Pancreatic Cancer Support Group

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Comments (494)

I too struggle with gas since my distal pancreatectomy with splenectomy in early January, 2023. I...

https://connect.mayoclinic.org/comment/909030/

Discussion: Surgery for pancreatic cancer and gas

Support Group: Pancreatic Cancer

Posted: Aug 7, 2023

No I finished 12 rounds of chemo and 3 weeks of radiation. I take Creon enzymes...

https://connect.mayoclinic.org/comment/907709/

Discussion: Diarrhea frequently during Chemotherapy

Support Group: Pancreatic Cancer

Posted: Aug 4, 2023

Thanks for response. Are you still undergoing chemo treatments and are you taking any enzymes?

https://connect.mayoclinic.org/comment/907708/

Discussion: Diarrhea frequently during Chemotherapy

Support Group: Pancreatic Cancer

Posted: Aug 4, 2023

My point being, of which you got lost on, is that you are still eating some...

https://connect.mayoclinic.org/comment/906488/

Discussion: What are other survivors doing about pancreatic enzymes replacement?

Support Group: Pancreatic Cancer

Posted: Aug 2, 2023

I also take plant based digestive enzymes. I don’t rely on JUST papaya. It is a...

https://connect.mayoclinic.org/comment/905700/

Discussion: What are other survivors doing about pancreatic enzymes replacement?

Support Group: Pancreatic Cancer

Posted: Aug 1, 2023

I, too, experienced months with no enzymes. My oncologist was horrified. Finally I was prescribed Zenpep,...

https://connect.mayoclinic.org/comment/901644/

Discussion: Post Whipple Surgery incontinence - Underwear?

Support Group: Pancreatic Cancer

Posted: Jul 24, 2023

Try eating fresh papaya. Yes, fresh fruit! It is naturally occurring in all these synthetic digestive...

https://connect.mayoclinic.org/comment/896641/

Discussion: What are other survivors doing about pancreatic enzymes replacement?

Support Group: Pancreatic Cancer

Posted: Jul 16, 2023

I found an interesting article about overuse/abuse of Imodium here: https://www.addictioncenter.com/drugs/over-the-counter-drugs/loperamide-addiction-abuse/ Some Fecal Incontinence treatment options...

https://connect.mayoclinic.org/comment/892228/

Discussion: Post Whipple Surgery incontinence - Underwear?

Support Group: Pancreatic Cancer

Posted: Jul 8, 2023

I did OK on 12 rounds of Folfirinox before Whipple, and just finished my 12th round...

https://connect.mayoclinic.org/comment/887888/

Discussion: Stage IV

Support Group: Pancreatic Cancer

Posted: Jun 30, 2023

Thanks for all the information. Every day is a challenge!, especially difficult during the week of...

https://connect.mayoclinic.org/comment/878656/

Discussion: Is anyone taking Zenpep rather than Creon? If so what foods work?

Support Group: Pancreatic Cancer

Posted: Jun 14, 2023

@countiss88, how are you doing? Did you find out more about the cause of your high...

https://connect.mayoclinic.org/comment/876561/

Discussion: Anyone have high lipase and amylase before diagnosis?

Support Group: Pancreatic Cancer

Posted: Jun 11, 2023

Things I can expect after my husband's Whipple Surgery or need .Have enzymes stocked .Depends needed...

https://connect.mayoclinic.org/comment/870210/

Discussion: If you had Whipple surgery, what are you eating or not eating?

Support Group: Pancreatic Cancer

Posted: Jun 1, 2023

Exactly! Being alive is what matters! I am also on Creon, b/c most of my pancreas...

https://connect.mayoclinic.org/comment/866063/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 24, 2023

Thanks very much for the background information and sharing tumor size. Three weeks ago a 1.8...

https://connect.mayoclinic.org/comment/859417/

Discussion: Husband had Whipple surgery and chemo: He's uncomfortable

Support Group: Pancreatic Cancer

Posted: May 13, 2023

Thanks for the info on Creon. I used to take enzymes - for quite a while...

https://connect.mayoclinic.org/comment/857820/

Discussion: Husband had Whipple surgery and chemo: He's uncomfortable

Support Group: Pancreatic Cancer

Posted: May 10, 2023

I had lost about 40 lbs prior to diagnosis of stage 3 pancreatic cancer. I had...

https://connect.mayoclinic.org/comment/852947/

Discussion: New Cancer Patient Managing Pain Issues

Support Group: Pancreatic Cancer

Posted: May 2, 2023

So sorry to hear but Stage 1 pancreatic cancer has more treatment options than Stage 3-4....

https://connect.mayoclinic.org/comment/848814/

Discussion: Prognosis Stage 1 chose not to have treatment: What can I expect?

Support Group: Pancreatic Cancer

Posted: Apr 24, 2023

Thank you for responding and glad this is helping you and continues to help. I was...

https://connect.mayoclinic.org/comment/829217/

Discussion: Possible Creon side effects: What helped you?

Support Group: Pancreatic Cancer

Posted: Mar 20, 2023

Robee, Thank you for sharing I am also inoperable and had sbrt at miami cancer institute...

https://connect.mayoclinic.org/comment/822273/

Discussion: 2 questions: Interpretation of CA19-9. SBRT methods.

Support Group: Pancreatic Cancer

Posted: Mar 7, 2023

Hi, Sherry, Thanks so much for your response! I was thinking I might ask about enzymes....

https://connect.mayoclinic.org/comment/817499/

Discussion: What's recovery after distal pancreatectomy and splenectomy like?

Support Group: Pancreatic Cancer

Posted: Feb 26, 2023