Prostate Cancer Support Group

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Comments (1,260)

I am going to apologize for giggling a bit when I read this. “The hot flashes,...

https://connect.mayoclinic.org/comment/681098/

Discussion: Lupron yeah or Lupron nay that is the question.

Support Group: Prostate Cancer

Posted: Feb 15, 2022

No other options were offered. This has worked out great so far. Major side effect was...

https://connect.mayoclinic.org/comment/325203/

Discussion: IMRT (Intensity-Modulated Radiation Therapy)

Support Group: Prostate Cancer

Posted: Oct 14, 2020

When you get the Embr device set it up so that one button cools down the...

https://connect.mayoclinic.org/comment/1144761/

Discussion: Notifying work

Support Group: Prostate Cancer

Posted: Sep 20, 2024

I took 6 Month Lupron shots for six years. I’ve never had any noticeable side effects...

https://connect.mayoclinic.org/comment/1398782/

Discussion: Who has been on lupron for a long time, and/ or firmagon?

Support Group: Prostate Cancer

Posted: Sep 22 11:10am

One critical piece of information you didn’t include is what was your Gleason Score. That decides...

https://connect.mayoclinic.org/comment/1385265/

Discussion: Has anyone gone off hormone therapy (ADT) after radiation?

Support Group: Prostate Cancer

Posted: Sep 2 5:26pm

My results after one month of Orgovyx (started second bottle yesterday)....testosterone dropped from 582 to 2.5,...

https://connect.mayoclinic.org/comment/1139747/

Discussion: One month of Orgovyx completed

Support Group: Prostate Cancer

Posted: Sep 11, 2024

I was denied on first go around on Orgovyx. Had to appeal. I pay $200/ mo...

https://connect.mayoclinic.org/comment/1087685/

Discussion: What's your experience with Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: Jun 16, 2024

Hi, My husband is taking Orgovyx and Zytiga, and did not experience any side effects until...

https://connect.mayoclinic.org/comment/913110/

Discussion: Zytiga and Orgovyx: What helps side effects, fatigue and disinterest?

Support Group: Prostate Cancer

Posted: Aug 14, 2023

The Lupron shot that I get stops the body from producing testosterone. Because of almost no...

https://connect.mayoclinic.org/comment/307820/

Discussion: Effects of Zoladex

Support Group: Prostate Cancer

Posted: Apr 19, 2020

As long as you do not have BRCA low dose estrogen can increase desire, which is...

https://connect.mayoclinic.org/comment/1344437/

Discussion: Hormone Therapy

Support Group: Prostate Cancer

Posted: Jul 9 12:03pm

I was on bicaludamide then Degaralix for 2 years. Now I’m on Lupron x 4 months...

https://connect.mayoclinic.org/comment/1047448/

Discussion: Cannabis as adjunct aid for ADT Side effects?

Support Group: Prostate Cancer

Posted: Apr 8, 2024

I took Xtandi for 26 months. Excellent drug. Had fatigue, hot flashes and edema of extremities....

https://connect.mayoclinic.org/comment/916362/

Discussion: Enzalutamide (Xtandi): Anyone have experience with this drug?

Support Group: Prostate Cancer

Posted: Aug 21, 2023

I have stage 4 prostate cancer. When I was diagnosed my PSA was 326. Extremely high....

https://connect.mayoclinic.org/comment/1310609/

Discussion: The waiting is terrible: Husband has Stage 4 prostate cancer

Support Group: Prostate Cancer

Posted: May 22 5:32pm

I had an interesting experience with my ADT meds recently. I finally got covid after avoiding...

https://connect.mayoclinic.org/comment/1053667/

Discussion: Orgovyx done. What to expect?

Support Group: Prostate Cancer

Posted: Apr 19, 2024

Paul, I had 28 rounds of radiation & 18 months of Elagard hormone therapy. Mostly my...

https://connect.mayoclinic.org/comment/1214139/

Discussion: Have to share this: Dealing with the emotional side of ADT

Support Group: Prostate Cancer

Posted: Jan 15 8:24pm

Thanks I’m at UCLA 3 mds Urology oncologist Radiology oncology And hematology oncologist If my body...

https://connect.mayoclinic.org/comment/1154450/

Discussion: In praise of Orgovyx

Support Group: Prostate Cancer

Posted: Oct 9, 2024

How are you doing now @myash ? I started on Orgovyx March 26. I am not...

https://connect.mayoclinic.org/comment/1271748/

Discussion: Orgovyx as lifelong treatment

Support Group: Prostate Cancer

Posted: Apr 1 12:08pm

I’m on my third month and other than hot flashes, not much else to report. No...

https://connect.mayoclinic.org/comment/1140361/

Discussion: One month of Orgovyx completed

Support Group: Prostate Cancer

Posted: Sep 12, 2024

I did express my concern to the RO staff yesterday. I was told that the Eligard...

https://connect.mayoclinic.org/comment/842542/

Discussion: Hot flashes 3 months after Eligard?

Support Group: Prostate Cancer

Posted: Apr 13, 2023

I finished my radiation therapy in January. Also a shot of firmagon in January, again in...

https://connect.mayoclinic.org/comment/1388904/

Discussion: Has anyone gone off hormone therapy (ADT) after radiation?

Support Group: Prostate Cancer

Posted: Sep 7 3:27pm

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