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Pancreatic Cancer Support Group

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Discussion
Surgical options for borderline resectable/locally advanced tumors
My mom was diagnosed with pancreatic cancer in July 2022. She was not eligible for surgery at the time due to SMA encasement, so she...
Support Group: Pancreatic Cancer
Last active: Mar 1, 2023
Discussion
I am being monitored for dilated pancreatic ducts
Recently, my CA-19-9 level went up from a 52 to a 87.7. I have been diagnosed with IPMN of the pancreas. Also my CEA level...
Support Group: Pancreatic Cancer
Last active: Jun 29, 2025
Discussion
Oxaliplatin: What are the effects of dropping it from FOLFIRINOX?
Diagnosed in Dec 2021 with stage 4 PANCAN with metastsis to liver. Started Foflornix in Jan 2022. Did 12 treatments, last one without Oxeplatin because...
Support Group: Pancreatic Cancer
Last active: Dec 4, 2023
Discussion
Liver transplant and CKD, now husband diagnosed with pancreatic cancer
My 70-year-old husband received the news last week that some tissue samples from an EUS came back as cancerous. He has a complex medical history...
Support Group: Pancreatic Cancer
Last active: Jul 28, 2025
Discussion
CA19-9 Test: How often to test?
How often do you do a CA19-9 blood test? My PDAC surgery, treatment, etc., was done at a cancer center in another state. I still...
Support Group: Pancreatic Cancer
Last active: Nov 23, 2023
Discussion
Rising CA19-9 numbers but scans ok
My husband's numbers have been on the rise the last couple months from 325 lowest to over 1200 this week. Each time (every other week)...
Support Group: Pancreatic Cancer
Last active: Mar 11, 2025
Discussion
CA19-9 rise while on maintenance chemo
I know CA19-9 results aren't everything. But my husband's numbers have pretty consistently fallen from a high of 3900+ since last November. Down about 99%...
Support Group: Pancreatic Cancer
Last active: Aug 27, 2024
Discussion
Husband’s CA19-9 plunged by 90%
Hi, My husband just finished 11 rounds of chemo with oxaliplatin and irinitican. During this time, he also has been working with a nutritionist to...
Support Group: Pancreatic Cancer
Last active: May 28, 2024
Discussion
Pancreatic cancer - New treatments, better outcomes
From the Mayo Clinic Health Letter, January 2021. Pancreatic cancer New treatments, better outcomes Pancreatic cancer begins in the tissues of your pancreas — an...
Support Group: Pancreatic Cancer
Last active: Dec 14, 2024
Discussion
Monitoring a Pancreatic Cyst?
Hello,…I have to ask for people’s experience and support. I am 68 years old. In June of 2022, during a routine examination (for a hernia)...
Support Group: Pancreatic Cancer
Last active: Jan 20, 2024