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Discussions (28)
Comments (268)
Comment
Hi! I'm from Iowa. Have NETS in my lungs
https://connect.mayoclinic.org/comment/1169154/
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Discussion:
Welcome to the NETs Group! Come say hi.
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Nov 6, 2024
Comment
Hi @marciamiller I also have DIPNECH and lung NETS (cancer). I’m guessing you saw Dr. Ramirez....
https://connect.mayoclinic.org/comment/1162740/
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Discussion:
Anyone have side effects after Lanreotide injection?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Oct 25, 2024
Comment
Hello @californiazebra, I really appreciate the chronology that you provided as you have been dealing with...
https://connect.mayoclinic.org/comment/1179350/
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Discussion:
Welcome to the NETs Group! Come say hi.
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Nov 24, 2024
Comment
It can sure be a frustrating journey to diagnosis, can’t it? Glad they figured yours out...
https://connect.mayoclinic.org/comment/1171342/
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Discussion:
How many doctors did you see to get to your NETS diagnosis?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Nov 10, 2024
Comment
Hi Teresa, I’m currently a patient at Mayo in Jacksonville. I have been treated this year...
https://connect.mayoclinic.org/comment/1170850/
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Discussion:
NET of the Rectum: Anyone at Mayo Jacksonville? What can I expect?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Nov 9, 2024
Comment
Hi @breck Thank you for your response. Sorry this is so scary and you have breathing...
https://connect.mayoclinic.org/comment/1170238/
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Discussion:
Welcome to the NETs Group! Come say hi.
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Nov 8, 2024
Comment
Hi @breck You’ve been through a lot. Sorry to hear they did not get it all....
https://connect.mayoclinic.org/comment/1169807/
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Discussion:
Welcome to the NETs Group! Come say hi.
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Nov 7, 2024
Comment
Hello @aulynn and welcome to the NETs support group on Mayo Connect. I'm so glad that...
https://connect.mayoclinic.org/comment/1161114/
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Discussion:
New DIPNECH diagnosis, need advice on doctors
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Oct 22, 2024
Comment
Hi @donnapeck51 I’m sorry to hear about your Merkel cell carcinoma. I’m not a doctor but...
https://connect.mayoclinic.org/comment/1172492/
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Discussion:
Anyone living long-term with DIPNECH on lungs?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Nov 12, 2024
Comment
@gprior Hi Gloria. Sorry you have a tumor by your heart and need more surgery. No,...
https://connect.mayoclinic.org/comment/1142729/
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Discussion:
Anyone living long-term with DIPNECH on lungs?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Sep 16, 2024
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