Pancreatic Cancer Support Group

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Thank you for your extensive review of the literature regarding IPMN’s. My clinical findings are at...

https://connect.mayoclinic.org/comment/970349/

Discussion: Anyone have a small pancreatic IPMN cyst that turned out to be cancer?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 25, 2023

How long ago was the surgery, how long was your adjuvant chemo, how often will you...

https://connect.mayoclinic.org/comment/968739/

Discussion: CA19-9 Test: How often to test?

Support Group: Pancreatic Cancer

Posted: Nov 21, 2023

Move fast! Get the Invitae germline DNA test done asap by anyone who will order it...

https://connect.mayoclinic.org/comment/966169/

Discussion: Indeterminant cystic lesion in the pancreas....where to go from here

Support Group: Pancreatic Cancer

Posted: Nov 16, 2023

Thank you for well wishes. I got the ctDNA test yesterday, and also, to my surprise...

https://connect.mayoclinic.org/comment/965241/

Discussion: CA19-9 going up and back pain at night - recurrence?

Support Group: Pancreatic Cancer

Posted: Nov 15, 2023

I'm going to be offline for a few days (I think), and just wanted to elaborate...

https://connect.mayoclinic.org/comment/963641/

Discussion: CA19-9 going up and back pain at night - recurrence?

Support Group: Pancreatic Cancer

Posted: Nov 12, 2023

@stageivsurvivor , Thanks very much for the update on where ctDNA testing stands, but I have...

https://connect.mayoclinic.org/comment/962408/

Discussion: CA19-9 going up and back pain at night - recurrence?

Support Group: Pancreatic Cancer

Posted: Nov 10, 2023

@wheatley , I would say the best place is whichever pancreatic center of excellence you can...

https://connect.mayoclinic.org/comment/958030/

Discussion: Where is best place to go for second opinion for stage 4 pancreatic?

Support Group: Pancreatic Cancer

Posted: Nov 2, 2023

Do remember that CA19-9 scores will often rise before they fall. It is taxing I know!

https://connect.mayoclinic.org/comment/955629/

Discussion: Abort chemo Rx & go straight to surgery while I am still Stage 1?

Support Group: Pancreatic Cancer

Posted: Oct 29, 2023

@mbcfl I am a stage IV patient diagnosed 11/2021. I am not a medical professional but...

https://connect.mayoclinic.org/comment/955619/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Oct 29, 2023

Hi, @lisn. I had 8 rounds of Folfirinox, from April thru August of this year with...

https://connect.mayoclinic.org/comment/953868/

Discussion: Began folfirinox treatment - have a few questions

Support Group: Pancreatic Cancer

Posted: Oct 25, 2023

--- PRE-DISCUSSION DECLARATION: I HAVE NO MEDICAL TRAINING! --- Content below is personal opinion from my...

https://connect.mayoclinic.org/comment/952274/

Discussion: Had FOLFIRINOX pre Whipple surgery: Questions about chemo after

Support Group: Pancreatic Cancer

Posted: Oct 22, 2023

I had 10 rounds of Chem before Whipple, but no Chem after the surgery. The reason...

https://connect.mayoclinic.org/comment/951943/

Discussion: Side effects after completing Chemotherapy

Support Group: Pancreatic Cancer

Posted: Oct 22, 2023

I pile on the butter and sour cream to pump up the calories. He will usually...

https://connect.mayoclinic.org/comment/946141/

Discussion: Husband won’t eat

Support Group: Pancreatic Cancer

Posted: Oct 11, 2023

Details here: https://clinicaltrials.gov/study/NCT05968326 The "No prior treatments" part does not mean surgery. This is mainly for...

https://connect.mayoclinic.org/comment/941202/

Discussion: Any thoughts on the mRNA vaccine trials for pancreatic cancer?

Support Group: Pancreatic Cancer

Posted: Oct 3, 2023

How concerned should I be with CEA of < 2 and CA19-9 OF 25?Just found out...

https://connect.mayoclinic.org/comment/939721/

Discussion: Cyst on Pancreas?

Support Group: Pancreatic Cancer

Posted: Oct 1, 2023

I was about 4 months post-Whipple when a recurrence was identified on MRI at the Whipple...

https://connect.mayoclinic.org/comment/929529/

Discussion: Anyone here been diagnosed with peritoneal carcinomatosis?

Support Group: Pancreatic Cancer

Posted: Sep 13, 2023

I agree. Signatera test is another data point, of which we have very few, without scans...

https://connect.mayoclinic.org/comment/927155/

Discussion: CA 19-9 and pancreatic cancer: What do the numbers mean?

Support Group: Pancreatic Cancer

Posted: Sep 9, 2023

@lvtexas , Did they get enough malignant tissue from the biopsy to "build" a Signatera test?...

https://connect.mayoclinic.org/comment/926692/

Discussion: CA 19-9 and pancreatic cancer: What do the numbers mean?

Support Group: Pancreatic Cancer

Posted: Sep 8, 2023

That's "only" about a 30% increase in one month. The numbers are huge by comparison to...

https://connect.mayoclinic.org/comment/923504/

Discussion: CA-19 has elevated even more

Support Group: Pancreatic Cancer

Posted: Sep 3, 2023

@wellandwhole , Yes, I got a false negative from Galleri. My PC in particular seemed to...

https://connect.mayoclinic.org/comment/923293/

Discussion: Pancreatic Cancer Concerns: What tests are done for diagnosis?

Support Group: Pancreatic Cancer

Posted: Sep 3, 2023

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