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Comments (2,348)

I was diagnosed in 2008 and had an RP (at UCSF) back then. My PSA initially...

https://connect.mayoclinic.org/comment/1383545/

Discussion: Last PSA Number Before Cancer Diagnosis?

Support Group: Prostate Cancer

Posted: Aug 31 1:43pm

Phil, Jeff, others. Just saw this after getting my bloodwork done in prep for PT. I’ve...

https://connect.mayoclinic.org/comment/1370705/

Discussion: In praise of Orgovyx

Support Group: Prostate Cancer

Posted: Aug 14 3:25pm

Jeff: I am amazed that in last 8 or so days, I have found the ORGOVYX...

https://connect.mayoclinic.org/comment/1375338/

Discussion: just diagnosed 2 mos ago Gleason 8 2 lymph nodes

Support Group: Prostate Cancer

Posted: Aug 20 5:27pm

I was on orgovyx for 18 months, and .04 was my nadir. I took the holiday...

https://connect.mayoclinic.org/comment/1249536/

Discussion: PSA Nadir main deciding factor when one can start on Intermittent ADT?

Support Group: Prostate Cancer

Posted: Mar 3 1:03pm

@seasuite Re: Your post on Aug 15, 2024 about taking Orgovyx. I am encouraged by your...

https://connect.mayoclinic.org/comment/1268288/

Discussion: ADT. Afraid of it

Support Group: Prostate Cancer

Posted: Mar 27 9:09pm

Sorry I didn’t notice in your full explanation that you were on Orgovyx now. While you...

https://connect.mayoclinic.org/comment/1145561/

Discussion: RT + 3 years ADT + 2 years Zytiga initial treatment?

Support Group: Prostate Cancer

Posted: Sep 22, 2024

To add to my earlier response, yes, I had prostatectomy and then RT. And due to...

https://connect.mayoclinic.org/comment/1293108/

Discussion: What's your experience with Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: Apr 29 10:08pm

Got my first PSA test results after 30 days on Orgovyx and Zytiga. Undetectable! Off to...

https://connect.mayoclinic.org/comment/1076724/

Discussion: Share your test results (if you'd like)

Support Group: Prostate Cancer

Posted: May 28, 2024

"Unlike other injectable ADTs, Firmagon lowers testosterone levels quickly, which should correspondingly drop PSA levels quickly."...

https://connect.mayoclinic.org/comment/1346675/

Discussion: Husband’s low psa, aggressive Gleason 8

Support Group: Prostate Cancer

Posted: Jul 12 3:14pm

Jeb: On Orgovyx, I primarily had diminished energy; 10 - 20% "power outage". My 45 min...

https://connect.mayoclinic.org/comment/1271093/

Discussion: Salvage radiation therapy after radical prostatectomy

Support Group: Prostate Cancer

Posted: Mar 31 2:49pm

Hello, I have been on Orgovyx for several years. The side effects, which are predictable, include...

https://connect.mayoclinic.org/comment/1300985/

Discussion: Orgovyx side effects and handling them

Support Group: Prostate Cancer

Posted: May 10 9:20am

I can't offer an opinion because there are too many factors to consider, e.g., age, overall...

https://connect.mayoclinic.org/comment/1071081/

Discussion: My PSA is 5.3, Gleason (3+4) 7 and Decipher .61. Do I need ADT?

Support Group: Prostate Cancer

Posted: May 19, 2024

Hi Brian, I just noticed that over 4 years, your PSA hovered between 0.35-0.55; the most...

https://connect.mayoclinic.org/comment/1380729/

Discussion: Had my 4-month PSA test today

Support Group: Prostate Cancer

Posted: Aug 27 4:50pm

I had prostatectomy in 2014 and I since then, I had 2 radiation therapy done, one...

https://connect.mayoclinic.org/comment/1272587/

Discussion: Orgovyx as lifelong treatment

Support Group: Prostate Cancer

Posted: Apr 2 11:41am

It's really weird here with Orgovyx. It's $2,500 a month if you're uninsured. If you're insured...

https://connect.mayoclinic.org/comment/1130897/

Discussion: Puzzled by drug prices

Support Group: Prostate Cancer

Posted: Aug 26, 2024

Agreed about Firmagon/Degarelix. It doesn't affect survival prospects (Orgovyx/Relugolix works the same way), but those big...

https://connect.mayoclinic.org/comment/1260826/

Discussion: Got some answers for stage 4 prostate cancer

Support Group: Prostate Cancer

Posted: Mar 18 6:03am

I am almost 73 years old. I had nine weeks of radiation in 2024. I finished...

https://connect.mayoclinic.org/comment/1355013/

Discussion: Arthritis upswing after radiation: Is this common?

Support Group: Prostate Cancer

Posted: Jul 24 12:09am

Firmagon is different. The others are Leuprolides; Firmagon - though still being an injection - works...

https://connect.mayoclinic.org/comment/1359667/

Discussion: Where to take Leuprolide infusion? Arm or stomach?

Support Group: Prostate Cancer

Posted: Jul 30 5:52am

What a coincidence that @myash and I take Orgovyx approximately the same hour. I am a...

https://connect.mayoclinic.org/comment/1293047/

Discussion: What's your experience with Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: Apr 29 7:32pm

That's correct about Medicare but with a caveat: Orgovyx has to be a covered drug under...

https://connect.mayoclinic.org/comment/1252715/

Discussion: Orgovyx as lifelong treatment

Support Group: Prostate Cancer

Posted: Mar 7 3:51pm

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