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Public Support Group 951 total results
Discussions (86)
Drug Doubles Survival Time - Saltikva
Anyone know how to obtain the drug Saltikva which earned fast-track FDA approval in Jan 2022. Studies have shown the Salmonella IL2 drug Saltikva doubled...
2nd opinion would require a diag. lap within 90 days of last one
I am 70 and was diagnosed with Stage 1 pan can 9/23. Initially took Abraxane/Gemzar for 2 months, then stopped due to chemo- induced pneumonia/pneumonitis...
Stage IV
Brother was diagnosed with stage IV pancan. He had his first treatment of folfirinox last week. He did alright but did have 3 full days...
How do you keep your PICC line dry while showering?
we used Press N Seal for showers when my wife was on Folfirinox. It worked but was a little difficult to put on. She just...
How do you eat during chemo when everything tastes bad?
my wife was able to eat during Folfirinox chemo, but now she is on gemcitabine/abraxane and everything tastes awful so she is not eating.Lidocaine solution...
Is a 2-week break between adjuvant radiotherapy & chemo okay?
My relative has been diagnosed with stage 2b and has undergone whipple on July with 3/15 nodes positive and one area with close margin. Adjuvant...
Side effects after completing Chemotherapy
My husband has finished his Folfirinox treatments at the end of September. He is still feeling the effects of this last treatment. I have heard...
Neuropathy in feet after completing Chemotherapy
My husband completed 10 rounds of Folfirinox at the end of September. In late October he developed neuropathy in both feet. It is getting progressively...
Anyone on Gemcitabine with Abraxane? How long? Effective?
Hi, I'm Helena from South Africa. I have been diagnosed with PC, stage 4, in March. Tumour between body and tail and with one lesion...
Diagnosed with Stage 4 Pancreatic Tail Cancer: No Symptoms Yet
I’ve recently have been diagnosed with stage 4 ductal adenocarcinoma of the pancreas tail with secondary metastatic peritoneal carcinomatosis. I will began folfirinox chemo next...
Anyone have any experience with clinical trials or immunotherapy?
My husband (43) was diagnosed with stage 4 pancan on Sept 1. He’s had 4 rounds on chemo, Folfirinox with some dosage adjustments due to...
ONIVYDE irinotecan liposome
Has anyone here been treated with Onivyde? After 10 treatments with gemcitibine/abraxane/cisplaten and 8 treatments with gemcitibine/abraxane, my wife's CA19-9 is still climbing and a...
Mayo clinic appointment
My wife was diagnosed 6/2024 with a penny sized malignant neoplasm of body of pancreas. Original Chemo cycle started July 15 and included Folfirinox and...
Cancer drug cost in Ontario, Canada
Hi, I have been a member for few months but had not posted anything. But this forum has given me lot of information. I thank...
Any experience with stroke and very low platelets?
My sister was dx'd Stage IV 11 months ago. Had 6 months Folfirinox and now oral capecitabine which was d/c'd last week. She suffered a...
Can Gemcitabine/Abraxane (GA) chemo cause delusions?
(Computer issues this morning, so sorry if this was already posted)My wife is in her off week of her first 3week on / 1 week...
Pancreatic cancer became metastatic after cyberknife treatment
My husband has unresectable pancreatic cancer because tumor was wrapped around an artery. He had 6 months of folfirinox and oxyplatin. His ca 199 numbers...
Anyone with BRCA 2 mutation taking Olaparib?
My Dad was detected with pancreatic adenocarcinoma last year in January 2023. He had Whipple surgery in August 2023. He completed 12 cycles of FOLFIRINOX...
Is anyone participating in a clinical trial for pancreatic cancer?
Is anyone participating in a clinical trial for pancreatic cancer? My husband’s PC is not genetic. He has tried Folfirinox. He was allergic to Oxaliplatin...
Molecular profiling in Canada
Molecular profiling is not done in Canada unless you are in a clinical study. So for my husband we chose to have it done which...
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