Neuroendocrine Tumors (NETs) Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

191 total results

Comment

I'm in the same boat. Well differentiated, had small bowel resection, still have a mass and...

https://connect.mayoclinic.org/comment/1236191/

Discussion: I recently had surgery to remove NET in small intestine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 13 3:52pm

Comment

I should mention that my primary (origin) started in the small bowel and metastasized into my...

https://connect.mayoclinic.org/comment/1227757/

Discussion: Histotripsy near St. Louis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 2 1:21pm

Comment

Lanreotide monthly since dec 2023. NET currently stable after scan in May . Diagnosed in Oct...

https://connect.mayoclinic.org/comment/1104370/

Discussion: What is a normal range for Chromogranin A test? Mine was 99 in 2021.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 12, 2024

Comment

We sound very similar. Small bowel primary with mets to liver. Started octreotide after bowel resection....

https://connect.mayoclinic.org/comment/1218810/

Discussion: Clay colored bowels & diarrhea side effects with Octreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 22 9:23am

Comment

"What would you do?" you asked. I"m pretty much in the same situation. I still have...

https://connect.mayoclinic.org/comment/1227644/

Discussion: Cu-64 Dotatate PET results show no malignancy. What’s next?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 2 11:13am

Comment

Wow thats a lot to deal with at once. I've been dealing with it since 2020...

https://connect.mayoclinic.org/comment/1289339/

Discussion: New To NETS - Stage 4 / Grade 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 25 6:09am

Comment

I had a liver tumor biopsy in October even though the doctors and I all knew...

https://connect.mayoclinic.org/comment/795174/

Discussion: Bland embolization or transarterial chemoembolization (TACE)

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 11, 2023

Comment

Hello, I was diagnosed about 2 1/2 years ago, primary tumor was identified in the small...

https://connect.mayoclinic.org/comment/1317375/

Discussion: Neuroendocrine Carcinoma with Liver Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 31 2:20pm

Comment

@tgsenn70 & et al: so sorry you are in the position of choosing NET tumor treatment....

https://connect.mayoclinic.org/comment/1415807/

Discussion: I have a neuroendocrine tumour in the small bowel and liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: 1 day ago

Comment

Hello, Am Ayesha from Massachusetts, just diagnosed with small bowel carcinoma, 2 weeks ago. I have...

https://connect.mayoclinic.org/comment/765099/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 24, 2022

Follow

7269

2 minutes ago

Melanoma & Skin Cancer

Follow

626

20 minutes ago

Follow

9023

21 minutes ago

Follow

1668

42 minutes ago

Digestive Health

Follow

16580

4 hours ago