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Discussions (32)
Comments (234)
Comment
I have had two surgeries for nets. The first was in my small intestine, so had...
https://connect.mayoclinic.org/comment/875909/
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Discussion:
Treatments for Carcinoids
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 10, 2023
Comment
I’m home now after surgery and 8 nights in hospital, mostly in the ICU. It was...
https://connect.mayoclinic.org/comment/844203/
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Discussion:
NETs: Scheduled for small intestine resection: What to expect?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 16, 2023
Comment
Looking back, I had symptoms of severe diarrhea 5 years before diagnosis. Nightime diarrhea including incontinence....
https://connect.mayoclinic.org/comment/1202313/
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Discussion:
Anyone have a neuroendocrine tumor (NET) in the spine?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 2 9:52am
Comment
According to the article “Multiple Primary Tumors Over a Lifetime” on CancerNetwork.com, “A cancer of a...
https://connect.mayoclinic.org/comment/810100/
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Discussion:
determination of primary site of NET
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 11, 2023
Comment
I had 12" of my small intestine removed 12 years ago because of carcinoid tumors, at...
https://connect.mayoclinic.org/comment/752921/
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Discussion:
Just got the news… stage 2 Carcinoid tumors
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Sep 23, 2022
Comment
Hi helloitsme, I'm glad you reached out. We were both very scared about the surgery. It...
https://connect.mayoclinic.org/comment/893237/
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Discussion:
NETs: Scheduled for small intestine resection: What to expect?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 10, 2023
Comment
@sophiarose: I am awaiting my 4th PRRT early December 2024. How is your affected arm? What...
https://connect.mayoclinic.org/comment/1161212/
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Discussion:
PRRT side effects and results
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Oct 22, 2024
Comment
My experience: After discovery in Mar./2023 of a Grade 2, Small intestine NETs that metastasized to...
https://connect.mayoclinic.org/comment/1061064/
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Discussion:
Updating about My Lanreotide Injections & CT Scan
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 2, 2024
Comment
Good morning to (hello it’s me) I was diagnosed Dec. 2022.. started in small intestine and...
https://connect.mayoclinic.org/comment/851326/
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Discussion:
Just diagnosed: Metastatic NETs. Treatment?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 29, 2023
Comment
@firepowr if you don’t mind me asking, what have they said about yours that is considered...
https://connect.mayoclinic.org/comment/813521/
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Discussion:
Lost with no confirmation of NETs origin: Innumerable liver lesions
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 18, 2023
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