Prostate Cancer Support Group

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Comments (745)

@badeyeaz, I have been with Nubeqa for 1 year now, major side effect: Libido = 0....

https://connect.mayoclinic.org/comment/911385/

Discussion: Have you used Nubeqa or Zytiga?

Support Group: Prostate Cancer

Posted: Aug 11, 2023

Hi @sademotts I hope that you are doing well. Curious to know since it has been...

https://connect.mayoclinic.org/comment/1323533/

Discussion: PSA Spike after Triplet Therapy - Anxious

Support Group: Prostate Cancer

Posted: Jun 9, 2025

@jgoodma1 Hello, I just read your post from Feb 12 - I hope you are doing...

https://connect.mayoclinic.org/comment/1535331/

Discussion: RARP vs RT plus ADT for Gleason 8 with cribiform and high Decipher

Support Group: Prostate Cancer

Posted: Mar 25 5:58pm

Same boat, different captain! My husband is not the same as before and I’m trying to...

https://connect.mayoclinic.org/comment/1501636/

Discussion: Support for wives with the Orgovyx tornado: Needing an olive branch

Support Group: Prostate Cancer

Posted: Feb 9 10:56am

I’m with kujhawk. Get the best imaging you can as soon as you can. I was...

https://connect.mayoclinic.org/comment/699570/

Discussion: Rising PSA years after radical prostatectomy

Support Group: Prostate Cancer

Posted: Apr 16, 2022

I do not understand why you are doing this! You are way beyond the expertise of...

https://connect.mayoclinic.org/comment/1367589/

Discussion: Fun with ADT and testosterone

Support Group: Prostate Cancer

Posted: Aug 10, 2025

T1cN1M0 is a staging designation used in cancer, specifically for non-small cell lung cancer and breast...

https://connect.mayoclinic.org/comment/1351277/

Discussion: Adding a second medicine question

Support Group: Prostate Cancer

Posted: Jul 18, 2025

@jmacpa I’m really surprised about you being sore after the Lupron shot. I got them every...

https://connect.mayoclinic.org/comment/1415422/

Discussion: What are Short-term ADT's long-term side effects?

Support Group: Prostate Cancer

Posted: Oct 14, 2025

@denkea That is a great result. Orgovyx and Nubeqa Are working for you like it does...

https://connect.mayoclinic.org/comment/1468063/

Discussion: How long have you been on Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: Dec 26, 2025

I do not have any constipation issues. I was a zofran for a while and did...

https://connect.mayoclinic.org/comment/1439623/

Discussion: Anyone taking Nubeqa (darolutamide) have a problem with constipation?

Support Group: Prostate Cancer

Posted: Nov 15, 2025

Don’t worry about Erleada vs Xtandi. They work very much the same. Side effects similar. If...

https://connect.mayoclinic.org/comment/1146195/

Discussion: Testosterone: Is everyone's level in the low numbers?

Support Group: Prostate Cancer

Posted: Sep 23, 2024

My PSA is <0.008, which is undetectable. There’s no point in scanning at this time because...

https://connect.mayoclinic.org/comment/780869/

Discussion: Has anyone had the PSMA-PET scan? Was cancer found?

Support Group: Prostate Cancer

Posted: Dec 4, 2022

I'm kind of surprised you weren't started on ADT upon positive biopsy. As others suggest, the...

https://connect.mayoclinic.org/comment/1520678/

Discussion: Starting ADT

Support Group: Prostate Cancer

Posted: Mar 6 6:17am

I have been on Orgovyx 6 months...yes have some leg pains ( knees and hips) mostly...

https://connect.mayoclinic.org/comment/1480288/

Discussion: Orgovyx aftermath

Support Group: Prostate Cancer

Posted: Jan 12 8:45am

@mirsy Orgovyx is an ADT pill. Most ADT is done by injections, Drugs like Lupron, Eligard...

https://connect.mayoclinic.org/comment/1453559/

Discussion: AUS activation and riding a bike

Support Group: Prostate Cancer

Posted: Dec 5, 2025

Talk to your doctor about Nubeqa (Darolutamide). It’s a lutamide like Xtandi But has many fewer...

https://connect.mayoclinic.org/comment/1370767/

Discussion: Orgovyx & Gynecomastia

Support Group: Prostate Cancer

Posted: Aug 14, 2025

Huh? I’m glad you are doing well with a single drug. My doctor (Mount Sinai) just...

https://connect.mayoclinic.org/comment/1340580/

Discussion: Adverse Heart conditions from Hormone therapy

Support Group: Prostate Cancer

Posted: Jul 3, 2025

I think you're in good shape! Nubeqa is to stop the process by which cancer cells...

https://connect.mayoclinic.org/comment/1320971/

Discussion: Castration Resistance

Support Group: Prostate Cancer

Posted: Jun 5, 2025

I've made an executive decision: I'm no longer waiting. Since the prior PET scan in 2021...

https://connect.mayoclinic.org/comment/1530169/

Discussion: Share your test results (if you'd like)

Support Group: Prostate Cancer

Posted: Mar 18 6:08pm

I found out I was BRCA2 positive about five years ago. I’ve had prostate cancer for...

https://connect.mayoclinic.org/comment/1478869/

Discussion: What treatment options for paratracheal lymph nodes with BRCA2?

Support Group: Prostate Cancer

Posted: Jan 10 11:48am

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