Prostate Cancer Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

1,192 total results

Comments (1,101)

Equally inquisitive about how this stage 4 goes foreword.Currently on xytiga/orgovyx only side effect is fatigue....

https://connect.mayoclinic.org/comment/918058/

Discussion: Metastic prostate Cancer Survivors - longevity and quality of life

Support Group: Prostate Cancer

Posted: Aug 24, 2023

I’ve had 4 scans The first 2 were $3000 Now most insurance companies including Medicare cover...

https://connect.mayoclinic.org/comment/1092334/

Discussion: Does a PMSA scan detect prostate cancer at the prostate bed?

Support Group: Prostate Cancer

Posted: Jun 23 9:27am

Yup, that fear and anxiety NEVER goes away even if it’s ZERO. I was on pins...

https://connect.mayoclinic.org/comment/1132070/

Discussion: Gleason7(3+4) - treatment options recommendation

Support Group: Prostate Cancer

Posted: Aug 28 6:52am

I had an RP at ucla in 2014 Psa was 10 Gleason 3+4 Non muscle invasive...

https://connect.mayoclinic.org/comment/1119434/

Discussion: Surgery or Radiation for Intermediate Prostate Cancer?

Support Group: Prostate Cancer

Posted: Aug 7 10:24am

I had some issues withe the VA and psa testing. However, anyone that has a Quest...

https://connect.mayoclinic.org/comment/901613/

Discussion: New to Prostate Cancer with a boatload of questions, but who to ask?

Support Group: Prostate Cancer

Posted: Jul 24, 2023

Hi Kevin. Thx for your response! Very helpful. May I pick your brain for moment? I...

https://connect.mayoclinic.org/comment/890744/

Discussion: Choline C11 PET scan: Anyone had it? Is it useful?

Support Group: Prostate Cancer

Posted: Jul 5, 2023

Waiting to meet with Medical Oncologist. I'll likely do at minimum having the spots radiated and...

https://connect.mayoclinic.org/comment/1096685/

Discussion: PSMA PET scan found cancer in rib and #3 vertebrae. Any experience?

Support Group: Prostate Cancer

Posted: Jun 30 8:30am

I was on Orgovyx. Within days my hands, and some of the fingers became very painful....

https://connect.mayoclinic.org/comment/1082881/

Discussion: Eligard: any correlation with carpal tunnel?

Support Group: Prostate Cancer

Posted: Jun 8 8:17am

I'll echo @robertmizek 's experience that combining ADT like Orgovyx with a second-generation ARSI like Erleada...

https://connect.mayoclinic.org/comment/1128153/

Discussion: PET Scan Results in

Support Group: Prostate Cancer

Posted: Aug 21 1:26pm

@chamblee54 My Gleason scores were similar to yours. I also saw multiple ROs and Urologists. Eventually,...

https://connect.mayoclinic.org/comment/1025992/

Discussion: Brachytherapy , but they came across a Stricture and cancelled

Support Group: Prostate Cancer

Posted: Mar 2 9:43am

10+ yrs post rp Psa rise at 7 yrs Psma showed 3 pelvic nodes psa 3.6...

https://connect.mayoclinic.org/comment/1065289/

Discussion: What's your experience with Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: May 10 8:50am

i was diagnosed with APC , high PSA, high gleason score, few spots in bones lit...

https://connect.mayoclinic.org/comment/1066740/

Discussion: What's your experience with Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: May 12 3:10pm

I’d be reluctant to take Orgovyx at night being concerned that any SEs could be pronounced...

https://connect.mayoclinic.org/comment/1056557/

Discussion: Orgovyx extreme fatigue side effects

Support Group: Prostate Cancer

Posted: Apr 24 3:40pm

My radiation treatments were 37 sessions over almost 8 weeks; primary side effects diarrhea and anal...

https://connect.mayoclinic.org/comment/1171600/

Discussion: Salvage radiation therapy after radical prostatectomy

Support Group: Prostate Cancer

Posted: Nov 11 8:26am

I've been getting Firmagon for 19 months, guess I'm used to it by now. Psa was...

https://connect.mayoclinic.org/comment/1153824/

Discussion: In praise of Orgovyx

Support Group: Prostate Cancer

Posted: Oct 8 4:30am

@dougharris, I'd say radiation is your best bet. You might start the dreaded ADT orgovyx before...

https://connect.mayoclinic.org/comment/1153521/

Discussion: Treatment Decision - Radical Prostatectomy versus Radiation Therapy

Support Group: Prostate Cancer

Posted: Oct 7 12:08pm

I switched from Firmagon (Degarelix) to Orgovyx (Relugolix) a few months ago. As the shared "-lix"...

https://connect.mayoclinic.org/comment/1144702/

Discussion: Notifying work

Support Group: Prostate Cancer

Posted: Sep 20 4:08pm

I received a .2 psa, 8 years post RP. My psa went to .3 a few...

https://connect.mayoclinic.org/comment/722480/

Discussion: Has anyone had the PSMA-PET scan? Was cancer found?

Support Group: Prostate Cancer

Posted: Jun 30, 2022

Gleason 9, Stage 2, and 13mm tumor confined to prostate confirmed by PSMA Pet scan. Easy...

https://connect.mayoclinic.org/comment/1015625/

Discussion: Radiation + ADT

Support Group: Prostate Cancer

Posted: Feb 14 9:59am

Thanks for your reply and support. I agree with you about exercise but my experience is...

https://connect.mayoclinic.org/comment/1056090/

Discussion: Orgovyx extreme fatigue side effects

Support Group: Prostate Cancer

Posted: Apr 23 5:10pm

Osteoporosis & Bone Health

7547

36 seconds ago

Aging Well

9050

3 hours ago

Sarcoma

206

5 hours ago

Visiting Mayo Clinic

4639

5 hours ago

Cancer: Managing Symptoms

3786

11 hours ago