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Neuropathy Support Group

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Uncontrollable foot and leg movements
My feet and legs are in constant motion while seated or laying down. It all stops when I close my eyes and while I’m asleep....
Support Group: Neuropathy
Last active: Jan 23 11:02am
Can the diagnosis still be CIDP with a normal spinal tap?
My Mom has been having severe neuropathy in her feet and right hand. She’s had a Nerve Conduction Study. The NCS showed a form of...
Support Group: Neuropathy
Last active: May 31 10:28am
Nitrous oxide booster , seems to increase pain
I cycle daily in attempt to supply increased blood flow for foot and ankle neuropathy. I have started to take a daily nitrous oxide booster...
Support Group: Neuropathy
Last active: Jun 13, 2025
Nerve blocks
Has anyone had success with a nerve block in spine/neck for PN? I saw a few older comments on discussion board. I am afraid of...
Support Group: Neuropathy
Last active: Sep 22, 2024
Have you tried the new Protocol 525 product for neuropathy relief?
I have used the original version of the Protocol 525 product (https://theprotocolworks.com/) since 2016. I have idiopathic small fiber peripheral neuropathy with the only symptom...
Support Group: Neuropathy
Last active: Sep 24 7:31pm
Different types of Charcot-Marie-Tooth disease (CMT)
My adult son is in the initial process of CMT diagnosis ( referral to neurologist by a Podiatrist and a Psychiatrist). He also definitely has...
Support Group: Neuropathy
Last active: Mar 4 10:06am
Have you tried DRG dorsal root ganglion therapy for PN?
I have idiopathic peripheral neuropathy of my toes on both feet. I have tried lyrica and gabepente and had a anaphylaxis. Now on Cymbalta long...
Support Group: Neuropathy
Last active: Jul 15, 2023
Has anyone tried Dr. Tennants Protocol?
I have severe small fiber neuropathy in my feet, legs, hands, and arms. I also have severe neck and back pain. I have followed Dr....
Support Group: Neuropathy
Last active: Dec 7, 2023
Supplements - What helps nerve pain and/or neuropathy?
I was diagnosed earlier this year with "Sensorimotor Peripheral Neuropathy" over my whole body, though I am not yet showing symptoms everywhere. I do have...
Support Group: Neuropathy
Last active: Jan 3 8:40am
Small Fiber Neuropathy burning?
Hi everyone! I hope you’re all doing well with the quarantine. We are hanging in there!! I have a question about small fiber neuropathy. As...
Support Group: Neuropathy
Last active: Sep 21 8:00am
What to expect with PN in hands
I have had PN in feet diagnosed in May but only this past week experienced more obvious symptoms in my hands: loss of sense in...
Support Group: Neuropathy
Last active: Aug 22, 2023
Just Diagnosed with Small Fiber Neuropathy
Hi . I am a bit scared here. Had positive skin biopsy for small fiber. What tests will the Neuro ask for to find causation?...
Support Group: Neuropathy
Last active: May 1 8:25am
Spacey feeling
I have burning feet and painful legs that has gotten slightly worse over sudden onset the last 10 months. The worse now is this spacey...
Support Group: Neuropathy
Last active: Dec 9, 2022
Idiopathic Polyneuropathy
Seems like we are all similarly suffering from this condition (Neuropathy) but all in so many different ways. Most seem to have pain and then...
Support Group: Neuropathy
Last active: Nov 22, 2025
Neuropathy in the brain from post MVD operation
Neuropathy in the brain from post MVD operation Hi I’m new to the group, I do have neuropathy in my feet and hands for a...
Support Group: Neuropathy
Last active: Jun 21, 2022
Neuropathy suddenly got worse. Not sure what to do.
I’ve had neuropathy in my feet for years. It’s like they fell asleep and won’t wake up. About 8 years ago my pinky finger went...
Support Group: Neuropathy
Last active: Jan 18, 2025
Familiar with Real Wave Centers in Georgia
I was a satisfied patient at New Wave in Gainesville GA in 2023-24 and completed all the sessions in a few months. It was a...
Support Group: Neuropathy
Last active: Jan 3, 2025
Do leg compression sleeves help neuropathy
I have been going to PT for back pain and balance. I have neuropathy in my feet and legs possibly from lower back issues. I...
Support Group: Neuropathy
Last active: Jul 19, 2024
Electric shocks from peripheral neuropathy
I was diagnosed with idiopathic pn from vitamin deficiencies caused by my ibs. I’ve been told and read conflicting info on whether the electric shocks...
Support Group: Neuropathy
Last active: Sep 20, 2023
Repatha
I was advised by my neurologist to stop the statin, Atorvastatin as it could cause neuropathy. I had taken it for years. Now my LDL...
Support Group: Neuropathy
Last active: Sep 8 5:48pm