Pancreatic Cancer Support Group | Mayo Clinic Connect

@dryheataz i understand. When I was diagnosed in 8/22, I was stage 4, and it spread...

https://connect.mayoclinic.org/comment/1532709/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Mar 22 9:43am

This happens when taking Chemo. You have to eat or weight loss will be a big...

https://connect.mayoclinic.org/comment/1539244/

Discussion: Taste Buds: Does your taste for food come back?

Support Group: Pancreatic Cancer

Posted: Mar 31 5:48am

@baravelli I cannot gain weight two years after pancreas and spleen removal. What are you taking...

https://connect.mayoclinic.org/comment/1499537/

Discussion: Anyone had both their pancreas and spleen removed?

Support Group: Pancreatic Cancer

Posted: Feb 6 12:41pm

I am 2 years post whipped and cannot gain weight, started. With 36000 2 at each...

https://connect.mayoclinic.org/comment/1515560/

Discussion: Creon - am I taking too much or too little?

Support Group: Pancreatic Cancer

Posted: Feb 27 7:40am

@wpprescott I hope you are doing better now, and the trial was positive. Re your weight...

https://connect.mayoclinic.org/comment/1535936/

Discussion: Negative Turn in a Long Journey

Support Group: Pancreatic Cancer

Posted: Mar 26 2:09pm

@anne7573217 thanks for sharing. Cannabis is legal in OH too so we stopped at the dispensary...

https://connect.mayoclinic.org/comment/1538900/

Discussion: Looking for info about cannabis use to stimulate appetite

Support Group: Pancreatic Cancer

Posted: Mar 30 2:14pm

@suelannon Im so sorry you are both going thru this. It truly is beyond frustrating and...

https://connect.mayoclinic.org/comment/1541002/

Discussion: Taste Buds: Does your taste for food come back?

Support Group: Pancreatic Cancer

Posted: Apr 2 8:56am

Side effects seem to be very different for different people judging from what I've learned. But...

https://connect.mayoclinic.org/comment/1548613/

Discussion: Your tolerance on Onivyde/Leucovorin/Fluorouacil?

Support Group: Pancreatic Cancer

Posted: Apr 12 10:06am

During chemo my husband seriously suffered from lack of appetite and retching even when he thought...

https://connect.mayoclinic.org/comment/1553270/

Discussion: Looking for info about cannabis use to stimulate appetite

Support Group: Pancreatic Cancer

Posted: 3 days ago

Thank you, Marko also lost a weight from Whipple until today and it seems hard to...

https://connect.mayoclinic.org/comment/1457790/

Discussion: Ascites after Whipple surgery: What can be done?

Support Group: Pancreatic Cancer

Posted: Dec 10, 2025

@donomary I am also not a Mayo patient but this Mayo community is indispensable for me....

https://connect.mayoclinic.org/comment/1545577/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Apr 8 9:52am

@hopeful33250 eating was horrible to start with, weight loss, diarrhoea, I am now on creon with...

https://connect.mayoclinic.org/comment/1447487/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Nov 26, 2025

@jeffp, weight loss with pancreatic cancer is often discussed in the group. To help you connect...

https://connect.mayoclinic.org/comment/1483657/

Discussion: Severe weight loss with pancreatic cancer: What can be done?

Support Group: Pancreatic Cancer

Posted: Jan 16 8:55am

Yes. It took some help from the surgeon and the hepatobiliary dietician I see at MSKCC...

https://connect.mayoclinic.org/comment/861312/

Discussion: Still losing weight: Does timing of Creon help?

Support Group: Pancreatic Cancer

Posted: May 17, 2023

Has anyone figured out how to gain weight consistently after their Whipple surgery? I lost nearly...

https://connect.mayoclinic.org/comment/985237/

Discussion: Weight Loss after Whipple: What strategies helped you?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 22, 2023

@anindita, I moved your questions about how to gain weight after treatment for pancreatic cancer to...

https://connect.mayoclinic.org/comment/1069117/

Discussion: Weight Loss after Whipple: What strategies helped you?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 16, 2024

61 yr old patient, liver mets after 7 months of whipples. Now under chemo. Not able...

https://connect.mayoclinic.org/comment/1062766/

Discussion: Weight Loss after Whipple: What strategies helped you?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 5, 2024

Very inspiring thank you for sharing! What is your weight now? I had the whipple 10...

https://connect.mayoclinic.org/comment/908918/

Discussion: What is it like after Whipple surgery plus 1 1/2 years?

Support Group: Pancreatic Cancer

Posted: Aug 7, 2023

I had both pancreas and spleen removed 2 years ago am on Enzymes for digestion. My...

https://connect.mayoclinic.org/comment/1493648/

Discussion: Anyone had both their pancreas and spleen removed?

Support Group: Pancreatic Cancer

Posted: Jan 29 4:29pm

11 months after surgery I am still loosing weight and my pain level has increased. My...

https://connect.mayoclinic.org/comment/1337000/

Discussion: ongoing pain 1+ years post-whipple

Support Group: Pancreatic Cancer

Posted: Jun 28, 2025