Neuroendocrine Tumors (NETs) Support Group

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I had a follow up with the Oncologist earlier this week. I inquired about a NET...

https://connect.mayoclinic.org/comment/835888/

Discussion: Newly diagnosed-Primary Malignant Neuroendocrine of Lung

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 1, 2023

Comment

@emma0444 I have copied our pathology report below for you. This is after surgery, after 9...

https://connect.mayoclinic.org/comment/835216/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 31, 2023

Comment

I have been ill. Wgt loss. Diarrhea, back pain. Nausea, cramping and my doc did Chromogranin...

https://connect.mayoclinic.org/comment/823464/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 9, 2023

Comment

My oncologist is affiliated with a "teaching" university. Follow up tests include Chromogranin testing and other...

https://connect.mayoclinic.org/comment/804687/

Discussion: What's your NETs treatment and surveillance protocol?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 1, 2023

Comment

Teresa: My wife Sharon has recently had a C/T which showed additional lesions in the liver...

https://connect.mayoclinic.org/comment/800327/

Discussion: Interested in hearing people's experiences with PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 22, 2023

Comment

I get tested for Chromogranin every 4 weeks. My last result was around 1000. It had...

https://connect.mayoclinic.org/comment/793083/

Discussion: Neuroendocrine tumor: What tests are used for diagnosis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 6, 2023

Comment

12/01/2022 Update for Sharon: Her recent Chromogranin level has spiked from the low 100's to 143....

https://connect.mayoclinic.org/comment/779552/

Discussion: Recommendation for Seattle Cancer Care Alliance MDs Treating NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 1, 2022

Comment

Hello @reallywells, I'm glad that you posted your question about your Chromogranin A test. I can...

https://connect.mayoclinic.org/comment/766811/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 29, 2022

Comment

ive had intermittent diarrhea and stomach pain for two years dr did chromogrnin a test that...

https://connect.mayoclinic.org/comment/762893/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 18, 2022

Comment

Hello @casualsuman. I'd like to join @colleenyoung in welcoming you to Connect. I've had surgeries for...

https://connect.mayoclinic.org/comment/760717/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 13, 2022

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