Prostate Cancer Support Group

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Jumping in here to see what your experiences are: husband had aggressive PCa, Gleason 4+4, PSA...

https://connect.mayoclinic.org/comment/1485367/

Discussion: PSA levels started to rise again but negative PSMA PET

Support Group: Prostate Cancer

Posted: Jan 18 9:04am

@jeffmarc I agree with your comments and think they are accurate but how do you marry...

https://connect.mayoclinic.org/comment/1482293/

Discussion: ADT injection: Benefits worth the toll it will take on my body?

Support Group: Prostate Cancer

Posted: Jan 14 2:18pm

@astrope yep booze and ADT..makes side effects quite a bit more intense...I dont think a toke...

https://connect.mayoclinic.org/comment/1481664/

Discussion: Orgovyx aftermath

Support Group: Prostate Cancer

Posted: Jan 13 6:38pm

As you’re deciding on treatments, the goal is to gain some insight into whether there’s something...

https://connect.mayoclinic.org/comment/1480377/

Discussion: 50 and Full of Life. Need advice. TULSA or HIFU or what?

Support Group: Prostate Cancer

Posted: Jan 12 10:01am

I've only been on ADT (Orgovyx) for a month and a half. Ever since my RO...

https://connect.mayoclinic.org/comment/1479529/

Discussion: Lupron/enzalutamide side effects so severe after 36 wks. getting off

Support Group: Prostate Cancer

Posted: Jan 11 10:14am

@guerri2024 I had to stop ADT Lupron after 4 months because of very severe headaches, 24...

https://connect.mayoclinic.org/comment/1478734/

Discussion: Can a short term of taking Orgovyx cause leg pain and weight gain?

Support Group: Prostate Cancer

Posted: Jan 10 10:01am

@heavyphil One thing I've found so far, from "Transdermal Estrogen May Offer Another Option for ADT...

https://connect.mayoclinic.org/comment/1474347/

Discussion: Alternate ADT drug shaking things up: Estrogen?

Support Group: Prostate Cancer

Posted: Jan 4 12:44pm

@csimadera1 I was on Lupron for six years and Orgovyx For three years. The drugs do...

https://connect.mayoclinic.org/comment/1472510/

Discussion: Living with Prostate Cancer: Meet others & introduce yourself

Support Group: Prostate Cancer

Posted: Jan 1 9:27pm

There are a number of factors to consider regarding treatment, not the least of these is...

https://connect.mayoclinic.org/comment/1470733/

Discussion: My Gleason score is 7 - 3+4. How long can I live without treatment?

Support Group: Prostate Cancer

Posted: Dec 30, 2025

@jeffmarc can likely clarify, but it's my understanding that Nubeqa allows testosterone to rise but its...

https://connect.mayoclinic.org/comment/1468431/

Discussion: Darolutamide Monotherapy

Support Group: Prostate Cancer

Posted: Dec 27, 2025

@steveduke I had terrible hot flashes on Lupron. For a year, I would have at least...

https://connect.mayoclinic.org/comment/1511158/

Discussion: Starting Orgovyx - how long for side effects to occur?

Support Group: Prostate Cancer

Posted: Feb 21 10:59am

My case is different because I was simultaneously on Abiraterone with the Orgovyx. So I don’t...

https://connect.mayoclinic.org/comment/1510962/

Discussion: Starting Orgovyx - how long for side effects to occur?

Support Group: Prostate Cancer

Posted: Feb 21 7:41am

@jeffmarc Update on my husband's radiation oncologist consultation today! The visit went remarkably well and has...

https://connect.mayoclinic.org/comment/1510536/

Discussion: Salvage surgery or salvage radiation?

Support Group: Prostate Cancer

Posted: Feb 20 1:51pm

@bms39 Please be careful with the supplements, Check with your doctor to make sure they are...

https://connect.mayoclinic.org/comment/1507413/

Discussion: Support for wives with the Orgovyx tornado: Needing an olive branch

Support Group: Prostate Cancer

Posted: Feb 16 1:50pm

@fritzo The surgical QOL factors (incontinence/ED particulary) are often temporary. If not temporary, there are treatment...

https://connect.mayoclinic.org/comment/1506952/

Discussion: Decipher risk: prostatectomy RP vs radiation.

Support Group: Prostate Cancer

Posted: Feb 16 6:36am

@sodogo I'm your age and recently finished a course of SBRT two months ago. My psa...

https://connect.mayoclinic.org/comment/1506447/

Discussion: What is treatment for Gleason Score 8 at 80 years old in good health?

Support Group: Prostate Cancer

Posted: Feb 15 12:50pm

I have really noticed no side effects from nubeqa. The side effects you’re talking about are...

https://connect.mayoclinic.org/comment/1505060/

Discussion: Any good treatments found for Nubeqa side effects?

Support Group: Prostate Cancer

Posted: Feb 13 3:36pm

@wwsmith Instead of nomograms, men might even have to seek out one-by-one individual clinical trials like...

https://connect.mayoclinic.org/comment/1504561/

Discussion: Decipher risk: prostatectomy RP vs radiation.

Support Group: Prostate Cancer

Posted: Feb 13 5:59am

@climateguy If and when I experience BCR, the trade-off between the side-effect burden of ADT and...

https://connect.mayoclinic.org/comment/1504098/

Discussion: Weighing the cancer risk reduction & quality-of-life cost of ADT?

Support Group: Prostate Cancer

Posted: Feb 12 12:58pm

As someone who has BRCA2, I would highly recommend you get genetic testing. My father died...

https://connect.mayoclinic.org/comment/1503954/

Discussion: Salvage surgery or salvage radiation?

Support Group: Prostate Cancer

Posted: Feb 12 11:07am

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