Prostate Cancer Support Group

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Comments (738)

We are hoping to transition to Orgovox but local GU Onc is concerned insurance won’t approve...

https://connect.mayoclinic.org/comment/1366936/

Discussion: Started Hormone Therapy Today

Support Group: Prostate Cancer

Posted: Aug 9, 2025

Thank you so much for your response. I've only been on Nubeqa for about 2 months....

https://connect.mayoclinic.org/comment/1354361/

Discussion: Can anyone share their experience with Nubeqa?

Support Group: Prostate Cancer

Posted: Jul 23, 2025

@heavyphil Everything you wrote makes perfect sense - 5 blasts to only the prostate doesn't make...

https://connect.mayoclinic.org/comment/1533875/

Discussion: 3C, PPC 8/12, highest GG5; T1c N0 M0 - 5 SBRT sessions to Prostate?

Support Group: Prostate Cancer

Posted: Mar 23 7:30pm

Are you now on Orgovyx and Nubeqa? I am on Orgovyx but did not do well...

https://connect.mayoclinic.org/comment/1322661/

Discussion: For Newly Arrived Bros: A Day In The Life With ADT

Support Group: Prostate Cancer

Posted: Jun 8, 2025

@jeffmarc I just took another look at my Part D formulary. It lists Erleada, Nubeqa, and...

https://connect.mayoclinic.org/comment/1491800/

Discussion: Insurance and Xtandi

Support Group: Prostate Cancer

Posted: Jan 27 11:46am

I was on Lupron for 15 months a while back. Went on an ADT holiday but...

https://connect.mayoclinic.org/comment/1392769/

Discussion: Orgovyx done. What to expect?

Support Group: Prostate Cancer

Posted: Sep 13, 2025

I decided to start on Orgovyx two days ago, & my oncologist put the order in...

https://connect.mayoclinic.org/comment/1531756/

Discussion: After insurance approval, how long did it take to receive Orgovyx?

Support Group: Prostate Cancer

Posted: Mar 20 9:54pm

@xahnegrey40 It's funny that you should mention this. It's exactly what has happened to me. Been...

https://connect.mayoclinic.org/comment/1530422/

Discussion: Problems with Sleeping on Orgovyx

Support Group: Prostate Cancer

Posted: Mar 19 7:20am

What is the alternative if PSA is rising by double every 6-12 months? The side effects...

https://connect.mayoclinic.org/comment/1446162/

Discussion: ADT, maybe not? Anyone opted out of ADT?

Support Group: Prostate Cancer

Posted: Nov 24, 2025

One important thing is what Gleason score they found. I would assume you had a biopsy...

https://connect.mayoclinic.org/comment/1439231/

Discussion: PSA jump 16 to 30 in 6 months. Radiation candidate?

Support Group: Prostate Cancer

Posted: Nov 15, 2025

@dietzpagan 2.5 years after I started zytiga, I became castrate resistant, Which means the ADT drug...

https://connect.mayoclinic.org/comment/1491671/

Discussion: Weighing the cancer risk reduction & quality-of-life cost of ADT?

Support Group: Prostate Cancer

Posted: Jan 27 9:21am

I’ve been on ADT for nine years. Switched to Orgovyx About two years ago. It did...

https://connect.mayoclinic.org/comment/1398212/

Discussion: ok just took on Nubeqa after 2 months Orgovyx

Support Group: Prostate Cancer

Posted: Sep 21, 2025

Well I'm glad for you because I do;although my urologist said I'd be ok as long...

https://connect.mayoclinic.org/comment/1360998/

Discussion: A PSA question

Support Group: Prostate Cancer

Posted: Jul 31, 2025

@canadaanne My husband is on the same treatment path as yours…Orgovyx, Nubeqa, and probably docetaxal chemo...

https://connect.mayoclinic.org/comment/1494543/

Discussion: Anyone have experience with Triple (Triplet) Therapy?

Support Group: Prostate Cancer

Posted: Jan 30 8:59pm

I am scheduled for a pet scan next week. I have already metastasis in my bones...

https://connect.mayoclinic.org/comment/1483084/

Discussion: New Higher PSA after steady decline: A little worried, thought?

Support Group: Prostate Cancer

Posted: Jan 15 12:46pm

@pacojunior31 Abiraterone Is really tough on the body. I’ve been working with a guy who had...

https://connect.mayoclinic.org/comment/1521751/

Discussion: Has anyone had to discontinue Zytiga due to side effects?

Support Group: Prostate Cancer

Posted: Mar 7 12:03pm

I had surgery last week that is similar to hernia surgery. I did not stop or...

https://connect.mayoclinic.org/comment/1429844/

Discussion: Anybody have hernia surgery while on Orgovyx?

Support Group: Prostate Cancer

Posted: Nov 3, 2025

Thanks much Danny's, My PC was caught late , metastasis over my bones 5-4 Gleason bad...

https://connect.mayoclinic.org/comment/1128796/

Discussion: Ivermectin for Prostate Cancer? (Being studied)

Support Group: Prostate Cancer

Posted: Aug 22, 2024

I'm kind of surprised you weren't started on ADT upon positive biopsy. As others suggest, the...

https://connect.mayoclinic.org/comment/1520678/

Discussion: Starting ADT

Support Group: Prostate Cancer

Posted: Mar 6 6:17am

I absolutely considered that, but there were opposing considerations. Several years prior I didn’t experience symptoms...

https://connect.mayoclinic.org/comment/1469069/

Discussion: How long have you been on Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: Dec 28, 2025

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