Neuroendocrine Tumors (NETs) Support Group

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Comment

That's great news! Thanks for updating us. I know you indicated that she has an oncologist...

https://connect.mayoclinic.org/comment/1360503/

Discussion: (Spouse)Supports Stage 2

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 31 7:47am

Comment

Hi, who iz your oncologist? I see Dr. Diane Reidy-Lagunes and Lindsay Juste (at 53rd Street)...

https://connect.mayoclinic.org/comment/812159/

Discussion: Scared - Suspected NET on tail of the pancreas

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 15, 2023

Comment

I have two carcinoid tumors on my liver and they have been there for many years....

https://connect.mayoclinic.org/comment/1111420/

Discussion: NET on liver: Question about treatments when no symptoms

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 25, 2024

Comment

Anyone diagnosed with DIPNECH? I’ve had 3 injections of Octreotide so far. I started having GI...

https://connect.mayoclinic.org/comment/1193098/

Discussion: DIPNECH (diffuse idiopathic pulmonary neuroendocrine cell hyperplasia)

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 18, 2024

Comment

Hello @pennypowell I'm glad to hear that she wants to see another oncologist. You mentioned that...

https://connect.mayoclinic.org/comment/799643/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 21, 2023

Comment

In addition to my chronic cough, I had issues with mucous and shortness of breath upon...

https://connect.mayoclinic.org/comment/1250966/

Discussion: DIPNECH diagnosis. Has anyone had radiation?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 5 11:07am

Comment

Did the doctors give you any thoughts on why the tumors were growing fast when you...

https://connect.mayoclinic.org/comment/1344033/

Discussion: Spreading NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 8 8:58pm

Comment

Hello @sophiarose I appreciate your reply to @dbmenger about your difficulties with Lanreotide and Octreotide. It...

https://connect.mayoclinic.org/comment/1249618/

Discussion: Anyone have side effects after Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 3 2:28pm

Comment

My husband started with emboliztion but I have read that PRRT is being considered as a...

https://connect.mayoclinic.org/comment/1087600/

Discussion: Pancreatic NETs: Looking to connect with anyone with insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 16, 2024

Comment

Hello @pattirushing I'm glad to hear that you have completed the initial treatment for the lung...

https://connect.mayoclinic.org/comment/847375/

Discussion: Anyone had surgery to remove typical carcinoids of the lung?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 22, 2023

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