Neuroendocrine Tumors (NETs) Support Group

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Comment

Hello @cercare and welcome to the NETs support group on Mayo Connect. I can certainly understand...

https://connect.mayoclinic.org/comment/1463885/

Discussion: 1 yr 9 months post upper left lobectomy, shortness of breath

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 19, 2025

Comment

Hi I took glp1 ozempic almost 2yrs during this time nets tumor showed up in my...

https://connect.mayoclinic.org/comment/1468586/

Discussion: Are GLP meds associated with growth in PNETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 27, 2025

Comment

Hello @kimberlybrunson, and welcome to the NETs support group on Mayo Clinic Connect. You've provided some...

https://connect.mayoclinic.org/comment/1491413/

Discussion: Tips about preparing for my second opinion appointment at Mayo

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 26 7:33pm

Comment

I recently had my first appointment with DR Starr It is very important that he have...

https://connect.mayoclinic.org/comment/1483504/

Discussion: Tips about preparing for my second opinion appointment at Mayo

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 16 4:29am

Comment

I have breast cancer as well as lung NETs and DIPNECH. My breast cancer is unrelated;...

https://connect.mayoclinic.org/comment/1206124/

Discussion: Concerns after lobectomy for carcinoid tumor in lung

Support Group: Lung Cancer

Posted: Jan 7, 2025

Comment

At 67 I was given my diagnosis of stage 3 lung Nets that has metastasized to...

https://connect.mayoclinic.org/comment/1019087/

Discussion: I have 3 neuroendocrine tumors in left lung: Can I handle radiation?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 20, 2024

Comment

Hello, I was diagnosed a year ago with NET in my left lung. I had surgery...

https://connect.mayoclinic.org/comment/1231241/

Discussion: New Diagnosis: husband's labs are all indicating NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 7, 2025

Comment

@ocean5: So sorry you are having this NET lung progression. I just joined a NET support...

https://connect.mayoclinic.org/comment/1242672/

Discussion: DIPNECH diagnosis. Has anyone had radiation?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 22, 2025

Comment

I had a somewhat similar situation when I was diagnosed with my pancreatic neuroendocrine tumor. In...

https://connect.mayoclinic.org/comment/1351342/

Discussion: NET tumor of pancreas (1 cm) diagnosed

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 18, 2025

Comment

DIPNECH and lung NETs typically do have somatostatin receptors which is why I had the DOTATATE...

https://connect.mayoclinic.org/comment/1361481/

Discussion: Recently diagnosed with a NET in my middle lobe of my right lung.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 1, 2025

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