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Neuropathy Support Group

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Chemo PN pain spreading
I’ve been trying to correct CIPN for 7 or 8 months. Not a long time compared to many in this very helpful board I know....
Support Group: Neuropathy
Last active: Feb 24, 2025
Sympathetic lumber block for small fibre neuropathy?
My pain specialist has suggested a sympathetic lumber block for my "pain" which she thinks is similar to CRPS. But I have googled and think...
Support Group: Neuropathy
Last active: Aug 9, 2025
Genital sensations that stimulate pain/unwanted feeling of orgasm
I have been experiencing an unwanted feeling of sexual arousal/mild pain in the genital area. It comes and goes but most of the time it...
Support Group: Neuropathy
Last active: Sep 7, 2024
What Things do I need to know when buying scooter?
My husband has a chance to buy a used folding 4 wheel scooter. 30lbs. $750.00 from a long time friend who’s wife used it. He...
Support Group: Neuropathy
Last active: Nov 29, 2022
Looking for others dealing with neuropathy from ankles to knees.
When I lay down or sometimes just when I'm sitting, I have pain from my ankles to just above my knees--sometimes it is a pressure...
Support Group: Neuropathy
Last active: Mar 16, 2025
Going on Vacation with Neuropathy
I have neuropathy in my feet with balance issues so using a walker is a must for me. I would dearly love to go on...
Support Group: Neuropathy
Last active: Aug 7, 2025
Anyone have experience with Baclofen for back and neuropathy pain?
My doctor put me on Baclofen to treat severe muscle tightness in my back. I have been on 5mg twice a day for about four...
Support Group: Neuropathy
Last active: Dec 28, 2023
My legs getting weaker and weaker
I have literally experienced deterioration with weired sensations on daily basis. The SFN hit me 7 years ago initially with some burning sensations in my...
Support Group: Neuropathy
Last active: Apr 28, 2024
The best socks for neuropathy
I have idiopathic neuropathy in my hands and feet. Nobody knows why or seems to care other than putting me on gabapentin, which makes me...
Support Group: Neuropathy
Last active: Oct 11, 2025
Non-diabetic neuropathy
Before I tell my story, let me state that I was a daily wine drinker for several years. My neuropathy started in my feet in...
Support Group: Neuropathy
Last active: Jul 20, 2025
Please share success with diet, exercise and footwear.
Hi everyone. I'm new to this group. I was recently diagnosed with hereditary idiopathic nueropathy. I'm 58 and became concerned when I was brushing my...
Support Group: Neuropathy
Last active: Jan 31 1:04pm
Weakness in Legs Part Two
I had previously began a conversation on sudden leg weakness with diabetic neuropathy in the feet. Yesterday I was able to walk twice with no...
Support Group: Neuropathy
Last active: Sep 10, 2024
I Have PN In Legs. Now my face, arms scalp feel buggy too. Neuropathy?
Hello everyone, I feel like I have tiny bugs walking on my scalp, face, and arms. It’s driving me nuts. I keep checking for bugs,...
Support Group: Neuropathy
Last active: May 29, 2023
Neuropathy after TKR: I'm 68 and fearful of future
I had knee replacement 8 weeks ago. This seem to accelerate neuropathy in both lower legs. Numbness, feels like feet are freezing, legs feel heavy...
Support Group: Neuropathy
Last active: Oct 22, 2023
Diagnosed with small fibre neuro
Hi I was diagnosed just recently with SFN after a nightmare issue with my feet . This has improved however I keep having episodes of...
Support Group: Neuropathy
Last active: Jan 16 2:18pm
Can Sugar increase symptoms of neuropathy
I am 51 & was diagnosed with PN in July of last year. I am diabetic, but my A1C has never been over 8.9 &...
Support Group: Neuropathy
Last active: Mar 11, 2025
Flaming Swords and Fireworks
Have you ever felt like there were flaming swords jabbing up through your feet into your legs 6 or 8 times per second - or...
Support Group: Neuropathy
Last active: Aug 26, 2019
Maybe not neuropathy causing hand and arm weakness and numbness
An upper extremity EMG today revealed that the loss of strength and flexibility in hands and lower arms plus loss of some feeling in hands...
Support Group: Neuropathy
Last active: Nov 11, 2025
"Dents" in leg muscles
Developing dents in muscles of lower right leg - when I rub my leg, feel like a there's a hole in muscle and it is...
Support Group: Neuropathy
Last active: Jan 18 5:05pm
My neuropathy experience
My experience started approx. 15 years ago when I noticed that the tip of my right big toe was numb. Since that time it has...
Support Group: Neuropathy
Last active: Oct 26, 2024