Prostate Cancer Support Group

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Comments (739)

PSA 0.62 PSMA Showed stage 4 metastatic most metastases to left shoulder area. Oncologist dx of...

https://connect.mayoclinic.org/comment/899469/

Discussion: Has anyone had PC that is very aggressive and a very low low PSA?

Support Group: Prostate Cancer

Posted: Jul 21, 2023

I was started on nubeqa orally and then eligard shots I decided to see an oncologist...

https://connect.mayoclinic.org/comment/1394755/

Discussion: Prostate cancer that has spread to several lymph nodes and bones

Support Group: Prostate Cancer

Posted: Sep 16, 2025

You are correct in my case. I qualified for Neubeqa As an add-on to Lupron and...

https://connect.mayoclinic.org/comment/1249551/

Discussion: Switching from Lupron to Orgovyx.

Support Group: Prostate Cancer

Posted: Mar 3, 2025

@northoftheborder My understanding is that abiraterone Along with ADT can also delay castrate resistance. Hey, I...

https://connect.mayoclinic.org/comment/1518202/

Discussion: ARSI PR wars: Nubeqa (Bayer) vs Erleada (J & J) lawsuit

Support Group: Prostate Cancer

Posted: Mar 2 9:27pm

Started on Lupron with nubeqa and started a 6 treatment every three weeks .just finished session...

https://connect.mayoclinic.org/comment/1077113/

Discussion: Share your test results (if you'd like)

Support Group: Prostate Cancer

Posted: May 29, 2024

@northoftheborder According to AI, this is a very rare side effect of all of the lutamide’s....

https://connect.mayoclinic.org/comment/1481300/

Discussion: Side effects adding XTANDI to ORGOVYX

Support Group: Prostate Cancer

Posted: Jan 13 11:06am

Must admit, I don’t think I’ve ever heard such an incorrect statement made by a doctor....

https://connect.mayoclinic.org/comment/1530875/

Discussion: Nubeqa vs Lupron

Support Group: Prostate Cancer

Posted: Mar 19 4:48pm

I’m age 66. 4+3 Gleason. Oligometastic w/one spot on pelvis and one on pelvic lymph node....

https://connect.mayoclinic.org/comment/1525175/

Discussion: I’m 69yo with a 3+4=7 GS; is SBRT a good choice for treatment?

Support Group: Prostate Cancer

Posted: Mar 12 8:48am

I had the scan when my PSA was 1.0. Four pelvic lymph nodes were shown to...

https://connect.mayoclinic.org/comment/730889/

Discussion: Has anyone had the PSMA-PET scan? Was cancer found?

Support Group: Prostate Cancer

Posted: Jul 26, 2022

Orgovyx pill is about $3000 here now. My latest Nubeqa Bill was around $11,000. It’s dropped...

https://connect.mayoclinic.org/comment/1366974/

Discussion: Started Hormone Therapy Today

Support Group: Prostate Cancer

Posted: Aug 9, 2025

Re @asolidrock I am on Nubeqa and Orgovyx. I was never on firmagon, but it prevents...

https://connect.mayoclinic.org/comment/1365990/

Discussion: Started Hormone Therapy Today

Support Group: Prostate Cancer

Posted: Aug 7, 2025

I have only been prescribed Orgovyx with radiation and my PSA is being monitored. I am...

https://connect.mayoclinic.org/comment/1327220/

Discussion: Castration Resistance

Support Group: Prostate Cancer

Posted: Jun 14, 2025

I get my Orgovyx (and all prescription drugs) by mail. Takes 2-3 days. Biologics by McKesson...

https://connect.mayoclinic.org/comment/1535995/

Discussion: Navigating Biologics by McKesson for D and mail-order 90-day Orgovyx

Support Group: Prostate Cancer

Posted: 4 days ago

@thnx4beingthere, welcome! Don't you hate when you have questions between doctor visits? And some questions you...

https://connect.mayoclinic.org/comment/1462921/

Discussion: In praise of Orgovyx

Support Group: Prostate Cancer

Posted: Dec 17, 2025

@thnx4beingthere There is no reason to wait for the Nubeqa. You can start the orgovyx Right...

https://connect.mayoclinic.org/comment/1453541/

Discussion: In praise of Orgovyx

Support Group: Prostate Cancer

Posted: Dec 5, 2025

@scary1 I would definitely want to get a second opinion on this. IMRT radiation may make...

https://connect.mayoclinic.org/comment/1533099/

Discussion: 3C, PPC 8/12, highest GG5; T1c N0 M0 - 5 SBRT sessions to Prostate?

Support Group: Prostate Cancer

Posted: Mar 22 5:50pm

@jeffmarc Jeff, I've had 3 PSMA pet scans. One when my PSA was 22. The second...

https://connect.mayoclinic.org/comment/1467712/

Discussion: How long have you been on Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: Dec 25, 2025

I currently take Nubeqa, I always take it with food and have not had any digestive...

https://connect.mayoclinic.org/comment/1368138/

Discussion: Can anyone share their experience with Nubeqa?

Support Group: Prostate Cancer

Posted: Aug 11, 2025

Orgovyx and Lupron work almost exactly the same. I’ve been on both of them. There’s been...

https://connect.mayoclinic.org/comment/1351050/

Discussion: How long does your oncologist have you on ADT?

Support Group: Prostate Cancer

Posted: Jul 18, 2025

I was on Lupron for seven years before Orgovyx. I had most of the side effects,...

https://connect.mayoclinic.org/comment/1380079/

Discussion: Can Prostate Cancer "Take a New Trajectory"?

Support Group: Prostate Cancer

Posted: Aug 26, 2025