Pancreatic Cancer Support Group

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Comments (494)

I do not believe that a natural enzyme supplement would cause anyone’s CA19-9 to increase. There...

https://connect.mayoclinic.org/comment/905123/

Discussion: What are other survivors doing about pancreatic enzymes replacement?

Support Group: Pancreatic Cancer

Posted: Jul 31, 2023

@crickard70, see these related discussions: - What are other survivors doing about pancreatic enzymes replacement? https://connect.mayoclinic.org/discussion/pancreatic-enzyme-replacement/...

https://connect.mayoclinic.org/comment/982917/

Discussion: Pancreas and spleen removal: how is life afterwards?

Support Group: Pancreatic Cancer

Posted: Dec 18, 2023

Hi - sorry to hear you are going through that. I had a total pancreatectomy about...

https://connect.mayoclinic.org/comment/1456563/

Discussion: Belly pain, cramps and painful gas months after Whipple: Thoughts?

Support Group: Pancreatic Cancer

Posted: Dec 8, 2025

Good Morning All! I was diagnosed with pancreatic adenocarcinoma in September 2022 - Stage 2b with...

https://connect.mayoclinic.org/comment/808663/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Feb 9, 2023

I'm sorry to hear that your mom's digestive issues continue. I'm glad that further investigations have...

https://connect.mayoclinic.org/comment/745796/

Discussion: Digestive issues and pancreatic cancer

Support Group: Pancreatic Cancer

Posted: Sep 5, 2022

I am one of 10% of the patient population that does not produce an enzyme in...

https://connect.mayoclinic.org/comment/884566/

Discussion: Husband had Whipple surgery and chemo: He's uncomfortable

Support Group: Pancreatic Cancer

Posted: Jun 24, 2023

All the Rx pancrealipase products are the same as far as the basic ingredients go of...

https://connect.mayoclinic.org/comment/878787/

Discussion: Is anyone taking Zenpep rather than Creon? If so what foods work?

Support Group: Pancreatic Cancer

Posted: Jun 15, 2023

Undigested fat from lack of lipase enzyme is not the only cause for floating stool. Eating...

https://connect.mayoclinic.org/comment/852481/

Discussion: How do you deal with Chronic Diarrhea and Pancreatic Cancer treatment?

Support Group: Pancreatic Cancer

Posted: May 1, 2023

Hello @bobthebichon1 and welcome to Mayo Clinic Connect. I appreciate you sharing about the enzyme that...

https://connect.mayoclinic.org/comment/1472699/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Jan 2 8:45am

Ask for mutations identified as a result of biopsy. Did they put him on a rx...

https://connect.mayoclinic.org/comment/1261062/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Mar 18, 2025

Hello @jules1962milkshake and welcome to Mayo Clinic Connect. I am glad to hear that you have...

https://connect.mayoclinic.org/comment/1442498/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Nov 19, 2025

@jjmacc Thanks for the reply. The question of pancreas recovery and enzyme replacement seems like a...

https://connect.mayoclinic.org/comment/1461802/

Discussion: To whipple or not to whipple? What is quality of life like after?

Support Group: Pancreatic Cancer

Posted: Dec 15, 2025

I was diagnosed with 5 pancreatic neuroendocrine tumors (not adenocarcinoma). They were up to 5 cm...

https://connect.mayoclinic.org/comment/1305343/

Discussion: Main Duct-IPMN: Conflicted about what to do

Support Group: Pancreatic Cancer

Posted: May 16, 2025

Pancreatic enzymes changed everything. My appetite got better, weight has stabilized, I could enjoy eating again....

https://connect.mayoclinic.org/comment/822178/

Discussion: What's recovery after distal pancreatectomy and splenectomy like?

Support Group: Pancreatic Cancer

Posted: Mar 7, 2023

@blackie17 sorry to hear about that. I grew up in Philly, so I know your area...

https://connect.mayoclinic.org/comment/1439103/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Nov 15, 2025

AMAZING price difference between CVS mail order and CVS retail price for Creon pancreatic enzyme supplement...

https://connect.mayoclinic.org/comment/915126/

Discussion: What are other survivors doing about pancreatic enzymes replacement?

Support Group: Pancreatic Cancer

Posted: Aug 18, 2023

I also experience this after eating certain foods, and bave found it to be gas. Taking...

https://connect.mayoclinic.org/comment/1082218/

Discussion: Does anyone else have digestive issues? Hard and distended abdomen?

Support Group: Pancreatic Cancer

Posted: Jun 7, 2024

Hello I’m 2 years post Whipple surgery and doing very well. I started taking Creon for...

https://connect.mayoclinic.org/comment/1452927/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Dec 4, 2025

As for the expense of pancreatic enzymes…..I have used Creon and am now using Zenpep. There...

https://connect.mayoclinic.org/comment/986745/

Discussion: What are other survivors doing about pancreatic enzymes replacement?

Support Group: Pancreatic Cancer

Posted: Dec 26, 2023

Just my experience - (after losing 40 pounds) I've been taking enzymes with every meal for...

https://connect.mayoclinic.org/comment/995297/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Jan 10, 2024