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Neuroendocrine Tumors (NETs) Support Group

Public Support Group
1,940 total results
Discussion
Tumor growth in three month follow up MRI
Interested in others experience to understand imaging. Radiologist reports "Hepatic metastases have mildly increased in size from prior CT Dec 2024 and MRI November 2024."...
Last active: Apr 6 8:26am
Discussion
PRRT for NETs: Questioning whether I should continue or not
I’m questioning if I should continue PRRT for NETs on my liver. I feel much worse after starting PRRT
Last active: Oct 22, 2023
Discussion
What do I need to know about NETS?
What do I need to know about NETS? I would like to know about this cancer. it started in small intestine and has gone to...
Last active: Sep 11, 2023
Discussion
PNETs: What comes first? Surgery or try to shrink tumor with chemo?
Pancreatic nets on the tail moved to liver. It might be nonfuntional as it was found by accident and was shocking is an understatement.Do the...
Last active: Jan 25 6:30pm
Discussion
Help: What is a cancer symptom or not? Who to see?
I was diagnosed with a neuroendocrine tumour on my small bowel in 2014. This was found as I went into crisis. In June 2014 my...
Last active: Jun 5, 2019
Discussion
Carcinoid cancer in intestine or NETs (Neuroendocrine Tumors)
2016 my husband lost his colon and part of his small intestine following an colonoscopy. He now has an ileostomy which makes treating the cancer...
Last active: Mar 16, 2019
Discussion
NETS tumor in left adrenal gland: Any advice? Hope?
My wife was found to have a tumor in the left adrenal gland and it has complicated her liver and is swelling, what do you...
Last active: Aug 21, 2022
Discussion
Anyone have experience with Acites?
I have been diagnosed with PNets grade 2 that metastasized to liver. The past few months I have been dealing with acites. Currently doctor is...
Last active: Dec 28, 2024
Discussion
I recently learned of histotripsy treatment for metastatic NETs
Below are links with additional information.https://l.smartnews.com/p-15eSVMB/JS1UQ5Histotripsy treatment, FDA-approved therapy that kills cancer using sound and water, led by team at Providence Mission Hospital | abc7.comhttps://abc7.com/amp/post/histotripsy-treatment-fda-approved-therapy-kills-cancer-using-sound-water-led-team-providence-mission-hospital/15648669/Below...
Last active: Dec 31, 2024
Discussion
Anyone gone to Mayo Clinic in Rochester Minnesota for carcinoid tumors?
has anyone used mayo clinic in Rochester Minnesota for carcinoid tumors. the diagnosis was carcinoid tumors in the liver. I am looking for the best...
Last active: Apr 5, 2023