Neuroendocrine Tumors (NETs) Support Group

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Comment

@joannem Hello and welcome to Mayo Connect. Yes, carcinoids are an unusual type of cancer and...

https://connect.mayoclinic.org/comment/110438/

Discussion: Carcinoid Syndrome & Autoimmune Diseases.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 14, 2016

Comment

First time here and would appreciate any info from folks with a similiar issue. I had...

https://connect.mayoclinic.org/comment/811885/

Discussion: Carcinoid tumor of the appendix.PET scan results

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 15, 2023

Comment

My Chromogranin has never been out of normal range. It's not very high out of normal,...

https://connect.mayoclinic.org/comment/809618/

Discussion: Lanreotide Manufacturers: anyone have experience with either?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 10, 2023

Comment

Could I please ask how high your Chromogranin A levels actually where?

https://connect.mayoclinic.org/comment/805031/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 1, 2023

Comment

I was diagnosed with Carcinoid in 2007. The mass had grown around several loops of my...

https://connect.mayoclinic.org/comment/804478/

Discussion: Lanreotide Manufacturers: anyone have experience with either?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 31, 2023

Comment

I had high Chromograni A before whipple surgery to remove a Nuroendocrine gastrinoma tumour in the...

https://connect.mayoclinic.org/comment/804136/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 31, 2023

Comment

Anyone on here with a high Chromogranin A blood results. Finding it difficult to get answers....

https://connect.mayoclinic.org/comment/801937/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 26, 2023

Comment

I undergone whipple surgery of pancreatic tumor 9 month back.after 1 months of surgery the chromogranin...

https://connect.mayoclinic.org/comment/795947/

Discussion: What topics do you want for the Neuroendocrine Support Group?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 12, 2023

Comment

Mark/Sharon, The Chromogranin A blood specimen were sent to: ARUP Laboratories 500 Chipeta Way Salt Lake...

https://connect.mayoclinic.org/comment/792336/

Discussion: Lanreotide Manufacturers: anyone have experience with either?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 4, 2023

Comment

A 10 cm tumor was incidentally discovered on CT Scan in the fall of 2016. Was...

https://connect.mayoclinic.org/comment/790795/

Discussion: Advanced metastatic paraganglioma diagnosis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 31, 2022

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