Support Groups

Pancreatic Cancer Support Group

Lock icon Public Support Group
Clear Search
1,245 total results
Discussions (121)
Treatment for lymph nodes?
My husband's latest CT scan showed no progression of disease, except "Enlarging centrally necrotic appearing retroperitoneal lymph nodes". His CA19-9 numbers had gone up after...
Support Group: Pancreatic Cancer
Last active: Nov 8, 2024
Change of Chemo
Question...brother has been on folfirinox for about 9.5 months. Recently...although no new spots...a couple of spots have grown a tiny bit. We are contemplating doing...
Support Group: Pancreatic Cancer
Last active: Mar 24, 2024
What's next?
Folfirinox showed resistance after about 9 or 10 months. Now gem/abrax may be going the same route as CA19-9 numbers have gone from 300 to...
Support Group: Pancreatic Cancer
Last active: Mar 11, 2025
Drug Doubles Survival Time - Saltikva
Anyone know how to obtain the drug Saltikva which earned fast-track FDA approval in Jan 2022. Studies have shown the Salmonella IL2 drug Saltikva doubled...
Support Group: Pancreatic Cancer
Last active: Jan 5, 2024
2nd opinion would require a diag. lap within 90 days of last one
I am 70 and was diagnosed with Stage 1 pan can 9/23. Initially took Abraxane/Gemzar for 2 months, then stopped due to chemo- induced pneumonia/pneumonitis...
Support Group: Pancreatic Cancer
Last active: Jan 19, 2024
Treatment delayed due to low WBC and platelets
Has any one had round 2 folfirinox delayed for 2nd time due to low WBC and low Platelets ? What can help besides medications like...
Support Group: Pancreatic Cancer
Last active: Sep 16, 2024
Stage IV
Brother was diagnosed with stage IV pancan. He had his first treatment of folfirinox last week. He did alright but did have 3 full days...
Support Group: Pancreatic Cancer
Last active: Aug 18, 2023
Chemo without any cancer showing on scan or MRI?
distal pancreatectomy and splenectomy in july 2024before and after surgery normal CA-19-9 ( 15 to 20)folfirinox from sept 2024 to april 2025 (10 cycles)CA-19-9 went...
Support Group: Pancreatic Cancer
Last active: Feb 18 10:30am
Anyone have experience with mRNA trials for pancreatic cancer?
Hi! I was diagnosed December 2023, had modified Whipple February 2024 with clear margins, completed 12 rounds of Folfirinox in September. CA19-9 and CT scans...
Support Group: Pancreatic Cancer
Last active: Oct 26, 2024
How do you keep your PICC line dry while showering?
we used Press N Seal for showers when my wife was on Folfirinox. It worked but was a little difficult to put on. She just...
Support Group: Pancreatic Cancer
Last active: Oct 4, 2024
Is a 2-week break between adjuvant radiotherapy & chemo okay?
My relative has been diagnosed with stage 2b and has undergone whipple on July with 3/15 nodes positive and one area with close margin. Adjuvant...
Support Group: Pancreatic Cancer
Last active: Aug 20, 2024
Side effects after completing Chemotherapy
My husband has finished his Folfirinox treatments at the end of September. He is still feeling the effects of this last treatment. I have heard...
Support Group: Pancreatic Cancer
Last active: Jan 31, 2024
Update: After my Whipple surgery
My PC Update I just had my 2nd post Whipple chemo after returning home. FYI my Medicare approved Rehab facility was the WORSE - night...
Support Group: Pancreatic Cancer
Last active: Apr 18, 2025
Neuropathy in feet after completing Chemotherapy
My husband completed 10 rounds of Folfirinox at the end of September. In late October he developed neuropathy in both feet. It is getting progressively...
Support Group: Pancreatic Cancer
Last active: Feb 16 9:06pm
Any successful experiences with GemAbrax after awful side effects?
My dad was diagnosed 12/20/2024 with Stage 2 Adenocarcinoma Pancreatic Cancer. We were told originally it was only 2cm and he was the perfect candidate...
Support Group: Pancreatic Cancer
Last active: May 13, 2025
Diagnosed with Stage 4 Pancreatic Tail Cancer: No Symptoms Yet
I’ve recently have been diagnosed with stage 4 ductal adenocarcinoma of the pancreas tail with secondary metastatic peritoneal carcinomatosis. I will began folfirinox chemo next...
Support Group: Pancreatic Cancer
Last active: Jul 11, 2024
Any experiences with Gemcitabine + Abraxane as second line treatment?
My 45yr old husband was diagnosed with stage IV pancreatic adenocarcinoma in Sept 2025. It had metastasized to his liver and spleen. He started out...
Support Group: Pancreatic Cancer
Last active: Mar 15 11:31am
Splenectomy part of distal pancreatectomy
Stage 2 diagnosis in February, tumor in the tail of the pancreas, just finished 12 rounds of folfirinox with no issues. I am completely not...
Support Group: Pancreatic Cancer
Last active: Sep 24, 2025
Anyone have any experience with clinical trials or immunotherapy?
My husband (43) was diagnosed with stage 4 pancan on Sept 1. He’s had 4 rounds on chemo, Folfirinox with some dosage adjustments due to...
Support Group: Pancreatic Cancer
Last active: Nov 21, 2023
ONIVYDE irinotecan liposome
Has anyone here been treated with Onivyde? After 10 treatments with gemcitibine/abraxane/cisplaten and 8 treatments with gemcitibine/abraxane, my wife's CA19-9 is still climbing and a...
Support Group: Pancreatic Cancer
Last active: Dec 20, 2021