Prostate Cancer Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

800 total results

Comments (738)

Maximum annual prescription expense on Medicare is $2100. Once you pay that, all other scripts are...

https://connect.mayoclinic.org/comment/1491570/

Discussion: Insurance and Xtandi

Support Group: Prostate Cancer

Posted: Jan 27 7:02am

Here’s the problem you may have with Nubeqa. I take it without anything else because I...

https://connect.mayoclinic.org/comment/1289100/

Discussion: SBRT on T8 Only vs Lower Dose Pluvicto and ADT

Support Group: Prostate Cancer

Posted: Apr 24, 2025

A lot of people take these drugs for a year or two and then get off...

https://connect.mayoclinic.org/comment/1405397/

Discussion: Anyone been able to get off meds with metastatic prostate cancer?

Support Group: Prostate Cancer

Posted: Sep 30, 2025

I’m 47, diagnosed 3 month ago with metastatic cancer (bone), currently receiving chemotherapy 6 doses of...

https://connect.mayoclinic.org/comment/783823/

Discussion: What is the average age of the gentlemen on here?

Support Group: Prostate Cancer

Posted: Dec 11, 2022

@trchar yes, I am on both. With Nubeqa I’ve been undetectable for 23 months, Something that...

https://connect.mayoclinic.org/comment/1414678/

Discussion: Doublet Therapy Holiday - Option for Oligorecurrent Prostate Cancer?

Support Group: Prostate Cancer

Posted: Oct 13, 2025

I take a shot every 3 months along with nubeqa. I'm like you I'm thankfully for...

https://connect.mayoclinic.org/comment/1369780/

Discussion: Can anyone share their experience with Nubeqa?

Support Group: Prostate Cancer

Posted: Aug 13, 2025

I have a Medicare Advantage plan, and it was just a matter of the Dr submitting...

https://connect.mayoclinic.org/comment/1398368/

Discussion: Does Medicare cover Orgovyx?

Support Group: Prostate Cancer

Posted: Sep 21, 2025

@denis76 Age 70 here and as active as I can be. Take care of a multi-acre...

https://connect.mayoclinic.org/comment/1521576/

Discussion: Testosterone as fuel, let's think about it together ...

Support Group: Prostate Cancer

Posted: Mar 7 9:10am

Hi...Gleason 9 Stage IVB here. My treatment plan is Orgovyx/Nubeqa w/ 20 sessions IMRT. 55Gy total....

https://connect.mayoclinic.org/comment/1526521/

Discussion: Anyone had treatment: Bicalutamide, Orgovyx for stage 3C?

Support Group: Prostate Cancer

Posted: Mar 14 7:17am

@briang1958 - Normally, I would wholly agree with you and would offer the same advice. However,...

https://connect.mayoclinic.org/comment/1532657/

Discussion: Colonoscopy

Support Group: Prostate Cancer

Posted: Mar 22 9:01am

@jeffmarc YES; started off on Zytiga but stopped due to elevated liver enzymes, switched over to...

https://connect.mayoclinic.org/comment/1476080/

Discussion: RE: Follow-up Imaging post treatments; HD-Brachytherapy, HD-EBRT

Support Group: Prostate Cancer

Posted: Jan 6 6:15pm

@wooldridgec, I don't know if they participated in the ARASENS trial, but both @melcanada and @kujayhawk84...

https://connect.mayoclinic.org/comment/982358/

Discussion: Anyone out there participate in the original ARASENS trial?

Support Group: Prostate Cancer

Posted: Dec 17, 2023

Be sure to get a PSMA PET scan. Mine detected tiny hits in my chest, later...

https://connect.mayoclinic.org/comment/886105/

Discussion: Treatment advice for prostate cancer

Support Group: Prostate Cancer

Posted: Jun 27, 2023

Darolutamide (brand name Nubeqa) is an androgen receptor inhibitor used in the treatment of advanced prostate...

https://connect.mayoclinic.org/comment/1375325/

Discussion: Can anyone share their experience with Pluvicto?

Support Group: Prostate Cancer

Posted: Aug 20, 2025

@jeffmarc thank you. I will ask her why he can’t have that. She made it sound...

https://connect.mayoclinic.org/comment/1481000/

Discussion: Nubeqa (Darolutamide) versus Zytiga versus Estradiol Patches

Support Group: Prostate Cancer

Posted: Jan 12 11:00pm

I have the same symptoms ,69 yrs My PSA was 65 in 2021 I had metastasis...

https://connect.mayoclinic.org/comment/1013441/

Discussion: Lupron: Anyone have muscle weakness and severe leg pain?

Support Group: Prostate Cancer

Posted: Feb 10, 2024

@denis76 In 2010 I had my prostatectomy 3.5 years later had the salvage radiation I got...

https://connect.mayoclinic.org/comment/1527504/

Discussion: What if this prevents cancer from becoming resistant?

Support Group: Prostate Cancer

Posted: Mar 15 12:21pm

@jeffmarc I am not near as knowledgeable about the PC drugs and combos as you are,...

https://connect.mayoclinic.org/comment/1523549/

Discussion: Article: Half dose prostate drugs ‘controls cancer minus side effects

Support Group: Prostate Cancer

Posted: Mar 9 8:54pm

My experience very similar. Rated stage 4B. Chemo therapy followed by 26 radiation sessions. Simultaneously on...

https://connect.mayoclinic.org/comment/1023307/

Discussion: Lupron and Nubeqa (darolutamide): Anyone on this protocol?

Support Group: Prostate Cancer

Posted: Feb 26, 2024

PSA 0.62 PSMA Showed stage 4 metastatic most metastases to left shoulder area. Oncologist dx of...

https://connect.mayoclinic.org/comment/899469/

Discussion: Has anyone had PC that is very aggressive and a very low low PSA?

Support Group: Prostate Cancer

Posted: Jul 21, 2023

Cancer: Managing Symptoms

5571

3 hours ago

Osteoporosis & Bone Health

14319

3 hours ago

Bladder Cancer

1112

3 hours ago

Men's Health

5677

6 hours ago

Visiting Mayo Clinic

6678

6 hours ago