Prostate Cancer Support Group

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Comments (1,263)

I was on Lupron, Abiraterone and Prednisone for three years. I have been off for ten...

https://connect.mayoclinic.org/comment/1368954/

Discussion: How Much Exercise during ADT?

Support Group: Prostate Cancer

Posted: Aug 12 10:02am

I'm a Gleason 8 also with Cribriform 4 but PSMA PET scan on top of MRI...

https://connect.mayoclinic.org/comment/1385713/

Discussion: Stopping Nubeqa and Orgovyx after 6 months

Support Group: Prostate Cancer

Posted: Sep 3 11:18am

I'm 75, gleason 9 and on orgovyx. I had a procedure after which the radiation oncologist...

https://connect.mayoclinic.org/comment/1261108/

Discussion: Is exercise with ADT the Secret Sauce?

Support Group: Prostate Cancer

Posted: Mar 18 11:28am

I had radical prostatectomy January 2019, but recurrence of rising PSA Fall 2019. Started ADT November...

https://connect.mayoclinic.org/comment/312956/

Discussion: ADT how long post Radical Prostatectomy & Radiation Therapy?

Support Group: Prostate Cancer

Posted: Jun 7, 2020

I'm now 73, took only 4 months of Orgovyx but that was plenty to mess up...

https://connect.mayoclinic.org/comment/1304565/

Discussion: Testosterone- confused

Support Group: Prostate Cancer

Posted: May 15 9:16am

I was on Orgovyx for 6 months. My testosterone went down to 16 and my PSA...

https://connect.mayoclinic.org/comment/1154941/

Discussion: In praise of Orgovyx

Support Group: Prostate Cancer

Posted: Oct 10, 2024

My husband is half way through 2 years of ADT. Hot flashes minimized by duloxetine. He...

https://connect.mayoclinic.org/comment/937036/

Discussion: Hormone Therapy Questions

Support Group: Prostate Cancer

Posted: Sep 26, 2023

I never got hot flashes from Orgovyx at all but got chills instead and those continued...

https://connect.mayoclinic.org/comment/1272280/

Discussion: Are there withdrawl symptoms immediately after stopping Orgovyx?

Support Group: Prostate Cancer

Posted: Apr 2 7:23am

I received my first 6mos shot of Eligard in July, (treating localized cancer), side efects were...

https://connect.mayoclinic.org/comment/962311/

Discussion: Eligard and radiation: What can I expect?

Support Group: Prostate Cancer

Posted: Nov 10, 2023

I had prostatectomy in 2014 and I since then, I had 2 radiation therapy done, one...

https://connect.mayoclinic.org/comment/1272587/

Discussion: Orgovyx as lifelong treatment

Support Group: Prostate Cancer

Posted: Apr 2 11:41am

For me, the mental side effects of ADT were the worst part. I hardly had any...

https://connect.mayoclinic.org/comment/1206111/

Discussion: Have to share this: Dealing with the emotional side of ADT

Support Group: Prostate Cancer

Posted: Jan 7 1:07pm

I have posted on this before... I did 12 months of Orgovyx from April 2023 to...

https://connect.mayoclinic.org/comment/1150610/

Discussion: Orgovyx and the timeline for return of normal testosterone level

Support Group: Prostate Cancer

Posted: Oct 2, 2024

I Have been on Orgovyx for 17 months, with 1 more month to go. I talked...

https://connect.mayoclinic.org/comment/1025173/

Discussion: What's your experience with Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: Feb 29, 2024

Depends on whether you are working with only a Urologist and not an Oncologist. I decided...

https://connect.mayoclinic.org/comment/819761/

Discussion: Metastic prostate Cancer Survivors - longevity and quality of life

Support Group: Prostate Cancer

Posted: Mar 2, 2023

Thanks for the good information I'm getting here! I'm scheduled for SBRT in Rochester right after...

https://connect.mayoclinic.org/comment/305910/

Discussion: Anyone had Proton Beam SBRT radiation at Mayo Clinic?

Support Group: Prostate Cancer

Posted: Jul 18, 2020

What were your side effects of it? My husband is afraid of the hot flashes and...

https://connect.mayoclinic.org/comment/1252567/

Discussion: The waiting is terrible: Husband has Stage 4 prostate cancer

Support Group: Prostate Cancer

Posted: Mar 7 12:19pm

Experiences after coming off radiation are extremely variable. I never felt or had any problems with...

https://connect.mayoclinic.org/comment/1208303/

Discussion: Have to share this: Dealing with the emotional side of ADT

Support Group: Prostate Cancer

Posted: Jan 10 10:49am

Hi @colleenyoung. Thank you for your welcome. I've been on Lupron since May 8, 2019. I'm...

https://connect.mayoclinic.org/comment/312959/

Discussion: ADT how long post Radical Prostatectomy & Radiation Therapy?

Support Group: Prostate Cancer

Posted: Jun 7, 2020

I had my first 6 month Lupron shot in Oct and started Zytiga on Dec. 2nd....

https://connect.mayoclinic.org/comment/291433/

Discussion: Pain, inflammation, and swelling following Lupron Depot shot

Support Group: Prostate Cancer

Posted: Jan 30, 2020

Jeff: I am amazed that in last 8 or so days, I have found the ORGOVYX...

https://connect.mayoclinic.org/comment/1375338/

Discussion: just diagnosed 2 mos ago Gleason 8 2 lymph nodes

Support Group: Prostate Cancer

Posted: Aug 20 5:27pm

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