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Discussions (110)
Change of Chemo
Question...brother has been on folfirinox for about 9.5 months. Recently...although no new spots...a couple of spots have grown a tiny bit. We are contemplating doing...
Splenectomy part of distal pancreatectomy
Stage 2 diagnosis in February, tumor in the tail of the pancreas, just finished 12 rounds of folfirinox with no issues. I am completely not...
Drug Doubles Survival Time - Saltikva
Anyone know how to obtain the drug Saltikva which earned fast-track FDA approval in Jan 2022. Studies have shown the Salmonella IL2 drug Saltikva doubled...
What's next?
Folfirinox showed resistance after about 9 or 10 months. Now gem/abrax may be going the same route as CA19-9 numbers have gone from 300 to...
2nd opinion would require a diag. lap within 90 days of last one
I am 70 and was diagnosed with Stage 1 pan can 9/23. Initially took Abraxane/Gemzar for 2 months, then stopped due to chemo- induced pneumonia/pneumonitis...
Treatment delayed due to low WBC and platelets
Has any one had round 2 folfirinox delayed for 2nd time due to low WBC and low Platelets ? What can help besides medications like...
Clinical Trials Help
Hello, everyone. I was diagnosed with stage IV adenosquamous pancreatic cancer with liver lesions this past March. After courses of Folfirinox and then Gem-Abraxane, my...
Stage IV
Brother was diagnosed with stage IV pancan. He had his first treatment of folfirinox last week. He did alright but did have 3 full days...
How do you keep your PICC line dry while showering?
we used Press N Seal for showers when my wife was on Folfirinox. It worked but was a little difficult to put on. She just...
Anyone have experience with mRNA trials for pancreatic cancer?
Hi! I was diagnosed December 2023, had modified Whipple February 2024 with clear margins, completed 12 rounds of Folfirinox in September. CA19-9 and CT scans...
Side effects after completing Chemotherapy
My husband has finished his Folfirinox treatments at the end of September. He is still feeling the effects of this last treatment. I have heard...
Is a 2-week break between adjuvant radiotherapy & chemo okay?
My relative has been diagnosed with stage 2b and has undergone whipple on July with 3/15 nodes positive and one area with close margin. Adjuvant...
Neuropathy in feet after completing Chemotherapy
My husband completed 10 rounds of Folfirinox at the end of September. In late October he developed neuropathy in both feet. It is getting progressively...
Update: After my Whipple surgery
My PC Update I just had my 2nd post Whipple chemo after returning home. FYI my Medicare approved Rehab facility was the WORSE - night...
Low platelet count and delay of chemo
Have had 8 rounds of Folfirinox, strong chemo, have had 3 after the Whipple procedure done June 10 2025; , supposed to have 4 more...
Diagnosed with Stage 4 Pancreatic Tail Cancer: No Symptoms Yet
I’ve recently have been diagnosed with stage 4 ductal adenocarcinoma of the pancreas tail with secondary metastatic peritoneal carcinomatosis. I will began folfirinox chemo next...
Any successful experiences with GemAbrax after awful side effects?
My dad was diagnosed 12/20/2024 with Stage 2 Adenocarcinoma Pancreatic Cancer. We were told originally it was only 2cm and he was the perfect candidate...
Anyone have any experience with clinical trials or immunotherapy?
My husband (43) was diagnosed with stage 4 pancan on Sept 1. He’s had 4 rounds on chemo, Folfirinox with some dosage adjustments due to...
How do you eat during chemo when everything tastes bad?
my wife was able to eat during Folfirinox chemo, but now she is on gemcitabine/abraxane and everything tastes awful so she is not eating.Lidocaine solution...
ONIVYDE irinotecan liposome
Has anyone here been treated with Onivyde? After 10 treatments with gemcitibine/abraxane/cisplaten and 8 treatments with gemcitibine/abraxane, my wife's CA19-9 is still climbing and a...
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