayoclinic.org/comment/894746/

Discussion: Has anyone done Proton without Hormonal Therapy (ADT)?

Support Group: Prostate Cancer

Posted: Jul 13, 2023

I was on Orgovyx for 6 months. Following my last RT session, testosterone was 11.37. A...

https://connect.mayoclinic.org/comment/1451615/

Discussion: Recovery of testosterone and side effects after stopping ORGOVYX

Support Group: Prostate Cancer

Posted: Dec 2, 2025

I have Medicare with an Advantage Plan. Orgovyx is not a covered drug for me. For...

https://connect.mayoclinic.org/comment/1271831/

Discussion: Orgovyx as lifelong treatment

Support Group: Prostate Cancer

Posted: Apr 1, 2025

The cancer center pharmacy dispensed my first month's supply of ADT Orgovyx this past Wednesday. My...

https://connect.mayoclinic.org/comment/1269723/

Discussion: What's a safe Wait-Time from date of biopsy to start of RT or RP?

Support Group: Prostate Cancer

Posted: Mar 29, 2025

I did exactly this because the side effects of Lupron were too much for me. The...

https://connect.mayoclinic.org/comment/1249252/

Discussion: Switching from Lupron to Orgovyx.

Support Group: Prostate Cancer

Posted: Mar 3, 2025

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