Prostate Cancer Support Group

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Comments (740)

I started out with severe bone pain from metastasis found throughout my spine and ribs. Doctors...

https://connect.mayoclinic.org/comment/1310600/

Discussion: Biden will be here soon: Former President metastatic prostate cancer

Support Group: Prostate Cancer

Posted: May 22, 2025

I'm 71, I was diagnosed with Gleason 4+3 with Cribriform in June of 2025. I survived...

https://connect.mayoclinic.org/comment/1504371/

Discussion: RARP vs RT plus ADT for Gleason 8 with cribiform and high Decipher

Support Group: Prostate Cancer

Posted: Feb 12 7:11pm

A good question... Studies and statistics say...!? As my radiologist said when she sits on the...

https://connect.mayoclinic.org/comment/1527657/

Discussion: Optimal Duration of Hormone Therapy

Support Group: Prostate Cancer

Posted: Mar 15 3:47pm

@wwsmith I forgot that my own case sort of disagrees with the logic of what you’re...

https://connect.mayoclinic.org/comment/1454689/

Discussion: ProstoxUltra & Prostox CFRT both high risk-switch to RALP?

Support Group: Prostate Cancer

Posted: Dec 6, 2025

Note that Nubeqa (Darolutimide) has recently been FDA-approved for metastatic castrate sensitive prostate cancer: https://youtu.be/qFK23Na9RfY?si=nMaMKVJx1hcyny7L So,...

https://connect.mayoclinic.org/comment/1346897/

Discussion: 2.5 Yrs After Proton Rad PSA reached 1.05

Support Group: Prostate Cancer

Posted: Jul 13, 2025

Hi. I was recently put on triple-therapy, including Lupron shots every 3 months, Nubeqa twice a...

https://connect.mayoclinic.org/comment/1493169/

Discussion: Anyone have experience with Triple (Triplet) Therapy?

Support Group: Prostate Cancer

Posted: Jan 29 8:04am

Sounds like you are having the same kind of severe cramping I had shortly after my...

https://connect.mayoclinic.org/comment/899421/

Discussion: Lupron: Anyone have muscle weakness and severe leg pain?

Support Group: Prostate Cancer

Posted: Jul 20, 2023

The standard of not checking your PSA after 70 or 75 is not political. It is...

https://connect.mayoclinic.org/comment/1309144/

Discussion: Biden will be here soon: Former President metastatic prostate cancer

Support Group: Prostate Cancer

Posted: May 21, 2025

@dpayton My case is different from others. Because of the BRCA2, I need to keep as...

https://connect.mayoclinic.org/comment/1468130/

Discussion: Darolutamide Monotherapy

Support Group: Prostate Cancer

Posted: Dec 26, 2025

@soflada I know one guy who had Pluvicto And when it wasn’t successful, went to Austria...

https://connect.mayoclinic.org/comment/1443466/

Discussion: Completed 6 Pluvitco Injections. Oncologist moves me to Lynparza.

Support Group: Prostate Cancer

Posted: Nov 20, 2025

Interesting that you should be the next message that I read. The last one was from...

https://connect.mayoclinic.org/comment/1204493/

Discussion: Have to share this: Dealing with the emotional side of ADT

Support Group: Prostate Cancer

Posted: Jan 5, 2025

I understand you are concerned. Anyone would be. Could you please share what treatments your husband...

https://connect.mayoclinic.org/comment/1184764/

Discussion: Stage 4 Prostate Cancer and Hormone Therapy quit working

Support Group: Prostate Cancer

Posted: Dec 5, 2024

so I am 3 months into Orgovyx ( 5 weeks with Nubeqa) ...my exp is :...

https://connect.mayoclinic.org/comment/1410085/

Discussion: Orgovyx - asking for advice

Support Group: Prostate Cancer

Posted: Oct 6, 2025

In 2010 I was 62 and a biopsy showed Gleason 3+4. Had surgery, after surgery they...

https://connect.mayoclinic.org/comment/1375536/

Discussion: just diagnosed 2 mos ago Gleason 8 2 lymph nodes

Support Group: Prostate Cancer

Posted: Aug 20, 2025

As someone who has BRCA2, I would highly recommend you get genetic testing. My father died...

https://connect.mayoclinic.org/comment/1503954/

Discussion: Salvage surgery or salvage radiation?

Support Group: Prostate Cancer

Posted: Feb 12 11:07am

As I mentioned in the other forum. Typos removed here. IMRT for what he has is...

https://connect.mayoclinic.org/comment/1488199/

Discussion: Guidance to help with ADT decision.

Support Group: Prostate Cancer

Posted: Jan 21 2:09pm

My 87 year old husband was diagnosed on his 85th birthday with Stage 4 Gleason 9...

https://connect.mayoclinic.org/comment/1424542/

Discussion: Dealing with metastatic prostate cancer and other health issues

Support Group: Prostate Cancer

Posted: Oct 27, 2025

That sounds normal for the hormone therapy. My story is similar: I was diagnosed with stage...

https://connect.mayoclinic.org/comment/1197809/

Discussion: What should I do next?

Support Group: Prostate Cancer

Posted: Dec 27, 2024

@scary1 This definitely appears to be correct “ PSA numbers can be low and deceiving with...

https://connect.mayoclinic.org/comment/1505184/

Discussion: The waiting is terrible: Husband has Stage 4 prostate cancer

Support Group: Prostate Cancer

Posted: Feb 13 7:26pm

I am 77 years old and my journey thus far is this. In 2017 I was...

https://connect.mayoclinic.org/comment/1078383/

Discussion: Share your test results (if you'd like)

Support Group: Prostate Cancer

Posted: May 31, 2024

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