Neuroendocrine Tumors (NETs) Support Group

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Comment

Hi Mark, regarding your question about the Chromogranin A (CGA) test, I have found some information,...

https://connect.mayoclinic.org/comment/745379/

Discussion: Recommendation for Seattle Cancer Care Alliance MDs Treating NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 4, 2022

Comment

I am being evaluated for a host of symptoms...including flushing, spiking BP that is episodic, fast...

https://connect.mayoclinic.org/comment/673460/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 21, 2022

Comment

Hi everyone, I am newly diagnosed with a pancreatic NET, 11 cm in the body &...

https://connect.mayoclinic.org/comment/664794/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 23, 2021

Comment

My symptoms have lessened with a restricted diet-low histamine diet & gluten-free. Also, I continue to...

https://connect.mayoclinic.org/comment/643483/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 8, 2021

Comment

Does anyone but me have fluctuating high Chromogranin-A levels and normal HIAA-5 and Gallium scan results?...

https://connect.mayoclinic.org/comment/622607/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 2, 2021

Comment

@rkklinger Thank you for your reply. My cancer is similar in that I first had a...

https://connect.mayoclinic.org/comment/1450639/

Discussion: Anyone had positive results from Lanreotide injections?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 1, 2025

Comment

Also, the result of a blood test, chromogranin A NG/mL, was very high (176.5 vs the...

https://connect.mayoclinic.org/comment/1345051/

Discussion: NET tumor of pancreas (1 cm) diagnosed

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 10, 2025

Comment

Hi. Thanks for all the information. My 5-HIAA Urine was 1.4 Calculated Total (E+NE) was 18....

https://connect.mayoclinic.org/comment/1333833/

Discussion: So many questions about wjether or not I have Carcinoid Cancer/NETS?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 23, 2025

Comment

Nothing that large....chromagranin is the blood marker. I'm NOT an oncologist. Could be because he had...

https://connect.mayoclinic.org/comment/1333573/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 23, 2025

Comment

Chromagranin? Daily pill? Thank you

https://connect.mayoclinic.org/comment/1332278/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 21, 2025