Neuroendocrine Tumors (NETs) Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

508 total results

Comment

Hello @merenyc and welcome to the NET support group on Mayo Connect. There are other members...

https://connect.mayoclinic.org/comment/881988/

Discussion: Confused about diagnosis: Carcinoid tumor in rectal area

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 20, 2023

Comment

And in response to your question, above, Mayo found my tumor with a MRI, but followed...

https://connect.mayoclinic.org/comment/877813/

Discussion: Where can I find a carcinoid syndrome specialist in Florida?!

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 13, 2023

Comment

Of course I’m not a doctor, Kim’s case is after 9 months of chemo, she had...

https://connect.mayoclinic.org/comment/877443/

Discussion: Is it common to start on Lanreotide with no known tumors?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 12, 2023

Comment

@lizzyeastwood -- I didn't know you were going to Mayo. They do have a NETS program....

https://connect.mayoclinic.org/comment/861524/

Discussion: Should I see a NET specialist?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 17, 2023

Comment

My son who is in his early forties was diagnosed with NET in his pancreas. Surgery...

https://connect.mayoclinic.org/comment/860926/

Discussion: Interested in hearing people's experiences with PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 16, 2023

Comment

A couple of immediate suggestions, as we have all fought this battle for NET's. There is...

https://connect.mayoclinic.org/comment/856394/

Discussion: Diagnosed with Stage 4 pNET: What should I know?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 8, 2023

Comment

@helloitsme Lean on all of us for help, many of us have been on this journey...

https://connect.mayoclinic.org/comment/851636/

Discussion: Just diagnosed: Metastatic NETs. Treatment?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 29, 2023

Comment

@helloitsme I had my pre chemo visit at Mayo Phoenix yesterday. Had some blood work done...

https://connect.mayoclinic.org/comment/851513/

Discussion: Just diagnosed: Metastatic NETs. Treatment?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 29, 2023

Comment

Hi Michelle, I had a 2cm nonfunctioning pancreatic net on the tail of my pancreas as...

https://connect.mayoclinic.org/comment/845085/

Discussion: New diagnosis of NET: What should I know and do to plan?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 18, 2023

Comment

That's fantastic news! The CAP/TEM combo has also worked well for us also. We got 80%...

https://connect.mayoclinic.org/comment/844065/

Discussion: Keep Fighting

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 16, 2023

1
…
6
7
8
9
10
…
44

Digestive Health

Follow

19000

1 minute ago

Pancreatic Cancer

Follow

3724

34 minutes ago

Follow

8526

34 minutes ago

Follow

10459

34 minutes ago

Pancreatic Disorders

Follow

443

51 minutes ago