Neuroendocrine Tumors (NETs) Support Group

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Comment

If you don't mind sharing, how did you get your doctors to look for the mass...

https://connect.mayoclinic.org/comment/872269/

Discussion: Pheochromocytoma: Anyone being treated for an adrenal mass?

Support Group: Diabetes & Endocrine System

Posted: Jun 4, 2023

Comment

I had a follow up with the Oncologist earlier this week. I inquired about a NET...

https://connect.mayoclinic.org/comment/835888/

Discussion: Newly diagnosed-Primary Malignant Neuroendocrine of Lung

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 1, 2023

Comment

@emma0444 I have copied our pathology report below for you. This is after surgery, after 9...

https://connect.mayoclinic.org/comment/835216/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 31, 2023

Comment

Finding out you may have a net is a hard thing to deal with! Stay positive...

https://connect.mayoclinic.org/comment/1226616/

Discussion: New Diagnosis: husband's labs are all indicating NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 1, 2025

Comment

My chromogranin has been over 1200 for more than 3 years. Although I have been alarmed...

https://connect.mayoclinic.org/comment/1261911/

Discussion: Cromogranina A

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 19, 2025

Comment

My husband has been getting Lanreotide injections for 2 1/2 years after a)having surgery to remove...

https://connect.mayoclinic.org/comment/1332000/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 21, 2025

Comment

Chromagranin? Daily pill? Thank you

https://connect.mayoclinic.org/comment/1332278/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 21, 2025

Comment

Nothing that large....chromagranin is the blood marker. I'm NOT an oncologist. Could be because he had...

https://connect.mayoclinic.org/comment/1333573/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 23, 2025

Comment

Hi. Thanks for all the information. My 5-HIAA Urine was 1.4 Calculated Total (E+NE) was 18....

https://connect.mayoclinic.org/comment/1333833/

Discussion: So many questions about wjether or not I have Carcinoid Cancer/NETS?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 23, 2025

Comment

Also, the result of a blood test, chromogranin A NG/mL, was very high (176.5 vs the...

https://connect.mayoclinic.org/comment/1345051/

Discussion: NET tumor of pancreas (1 cm) diagnosed

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 10, 2025

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