Neuroendocrine Tumors (NETs) Support Group

Hi all I was wondering how can i get a second opinion for my 13 years old daughter that was diagnosed with neuroendocrine tumor with...

Hello everyone. I'm new to the journey. My husband was diagnosed last October with NETS. Surgery was done in January. During surgery seeding was seen...

Anyone have the above side effects? I was reading that the shot could effect your liver enzymes? I have non-functioning (no symptoms) metastatic tumors in...

Hi everyone, I’m hoping to get some perspectives from others who have faced similar decisions around PRRT. I’m a 40-year-old male with a well-differentiated Grade...

Hello, I am 51 years old and was diagnosed in April. My primary tumor is in the intestine and the doctors want to do surgery...

I had a Cat Scan 9/5 that first identified the cancer. Then I had an MRI 11/19/24 and then a Cat Scan 12/3/2024.I am wondering...

My precious wife of 39 years has grade 3 NET in her liver and pancreas (also in the ileum that was removed). She is receiving...

I was on everolimus in 2024 liver NETs did not shrink. Stopped in June 2025. Had Y 90 June 2025 treating right posterior lobe with...

I am interested in hearing people’s experiences with cabozantinib. I was diagnosed January 2020, grade 3, well-differentiated, unknown primary with tumors in liver, pancreas, lungs,...

I’m questioning if I should continue PRRT for NETs on my liver. I feel much worse after starting PRRT