Prostate Cancer Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

860 total results

Comments (790)

@philipsnowdon "I’ve never heard of any man functioning well in his overall life, wellbeing and energy...

https://connect.mayoclinic.org/comment/1533219/

Discussion: Hormone therapy before radiation treatment question....

Support Group: Prostate Cancer

Posted: Mar 23 12:34am

@jeffmarc yes..brainfog..I dont think I am any more foggy than before I started ADT...again, thank you...

https://connect.mayoclinic.org/comment/1517221/

Discussion: ARSI PR wars: Nubeqa (Bayer) vs Erleada (J & J) lawsuit

Support Group: Prostate Cancer

Posted: Mar 1 12:48pm

I absolutely considered that, but there were opposing considerations. Several years prior I didn’t experience symptoms...

https://connect.mayoclinic.org/comment/1469069/

Discussion: How long have you been on Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: Dec 28, 2025

Xtandi (Enzalutamide) causes severe fatigue problems for some people. Switching to Nubeqa (Darolutamide) Eliminates that problem...

https://connect.mayoclinic.org/comment/1343959/

Discussion: Exercise Oncology...what say you?

Support Group: Prostate Cancer

Posted: Jul 8, 2025

@jsh327 we are currently at Sloan. Our oncologist shoots down everything we bring up. Tries one...

https://connect.mayoclinic.org/comment/1532352/

Discussion: Nubeqa vs Lupron

Support Group: Prostate Cancer

Posted: Mar 21 6:50pm

That’s just it, After 15 years of prostate cancer and eight years of monthly blood test,...

https://connect.mayoclinic.org/comment/1370768/

Discussion: PSA Test: Pain in the Area of Blood Draw (weeks after)

Support Group: Prostate Cancer

Posted: Aug 14, 2025

I’ve had Gallium 68 PSMA PET scan and never heard of it causing cancer. My scan...

https://connect.mayoclinic.org/comment/743282/

Discussion: Biochemical Recurrence: Questions about PSMA PET scan & radiation

Support Group: Prostate Cancer

Posted: Aug 30, 2022

I’ve been on Orgovyx (and Nubeqa) for just about a year. High volume mets to bones...

https://connect.mayoclinic.org/comment/1469101/

Discussion: How long have you been on Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: Dec 28, 2025

Nubeqa does not pass the blood brain barrier so it doesn’t cause the brain fog like...

https://connect.mayoclinic.org/comment/1360320/

Discussion: How long were you on Orgovyx, Xtandi, Talzenna? Fatigue unbearable

Support Group: Prostate Cancer

Posted: Jul 30, 2025

Is anyone here have heart disease while taking Nubeqa? I normally don't have problems but have...

https://connect.mayoclinic.org/comment/1354132/

Discussion: Can anyone share their experience with Nubeqa?

Support Group: Prostate Cancer

Posted: Jul 22, 2025

@reil When your PSA starts rising after you go on Lupron (or stop ADT)you are supposed...

https://connect.mayoclinic.org/comment/1459384/

Discussion: 4th chemo infusion: Anyone had worsening symptoms with chemo?

Support Group: Prostate Cancer

Posted: Dec 12, 2025

I identify with your leg pain. Gleason 9. Metastatic. I’ve done chemo and radiation, now on...

https://connect.mayoclinic.org/comment/957594/

Discussion: Lupron: Anyone have muscle weakness and severe leg pain?

Support Group: Prostate Cancer

Posted: Nov 1, 2023

When I was diagnosed with Stage 4. I was immediately put on both types of drugs....

https://connect.mayoclinic.org/comment/1294746/

Discussion: Newly diagnosed stage 4, how long on ADT before adding ARSI?

Support Group: Prostate Cancer

Posted: May 2, 2025

@shelby29 Were you taking Zytiga? It caused me multiple heart issues, One put me in the...

https://connect.mayoclinic.org/comment/1419864/

Discussion: Going off ADT after 3 years: How did you do after ADT?

Support Group: Prostate Cancer

Posted: Oct 20, 2025

@jeffmarc I don't think you're missing anything. IMRT was to prostate only. Treatment for mets is...

https://connect.mayoclinic.org/comment/1512255/

Discussion: Being treated for Gleason 9

Support Group: Prostate Cancer

Posted: Feb 22 4:45pm

For someone who has heart problems, but needs to be on treatment you should consider Nubeqa...

https://connect.mayoclinic.org/comment/1340367/

Discussion: Adverse Heart conditions from Hormone therapy

Support Group: Prostate Cancer

Posted: Jul 3, 2025

I am on month 8 of Trelstar, + Nubeqa. PSA is undetectable for now. My urologist...

https://connect.mayoclinic.org/comment/1320963/

Discussion: Castration Resistance

Support Group: Prostate Cancer

Posted: Jun 5, 2025

I was on Lupron several years. The last time my cancer recurred I went to UCLA...

https://connect.mayoclinic.org/comment/1156235/

Discussion: Lupron Treatment Duration: How long were you on it?

Support Group: Prostate Cancer

Posted: Oct 13, 2024

Re: Nubeqa cost. The manufacturer has an assistance program to remove the financial barrier. Typically, they...

https://connect.mayoclinic.org/comment/838555/

Discussion: Lupron and Nubeqa (darolutamide): Anyone on this protocol?

Support Group: Prostate Cancer

Posted: Apr 6, 2023

@bigdaddyalso I have afib which is particularly susceptible to long QT syndrome. I have a couple...

https://connect.mayoclinic.org/comment/1429424/

Discussion: Lupron v. orgovyx...which is preferable for the heart?

Support Group: Prostate Cancer

Posted: Nov 2, 2025

Bladder Conditions

824

7 minutes ago

Osteoporosis & Bone Health

14626

13 minutes ago

Men's Health

5809

39 minutes ago

Cancer: Managing Symptoms

5670

42 minutes ago

Cancer

10060

44 minutes ago