Prostate Cancer Support Group

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Comments (1,101)

I'm 70, was GS7, Decipher High Risk, just finished 6 months of Orgovyx. This followed SBRT....

https://connect.mayoclinic.org/comment/990093/

Discussion: What is the current position on the length of hormone treatment?

Support Group: Prostate Cancer

Posted: Jan 2 7:57am

I’ve been on ORGOVYX for about 3 years now and have similar problems. Gained about 30lbs....

https://connect.mayoclinic.org/comment/1074293/

Discussion: Hot flashes, fatigue 4 months after radiation and Orgovyx

Support Group: Prostate Cancer

Posted: May 25 8:59am

I was exercising daily. Combo of treadmill and weight resistance - but then I pulled my...

https://connect.mayoclinic.org/comment/1075537/

Discussion: Relief for hot flashes during the night

Support Group: Prostate Cancer

Posted: May 27 8:19am

I to have many hot flashes throughout the day ,and the flashes wake me up when...

https://connect.mayoclinic.org/comment/1147204/

Discussion: What helped me with hot flashes: What helped you?

Support Group: Prostate Cancer

Posted: Sep 25 1:04pm

@rxgolfer , you are most welcome. Glad to hear you saw your urologist and discussed things...

https://connect.mayoclinic.org/comment/1171285/

Discussion: Newly diagnosed Metastatic Prostate Cancer

Support Group: Prostate Cancer

Posted: Nov 10 1:39pm

I have been on Orgovyx for 44 days...my sentence is 6 months. I am a small...

https://connect.mayoclinic.org/comment/998966/

Discussion: Difficulty with androgen deprivation (ADT): what helps?

Support Group: Prostate Cancer

Posted: Jan 17 11:01am

With only Orgovyx (and no other treatment), there's a strong chance that the cancer will become...

https://connect.mayoclinic.org/comment/1096090/

Discussion: Can I Manage Testosterone w/ ORGOVYX and Skip Radiation?

Support Group: Prostate Cancer

Posted: Jun 29 7:18am

| For me, ADT (Firmagon, then Orgovyx) and ARSI (Erleada) were part of my path back...

https://connect.mayoclinic.org/comment/1183129/

Discussion: Ready to throw in the towel

Support Group: Prostate Cancer

Posted: Dec 2 8:44am

I don’t understand why people get Firmagon. You can get a Lupron six months shot, they...

https://connect.mayoclinic.org/comment/1153661/

Discussion: In praise of Orgovyx

Support Group: Prostate Cancer

Posted: Oct 7 4:49pm

I'm 60 now, so younger than you, but still not a spring chicken. My testosterone is...

https://connect.mayoclinic.org/comment/1187564/

Discussion: Testosterone replacement after radiation and Orgovyx?

Support Group: Prostate Cancer

Posted: Dec 9 7:18pm

Just something to think about. If you are on Lupron or Orgovyx Or equivalent and it...

https://connect.mayoclinic.org/comment/1189726/

Discussion: Intraductal Prostate Cancer: Any info about recurrence rates?

Support Group: Prostate Cancer

Posted: 6 days ago

A PSA of .05 is considered undetectable by NCCN and most treatment centers. At this point,...

https://connect.mayoclinic.org/comment/1159926/

Discussion: Anyone using eprinomectin for prostate cancer

Support Group: Prostate Cancer

Posted: Oct 20 11:16am

Thanks for that reply heavyphil! That sounds very interesting. I may look into if there is...

https://connect.mayoclinic.org/comment/1144462/

Discussion: Is this normal on ADT? Body hair gone

Support Group: Prostate Cancer

Posted: Sep 20 9:23am

Thanks for everyone's comments. Two points in order to address issues raised in previous responses; I...

https://connect.mayoclinic.org/comment/1174971/

Discussion: Anyone stopped Orgovyx and started again if PSA rises?

Support Group: Prostate Cancer

Posted: Nov 17 12:23pm

Pbmurph: Very curious why double hip replacement dq'd you from proton therapy. I have 2 replaced...

https://connect.mayoclinic.org/comment/946858/

Discussion: How did you choose between proton or photon radiation?

Support Group: Prostate Cancer

Posted: Oct 13, 2023

Intermittent ADT is continuous treatment unless side effects or PSA rises due to prostate cancer cells...

https://connect.mayoclinic.org/comment/824374/

Discussion: Is it necessary to continue enzulutimide when PSA continues falling

Support Group: Prostate Cancer

Posted: Mar 11, 2023

I just finished 18 months of Orgovyx. Yes, it did cause muscle and bone pain. I...

https://connect.mayoclinic.org/comment/1038152/

Discussion: What's your experience with Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: Mar 22 8:39am

Biochemical recurrence (BCR) is defined as PSA rising over 0.2 Preferred PSA treatment range is 0.2...

https://connect.mayoclinic.org/comment/896583/

Discussion: Has anyone had PC that is very aggressive and a very low low PSA?

Support Group: Prostate Cancer

Posted: Jul 16, 2023

I’m also seeing dr kishan at ucla And been on Orgovyx for 5 weeks. Mild Fatigue...

https://connect.mayoclinic.org/comment/1055191/

Discussion: Prostate cancer care team

Support Group: Prostate Cancer

Posted: Apr 22 9:27am

I was 77 yo when diagnosed with Gleason 8 and 9 so the protocol was to...

https://connect.mayoclinic.org/comment/1056170/

Discussion: Orgovyx done. What to expect?

Support Group: Prostate Cancer

Posted: Apr 23 10:02pm

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