Ostomy & J-Pouch Support Group

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Comments (230)

Hi there, sorry to be late replying, and you may have already had your procedure. If...

https://connect.mayoclinic.org/comment/767780/

Discussion: Ileostomy or stoma scope: What can I expect?

Support Group: Ostomy & J-Pouch

Posted: Oct 31, 2022

I had a loop converted to straight after enduring a year and a half of excruciating...

https://connect.mayoclinic.org/comment/1279875/

Discussion: Anyone had a loop ileostomy converted to one single end?

Support Group: Ostomy & J-Pouch

Posted: Apr 12, 2025

Best wishes to you in your new life with an ostomy. I've had an ileal conduit...

https://connect.mayoclinic.org/comment/957424/

Discussion: Bladder Cancer: How is a urostomy connected?

Support Group: Ostomy & J-Pouch

Posted: Nov 1, 2023

I would contact surgeon about the amount of fluid leaking from the belly button. That would...

https://connect.mayoclinic.org/comment/1066950/

Discussion: Ostomy bag won't stick - fluid from belly button

Support Group: Ostomy & J-Pouch

Posted: May 13, 2024

I had so many leaks for the first couple of months, frustrating isn't a strong enough...

https://connect.mayoclinic.org/comment/328849/

Discussion: Ileostomy leaks and skin care

Support Group: Ostomy & J-Pouch

Posted: Jan 1, 2021

@mscheib2 I'm not aware of any product that is 100% breathable, although some of the tapes...

https://connect.mayoclinic.org/comment/1516122/

Discussion: Reactive skin & ostomy supplies: Are there always solutions?

Support Group: Ostomy & J-Pouch

Posted: Feb 27 8:26pm

What do you mean by 'skin' prep? I use Coloplast all the time and I do...

https://connect.mayoclinic.org/comment/1091015/

Discussion: on coloplast pouches

Support Group: Ostomy & J-Pouch

Posted: Jun 21, 2024

I would go along with the remeasure stoma and cut wafer appropriately. Are your wafers precut...

https://connect.mayoclinic.org/comment/1071504/

Discussion: The base of stoma covered by wafer: Remedy?

Support Group: Ostomy & J-Pouch

Posted: May 20, 2024

Hi @blinken, I see this is your first post since joining. Welcome to Mayo Clinic Connect....

https://connect.mayoclinic.org/comment/316323/

Discussion: New Ostomy: Any help would be appreciated

Support Group: Ostomy & J-Pouch

Posted: Nov 12, 2020

Hi @katydid77, The best way to care for your peri-stomal skin is with water. When you...

https://connect.mayoclinic.org/comment/310001/

Discussion: Urostomy: How do you care for skin under the wafer?

Support Group: Ostomy & J-Pouch

Posted: May 9, 2020

I just had a thought… What if you used a pediatric urostomy pouch Over the leaking...

https://connect.mayoclinic.org/comment/1070829/

Discussion: Ostomy bag won't stick - fluid from belly button

Support Group: Ostomy & J-Pouch

Posted: May 19, 2024

@lmiller116, welcome. You're asking great questions. I hope you saw the helpful tips from fellow ostomates...

https://connect.mayoclinic.org/comment/1234037/

Discussion: New to the Ileostomy world: Any tips?

Support Group: Ostomy & J-Pouch

Posted: Feb 10, 2025

We used a disposable colostomy bag system, two piece, with bags that snap off and on....

https://connect.mayoclinic.org/comment/992935/

Discussion: Questions about managing a Stoma Pouch

Support Group: Ostomy & J-Pouch

Posted: Jan 7, 2024

I would think that unless it continues on and on, it's not a problem. Could you...

https://connect.mayoclinic.org/comment/1459773/

Discussion: Swollen stoma: Do I need to worry about this?

Support Group: Ostomy & J-Pouch

Posted: Dec 13, 2025

I totally understand about his worry, since I’ve had urostomy 41/2 years. It will happen; have...

https://connect.mayoclinic.org/comment/290612/

Discussion: Neobladder Replacement vs. Stoma

Support Group: Ostomy & J-Pouch

Posted: Feb 29, 2020

What is your method for changing your ostomy? I use stoma powder when needed, skin barrier...

https://connect.mayoclinic.org/comment/1104290/

Discussion: Solving Leaking Pouch Problem

Support Group: Ostomy & J-Pouch

Posted: Jul 12, 2024

I've had a urostomy for now 5+ years. I was given the neobladder option and elected...

https://connect.mayoclinic.org/comment/290617/

Discussion: Neobladder Replacement vs. Stoma

Support Group: Ostomy & J-Pouch

Posted: Mar 2, 2020

I am calling the part attached to the pouch as the wafer. This is a one...

https://connect.mayoclinic.org/comment/310011/

Discussion: Urostomy: How do you care for skin under the wafer?

Support Group: Ostomy & J-Pouch

Posted: May 17, 2020

Colostomy crash course for me. In 2013 I had a perf colon, emergency surgery removal of...

https://connect.mayoclinic.org/comment/169510/

Discussion: Ostomy: Adapting to life after colostomy, ileostomy or urostomy

Support Group: Ostomy & J-Pouch

Posted: Sep 15, 2018

@annedallas I use Edgepark too. Look into the one piece Hollister 8414, that is a one...

https://connect.mayoclinic.org/comment/1428792/

Discussion: How did you decide which Urostomy Supply Company to use?

Support Group: Ostomy & J-Pouch

Posted: Nov 2, 2025

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