Pancreatic Cancer Support Group

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Comments (491)

All the zenpep does is provide the mechanism for the adsorption of nutrients out of the...

https://connect.mayoclinic.org/comment/1329164/

Discussion: What to eat after the Whipple

Support Group: Pancreatic Cancer

Posted: Jun 17, 2025

I had my Whipple six months ago. I have also noticed that certain foods give me...

https://connect.mayoclinic.org/comment/1189948/

Discussion: Has anyone experienced bloating?

Support Group: Pancreatic Cancer

Posted: Dec 13, 2024

I had a Whipple at Mayo Clinic nearly 12 years ago and have been on a...

https://connect.mayoclinic.org/comment/208576/

Discussion: What are other survivors doing about pancreatic enzymes replacement?

Support Group: Pancreatic Cancer

Posted: Jul 14, 2018

Sometimes no growth:no shrinkage can be due to necrosis in the tumor. However with his elevated...

https://connect.mayoclinic.org/comment/1394962/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Sep 17, 2025

I don't know where you live, but the cyst should be tested for genetic cancer markers....

https://connect.mayoclinic.org/comment/1231496/

Discussion: Cyst on Pancreas?

Support Group: Pancreatic Cancer

Posted: Feb 7, 2025

Robee, Thank you for sharing I am also inoperable and had sbrt at miami cancer institute...

https://connect.mayoclinic.org/comment/822273/

Discussion: 2 questions: Interpretation of CA19-9. SBRT methods.

Support Group: Pancreatic Cancer

Posted: Mar 7, 2023

Hi, Sherry, Thanks so much for your response! I was thinking I might ask about enzymes....

https://connect.mayoclinic.org/comment/817499/

Discussion: What's recovery after distal pancreatectomy and splenectomy like?

Support Group: Pancreatic Cancer

Posted: Feb 26, 2023

There are patient assistance programs for the Rx brands of pancrealipase. They are all close in...

https://connect.mayoclinic.org/comment/806355/

Discussion: What are other survivors doing about pancreatic enzymes replacement?

Support Group: Pancreatic Cancer

Posted: Feb 4, 2023

Higher concentration of the enzymes. Much less $$ than Creon and ZenPep

https://connect.mayoclinic.org/comment/805060/

Discussion: What are other survivors doing about pancreatic enzymes replacement?

Support Group: Pancreatic Cancer

Posted: Feb 1, 2023

Please don’t fear it. Especially if your doctor is well experienced with the lap equipment. As...

https://connect.mayoclinic.org/comment/803346/

Discussion: What's recovery after distal pancreatectomy and splenectomy like?

Support Group: Pancreatic Cancer

Posted: Jan 29, 2023

I was diagnosed November 16, 2022 when I developed jaundice. I had a stent, ERCP, and,...

https://connect.mayoclinic.org/comment/786141/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Dec 18, 2022

Hi, I read your story with interest. I had an MRCP in August that shows both...

https://connect.mayoclinic.org/comment/766225/

Discussion: MRI MRCP - Cyst (IPMN) - Newbie

Support Group: Pancreatic Cancer

Posted: Oct 27, 2022

My Alk. Phos. has been elevated since the beginning of Chemo post Whipple. The other liver...

https://connect.mayoclinic.org/comment/714238/

Discussion: Liver mets and liver blood tests for pancreatic cancer recurrence?

Support Group: Pancreatic Cancer

Posted: Jun 4, 2022

I was told my pancreas not making enzymes. doctor ordered the very expense enzymes and I...

https://connect.mayoclinic.org/comment/678008/

Discussion: What are other survivors doing about pancreatic enzymes replacement?

Support Group: Pancreatic Cancer

Posted: Feb 5, 2022

Thanks for asking, here is the CRAZY thing, Mayo sent my father in law home to...

https://connect.mayoclinic.org/comment/289460/

Discussion: Recent diagnosis of pancreatic cancerous tumor - awaiting PET

Support Group: Pancreatic Cancer

Posted: Feb 24, 2020

it's been almost 2 years since my whipple, and am still trying to figure it out....

https://connect.mayoclinic.org/comment/291993/

Discussion: Struggling to eat with pancreatic cancer: How do you manage?

Support Group: Pancreatic Cancer

Posted: Feb 7, 2020

I guess I am the only one who has not had any trouble eating. I have...

https://connect.mayoclinic.org/comment/1151404/

Discussion: What are we looking at?

Support Group: Pancreatic Cancer

Posted: Oct 3, 2024

I had a pylorus preserving Whipple procedure, meaning none of my stomach was removed. Relatively little...

https://connect.mayoclinic.org/comment/1143910/

Discussion: Is anyone taking Zenpep rather than Creon? If so what foods work?

Support Group: Pancreatic Cancer

Posted: Sep 19, 2024

@tww60223, you may find further tips regarding weight loss and enzymes in these related discussions (even...

https://connect.mayoclinic.org/comment/1111077/

Discussion: Severe weight loss with pancreatic cancer: What can be done?

Support Group: Pancreatic Cancer

Posted: Jul 24, 2024

Thank you for the information. A few things to note. I am already diabetic. And I...

https://connect.mayoclinic.org/comment/1093629/

Discussion: Why surgery first vs chemo/radiarion first?

Support Group: Pancreatic Cancer

Posted: Jun 24, 2024

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