Support Groups

Ostomy & J-Pouch Support Group

Lock icon Public Support Group
Clear Search
450 total results
Discussions (36)
My ostomy leakage solution
After an illosomy last Jan, I spent over a year struggling to eliminate leaks. My home nurse and several pouch manufactures tried to make useful...
Support Group: Ostomy & J-Pouch
Last active: May 18 10:53am
Has anyone had personal experience with rectovaginal fistula repair?
After surgery in August for hemorrhoids and rectal prolapse I was left with fecal incontinence. Soon after going home from the hospital I noticed fecal...
Support Group: Ostomy & J-Pouch
Last active: Jun 24 1:39pm
Has anyone taken Entyvio for pouchitis?
Have J-pouch and now with pouchitis. Finished chemo for lymphoma last summer. What is your experience with entyvio?
Support Group: Digestive Health
Last active: Jul 1, 2025
The base of stoma covered by wafer: Remedy?
I changed my pouch today. I think the wafer is covering the base of my stoma. Will this be a problem?
Support Group: Ostomy & J-Pouch
Last active: May 20, 2024
Leaky appliance after sex
Does anyone else have problems with it leaking/failing after sex? I empty right before and fold it up into Coloplast pouch during but usually within...
Support Group: Ostomy & J-Pouch
Last active: Apr 12, 2024
What is the best way to clean around an ileostomy stoma?
I have been using Origins Checks and Balances. It is intended to be a face wash. It is easy to rinse off and leaves the...
Support Group: Ostomy & J-Pouch
Last active: Feb 24 7:19am
Urostomy equipment question
I use Hollister urostomy pouch 8414 and for overnight I use Bard Urinary Drainage Bag. My supplier Edgepark informs me that the Urostomy drain tube...
Support Group: Ostomy & J-Pouch
Last active: Oct 30, 2025
Ileostomy output
What is normal output from an ileostomy? I need to empty my pouch 6-8 times a day. In addition, I need to open an Ez-vent...
Support Group: Ostomy & J-Pouch
Last active: Oct 13, 2025
Swimming Melted the Brava ostomy protective seal
I went swimming in a chlorinated pool for the first time. The next day saw my protective seal was melted in my pouch. Has anyone...
Support Group: Ostomy & J-Pouch
Last active: Jan 21, 2024
Sleeping with Ostomy
I have had an Ostomy for 26 years.Recently I have had to get up 2-3 times at night to empty my pouch. Any suggestions on...
Support Group: Ostomy & J-Pouch
Last active: Jan 21, 2024
Changed barrier design and now leaks. What can I do?
For years I have been using the Hollister 14903 barrier and pouch system for my colostomy. With my last shipment they changed the design but...
Support Group: Ostomy & J-Pouch
Last active: Feb 10, 2025
I have problems with pouchitis: Any long-term solution?
Hello, I have problems with pouchitis. I had my stoma closed in August last year. Since then, the inflammation of the pouch has not subsided....
Support Group: Digestive Health
Last active: Oct 31, 2022
Colon reconnection: Tough decision. Is it worth it?
My doctor scoped me this week and said I was ready to reconnect after almost two years since my colon was removed because of colitis/crohns....
Support Group: Ostomy & J-Pouch
Last active: Jul 3, 2025
Anyone with radiation enteritis? Currently on elemental liquid diet
Forty three years ago I had radiation following a complete hysterectomy. Then, 18 years ago I had my colon removed and added J-Pouch. Have had...
Support Group: Ostomy & J-Pouch
Last active: Dec 8, 2025
How to stay warm with an Ileostomy?
How to stay warm with an Ileostomy. My Stoma is about 1/2" too low which causes me to wear suspenders. The suspenders are uncomfortable across...
Support Group: Ostomy & J-Pouch
Last active: Jan 23, 2025
Has anyone on this group gotten a Sacral Nerve Stimulation implanted?
I have been dealing with night time incontinence for the past 2 years, it started randomly. It is only while asleep, I tend to get...
Support Group: Ostomy & J-Pouch
Last active: Jan 16 9:37am