Prostate Cancer Support Group

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Comments (2,079)

I recently had an elevated PSA after a period of time from RP. PSA went from...

https://connect.mayoclinic.org/comment/692702/

Discussion: Rising PSA years after radical prostatectomy

Support Group: Prostate Cancer

Posted: Mar 24, 2022

@web265 You were also Gleason 7. Are you still off ADT? Still off ADT for now....

https://connect.mayoclinic.org/comment/1287273/

Discussion: Who is a good candidate for Intermittent ADT?

Support Group: Prostate Cancer

Posted: Apr 22 7:06am

Got it! I have spread myself across several forums too....always using some nom de plume version...

https://connect.mayoclinic.org/comment/988018/

Discussion: Let's get it started: My journey with SBRT (radiation)

Support Group: Prostate Cancer

Posted: Dec 29, 2023

I apologize if I wasn't clear, I'm actually still on orgovyx. I was curious as to...

https://connect.mayoclinic.org/comment/890370/

Discussion: Lupron Treatment Duration: How long were you on it?

Support Group: Prostate Cancer

Posted: Jul 5, 2023

Been on Orgovyx for 6 months. No apparent side effects except for occasional fatigue. I've been...

https://connect.mayoclinic.org/comment/1240630/

Discussion: Starting Orgovyx - how long for side effects to occur?

Support Group: Prostate Cancer

Posted: Feb 19 10:28am

You might have posted an update already but I haven't read it yet. I am interested...

https://connect.mayoclinic.org/comment/1326804/

Discussion: Gleason 9: ADT before radiation

Support Group: Prostate Cancer

Posted: Jun 14 6:40am

I had just four months of Orgovyx, completed end of January. My T recovery has been...

https://connect.mayoclinic.org/comment/1189952/

Discussion: Testosterone replacement after radiation and Orgovyx?

Support Group: Prostate Cancer

Posted: Dec 13, 2024

Hello all. I am beginning Xtandi (120 mg/d) today in addition to Orgovyx (120mg/d). I've been...

https://connect.mayoclinic.org/comment/1147305/

Discussion: Enzalutamide (Xtandi): Anyone have experience with this drug?

Support Group: Prostate Cancer

Posted: Sep 25, 2024

I've finished 1 month of UCLA doctor-recommended 12-18 months hormone therapy (Orgovyx) for my Gleason 9...

https://connect.mayoclinic.org/comment/1016182/

Discussion: What is current norm for length of hormone therapy (ADT)?

Support Group: Prostate Cancer

Posted: Feb 15, 2024

I've been on Orgovyx for almost 4 months now on a 6 month treatment plan. I'm...

https://connect.mayoclinic.org/comment/963894/

Discussion: What's your experience with Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: Nov 13, 2023

harvey44, Thanks and congrats on your success with Proton therapy! Thats great to hear as my...

https://connect.mayoclinic.org/comment/1241735/

Discussion: Difficulty In Deciding on IMRT or Proton Therapy

Support Group: Prostate Cancer

Posted: Feb 20 5:56pm

I receive my Orgovyx from the Mayo Specialty Pharmacy in Rochester. The retail price is $3000/mo....

https://connect.mayoclinic.org/comment/1131131/

Discussion: Puzzled by drug prices

Support Group: Prostate Cancer

Posted: Aug 26, 2024

I'm really appreciating Orgovyx after 2½ years on Firmagon. It works the same way and has...

https://connect.mayoclinic.org/comment/1082231/

Discussion: Share your test results (if you'd like)

Support Group: Prostate Cancer

Posted: Jun 7, 2024

Actually lost 4-5 lbs Side effects of Orgovyx and xtandi after 2 months are very minimal...

https://connect.mayoclinic.org/comment/1068935/

Discussion: What's your experience with Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: May 16, 2024

Ask if you should get 3-month injection of Zolodex to stop testosterone even after radiation I...

https://connect.mayoclinic.org/comment/755540/

Discussion: Low PSA Score with PCa Symptoms

Support Group: Prostate Cancer

Posted: Sep 30, 2022

It doesn't sound like there is a need to rush into anything. Recommend getting a few...

https://connect.mayoclinic.org/comment/1268597/

Discussion: Treatment after prostatectomy

Support Group: Prostate Cancer

Posted: Mar 28 10:43am

My side effects on Orgovyx are different. I have pain in my hips and back, chills,...

https://connect.mayoclinic.org/comment/1138871/

Discussion: Orgovyx extreme fatigue side effects

Support Group: Prostate Cancer

Posted: Sep 9, 2024

I'm still in my early 60s but my experience is similar to yours. Three months after...

https://connect.mayoclinic.org/comment/1304942/

Discussion: Testosterone- confused

Support Group: Prostate Cancer

Posted: May 15 4:34pm

Hi @ganway, I'm sorry to hear that your husband has stage 4 prostate cancer. Once cancer...

https://connect.mayoclinic.org/comment/1072879/

Discussion: Second opinion for husband's stage 4A prostate cancer? And update

Support Group: Prostate Cancer

Posted: May 22, 2024

They both are drugs given to reduce testosterone. I believe Eligard is an injection that you...

https://connect.mayoclinic.org/comment/998423/

Discussion: Have you stopped then restarted taking Orgovyx? If so how was it.

Support Group: Prostate Cancer

Posted: Jan 16, 2024

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