Pancreatic Cancer Support Group

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Comment

I too have become obsessed with my CA-19, but repeatedly told by doctors to relax. Do...

https://connect.mayoclinic.org/comment/1142277/

Discussion: Does a change in CA19-9 indicate change in tumor?

Support Group: Pancreatic Cancer

Posted: Sep 16, 2024

Comment

My mother had her second chemo and got out of the hospital yesterday. She feels some...

https://connect.mayoclinic.org/comment/932486/

Discussion: Ductal adenocarcinoma, colloid (mucinous) type

Support Group: Pancreatic Cancer

Posted: Sep 19, 2023

Comment

Have you done orthostatic blood pressure checks? Lying, sitting, and standing blood pressures. After my first...

https://connect.mayoclinic.org/comment/847937/

Discussion: Orthostatic hypotension

Support Group: Pancreatic Cancer

Posted: Apr 23, 2023

Comment

Careful with that assumption on the chemos. Sometimes, insurance covers one chemo cocktail until it stops...

https://connect.mayoclinic.org/comment/1387327/

Discussion: Negative Turn in a Long Journey

Support Group: Pancreatic Cancer

Posted: Sep 5, 2025

Comment

Long story short: I did 6 months (12 rounds) of Folfirinox before Whipple for PDAC. No...

https://connect.mayoclinic.org/comment/927882/

Discussion: Anyone on Gemcitabine with Abraxane? How long? Effective?

Support Group: Pancreatic Cancer

Posted: Sep 10, 2023

Comment

Regarding surgery, you could inquire with Dr. Christopher Wolfgang at NYU/Langone (Perlmutter Cancer Center) about treating...

https://connect.mayoclinic.org/comment/1266003/

Discussion: Any successful experiences with GemAbrax after awful side effects?

Support Group: Pancreatic Cancer

Posted: Mar 24, 2025

Comment

The original article link says: 1) FOLFIRINOX is composed of 5-FU, leucovorin, irinotecan and oxaliplatin. 2)...

https://connect.mayoclinic.org/comment/1015917/

Discussion: FDA approves new first line treatment option for metastatic pancreatic

Support Group: Pancreatic Cancer

Posted: Feb 14, 2024

Comment

@stevm, I've now had 17 daily (M-F) treatments of radiation + capecitabine, with 11 more to...

https://connect.mayoclinic.org/comment/985750/

Discussion: Your experience with IMRT (radiation) + capecitebine (oral chemo)?

Support Group: Pancreatic Cancer

Posted: Dec 23, 2023

Comment

Hi there, my husband is also stage IV and in Folfirinox. After 4 rounds they did...

https://connect.mayoclinic.org/comment/989395/

Discussion: How important is rising Ca19-9 if CT is stable re: having surgery?

Support Group: Pancreatic Cancer

Posted: Dec 31, 2023

Comment

I was diagnosed with stage three in Jan 2021. Had Whipple surgery followed by 12 folfirinox...

https://connect.mayoclinic.org/comment/856182/

Discussion: Husband had Whipple surgery and chemo: He's uncomfortable

Support Group: Pancreatic Cancer

Posted: May 8, 2023

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